Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely low level of energy


Nelly

Recommended Posts

Nelly Rookie

I am 44 years old diagnosed  with celiac in March 2015. I am hypothyroid also for which I am taking medicine. I am also taking all my vitamins and calcium supplements.before going gluten free I had stomach issues and occasional body aches but since I am on gluten free diet I am suffering from so many problems and low energy level has made me feel miserable. The more I move around do some regular chores I completely collapse. With low energy l Have joint pains too and whenever I do a little more physical work i have low grade fever . Please help I was fine before I went gluten free but now I feel horrible. I have left my job. Because of this my relationships are suffering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I would recommend going back to your doctor and get retested for celiac disease to confirm that you are diet compliant.   When was the last time your thyroid was checked?  Your prescription might need adjusting.   Fever is not one of the 300 symptoms of celiac disease so it may be something else.   Again, I think a doctor visit is in order.  

Nelly Rookie

Doctors have really disappointed me . They have no knowledge of celiac and they don't even bother to even listen to you. My thyroid Was .68 so the doctor decreased my dose so it went up to 19.6 and Then again I went back to my original dose of 100 mcg of thyroxin. I understand the lethargy can be related with it but even a slight physical activity Leads to low grade fever which is very strange. The whole day I spent sitting on a couch . Sometimes I feel so embarrassed and no one understands the condition I am going through. I feel I am just charged like two bars of a mobile and the more I do some work the battery is discharged. Miserable.......

 

RMJ Mentor

Are you sure that all of yur vitamins and supplements are gluten free?

cyclinglady Grand Master

Is your brand of thyroid replacement really gluten free?  Confirm with the manufacturer and check their website or insert packet for the ingrediant list as formulations change.  

Seriously, you could have mono on top of everything.  Just had a member who was diagnosed with it last month.  There is a blod test to check.  

Here is a dumb idea, but I thought my kid was running a low fever.  Turns out her digital thermometer was not calibrated right.  The old-fashioned Mercury thermometer was correct.  Had to buy a new digital.  

Nelly Rookie

Yes all my supplements and my thyroid medicine is gluten free. I use mercury thermometer and when I have low grade fever my My pains are bit severe than normal and plus I have a Bad headache which I usually don't have

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,173
    • Most Online (within 30 mins)
      7,748

    Mel12
    Newest Member
    Mel12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.