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When Will I Feel Better?

Jenifer

By Jenifer
in Coping with Celiac Disease

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Jenifer Newbie
Jenifer
Posted

Hi everyone. I was given a tentative diagnosis of celiac through biopsy two weeks ago. Dr wanted me to do blood tests to confirm but I had already removed gluten from my diet and was finally feeling well enough to go to work.

So I am on day 19 and I feel like I am on a roller coaster. I am 100 percent gluten free and mostly dairy free. Some days I wake up and feel good, then have about an hour of not feelin good. Other days, I wake up with joint pain, upset stomach, D, the whole deal all over again.

Is this normal?

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EzyEric Newbie
EzyEric
Posted

Yes.  I am 6 months in and experience exactly what you described.  I have noticed the hour or so of not feeling good after feeling good when I get up is after I have eaten and am now digesting (and whatever else).  

nvsmom Community Regular
nvsmom
Posted

Yes.  Recovery is often an up and down process in the first year especially.  Hang in there.  You'll slowly get more good than day days.  :)

Jenifer Newbie
Jenifer
Posted
  • Author

Thank you. I feel slightly better knowing that I am not losing my mind. It's so hard for myself and my family to understand how I can go from being fine and active to curled up in a ball feeling like I have been run over. So frustrating!!!

manasota Explorer
manasota
Posted

Over time, you will become more accepting of yourself and your symptoms.  Hopefully, others in your life will do the same.  Try to be patient.

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