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Extremely low level of energy

Nelly

By Nelly
in Coping with Celiac Disease

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Nelly Rookie
Nelly
Posted

I am 44 years old diagnosed  with celiac in March 2015. I am hypothyroid also for which I am taking medicine. I am also taking all my vitamins and calcium supplements.before going gluten free I had stomach issues and occasional body aches but since I am on gluten free diet I am suffering from so many problems and low energy level has made me feel miserable. The more I move around do some regular chores I completely collapse. With low energy l Have joint pains too and whenever I do a little more physical work i have low grade fever . Please help I was fine before I went gluten free but now I feel horrible. I have left my job. Because of this my relationships are suffering.

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cyclinglady Grand Master
cyclinglady
Posted

I would recommend going back to your doctor and get retested for celiac disease to confirm that you are diet compliant.   When was the last time your thyroid was checked?  Your prescription might need adjusting.   Fever is not one of the 300 symptoms of celiac disease so it may be something else.   Again, I think a doctor visit is in order.  

Nelly Rookie
Nelly
Posted
  • Author

Doctors have really disappointed me . They have no knowledge of celiac and they don't even bother to even listen to you. My thyroid Was .68 so the doctor decreased my dose so it went up to 19.6 and Then again I went back to my original dose of 100 mcg of thyroxin. I understand the lethargy can be related with it but even a slight physical activity Leads to low grade fever which is very strange. The whole day I spent sitting on a couch . Sometimes I feel so embarrassed and no one understands the condition I am going through. I feel I am just charged like two bars of a mobile and the more I do some work the battery is discharged. Miserable.......

 

RMJ Mentor
RMJ
Posted

Are you sure that all of yur vitamins and supplements are gluten free?

cyclinglady Grand Master
cyclinglady
Posted

Is your brand of thyroid replacement really gluten free?  Confirm with the manufacturer and check their website or insert packet for the ingrediant list as formulations change.  

Seriously, you could have mono on top of everything.  Just had a member who was diagnosed with it last month.  There is a blod test to check.  

Here is a dumb idea, but I thought my kid was running a low fever.  Turns out her digital thermometer was not calibrated right.  The old-fashioned Mercury thermometer was correct.  Had to buy a new digital.  

Nelly Rookie
Nelly
Posted
  • Author

Yes all my supplements and my thyroid medicine is gluten free. I use mercury thermometer and when I have low grade fever my My pains are bit severe than normal and plus I have a Bad headache which I usually don't have

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
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      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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