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Does Everybody Have A Reaction When Eating Gluten?


lnr

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lnr Newbie

I was just wondering if everyone with celiac had a response to eating gluten once they have been gluten free for a while. I have been gluten free for about 5 weeks, and started eating gluten again because my blood tests and biopsies were negative, so I thought I'd give it a try. So far so good - but I was wondering if everyone else had immediate reactions, or if it took a while, and if the reactions were all severe. Thanks for your help - sorry if this is a stupid question!


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Fluffyblue Newbie
I was just wondering if everyone with celiac had a response to eating gluten once they have been gluten free for a while.  I have been gluten free for about 5 weeks, and started eating gluten again because my blood tests and biopsies were negative, so I thought I'd give it a try.  So far so good - but I was wondering if everyone else had immediate reactions, or if it took a while, and if the reactions were all severe.  Thanks for your help - sorry if this is a stupid question!

<{POST_SNAPBACK}>

I usually feel tired the next day - really excessively tired - and sometimes have a migraine and feel sick with it, but I don't normally get a reaction in terms of stomach pains for two to three days, if that helps. Sometimes I only get the pain reaction two or three days later without the tiredness or headache.

I was in the same boat as you - by bloodtests came back negative because I'd been gluten free for 5 weeks. I'm still waiting to discuss this with my doctor so am still pretty much gluten free, with the odd 'test' to see if I get a reaction.

darlindeb25 Collaborator

Some people have no reaction to gluten, but the damage is still being done inside along with the fact--that same damage is making your body more exceptable of other diseases. Some people have immediate reactions to gluten, some get very sick within an hour, some get sick slower, some of us are ill for days--if I get glutened, its over a week before I start feeling better--I was ill for over 3 weeks when I ate 3 tiny ricecake snacks that contained soy/corn, which I also have to be careful with. We are all different and react differently. Deb

KaitiUSA Enthusiast

I get bad reactions that last a good 2 weeks and I feel it immediately. Some people never get symptoms with it so it varies from person to person.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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    • Churley
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