My Celiac story

[Nelly]

I am a 44 year old woman diagnosed with celiac and hypothyroidism. I was married young and have 3 children. After having my first two kids since 1993 I developed some allergies and started taking anti allergic. After conceiving My third child, my 17 year old daughter who is now also been diagnosed with celiac , I developed some stomach problems.  Whenever I took milk from that day onwards I had eczema for which I use different skin ointments. After My delivery I got tested for allergies. Milk, soya, corn, yeast and rice gave me rashes accompanied with nasal allergy, runny nose and sneezing. I hit a vaccine for these allergies and the doctors told me I could eat all these things but in moderation and not together like milk with corn etc. I g

[LookingforAnswers15]

Hi Nelly, 

Have they recommended dietary changes or they just wanted to provide "quick fixes" (if they can be referred to as such) before giving you pills or vaccines? I really do not know anything about that but when it comes to allergies, as a celiac you need to know what you are reacting to and/or allergic to. If you already know or suspect some, I would recommend completely avoiding these for some time (at least 30 days) and then slowly start reintroducing them (e.g. first milk, wait and see how you react, then others but one at the time so that you know for sure if it bothers you). I really do not know if eating any of these in moderation is good for you right now.  Some people (like me) are super sensitive and I had eczema develop after I ate just one gluten-free granola bar that had to have something I am reacting to. So, everything in moderation would not work for me. Also, I read on one allergy test that getting negative results does not mean that the body is not reacting to certain things. Therefore, as celiacs we need to listen to our bodies.

[bartfull]

Allergies are not the same as intolerances or celiac. If you are reacting with runny nose and such you most likely are allergic to these things, in which case you should have an epi pen. A food that makes you sneeze today might give you full blown anaphalactic shock tomorrow. I don't know what a vaccine for allergies is. I know that some people get shots that expose them to tiny amounts of their allergen so they can build up a resistance to them, but I thought you had to get a series of shots over time.

I've been reading a lot about skin problems lately because I am fighting a particularly bad psoriasis flare right now. One of the things I heard that helps some folks with eczema is Listerine. It has antifungal properties that helps some folks. Couldn't hurt to try it.

And I'm sure you know that your other kids should be tested for celiac to as it runs in families. They say all first degree relatives should be tested every two years.

 

[Nelly]

Thanks for replying. Yes my daughter is also celiac. The thing is after going Gluten free i felt like a new person with high spirits good mood and full of energy but that was just for 2-3 days after that I am still having joint pains and when they are not there I feel dead Tired . All the time there's lethargy and low energy level and day by day it's getting worse. If that continues I guess in six months time I might be bed ridden. No one understands my condition . Please help!!!

[squirmingitch]

Nelly, how long have you been gluten free?

[Nelly]

Since March 2015 I have been on gluten free diet but I am taking milk in my tea and once ate oats which gave me the same symptoms as wheat

[cyclinglady]

So, you have celiac disease and have been gluten free since March 2015.  To be honest, 8 months is is still pretty early in the game.  Healing can take a long time (months to years) for those with celiac. It all depends on the amount of intestinal damage, how sick you were before you went gluten free, the type of damage incurred  (joints, neurological), your age, and the biggie -- diet adherance.  The gluten-free diet has a steep learning curve.  Seriously.  

Each accidental glutening can set you back and delay healing. How fyer do you eat out? 

i would recommend that you get another celiac antibodies test done to rule out any gluten exposure.  

Allergies and intolerances?  Imagine that you have a cup and you can toss in foods and things in the environment that can trigger symptoms.  A little milk in your tea, an ear of corn, and exposure, say to a cat (do not know your environmental allergies but bet you have them) will fill the cup and as it overflows, symptoms erupt.  My old allergist recommended complete avoidance until all symptoms dissipated and then test one at a time.  I did not haven any life threatening allergies.  If you even think you do, you should challenge (test) in your doctor's office.  Stephanie (on this forum) has a pretty good understanding of allergies.  

I wish you well!