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Extremely low level of energy


Nelly

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Nelly Rookie

I am 44 years old diagnosed  with celiac in March 2015. I am hypothyroid also for which I am taking medicine. I am also taking all my vitamins and calcium supplements.before going gluten free I had stomach issues and occasional body aches but since I am on gluten free diet I am suffering from so many problems and low energy level has made me feel miserable. The more I move around do some regular chores I completely collapse. With low energy l Have joint pains too and whenever I do a little more physical work i have low grade fever . Please help I was fine before I went gluten free but now I feel horrible. I have left my job. Because of this my relationships are suffering.


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cyclinglady Grand Master

I would recommend going back to your doctor and get retested for celiac disease to confirm that you are diet compliant.   When was the last time your thyroid was checked?  Your prescription might need adjusting.   Fever is not one of the 300 symptoms of celiac disease so it may be something else.   Again, I think a doctor visit is in order.  

Nelly Rookie

Doctors have really disappointed me . They have no knowledge of celiac and they don't even bother to even listen to you. My thyroid Was .68 so the doctor decreased my dose so it went up to 19.6 and Then again I went back to my original dose of 100 mcg of thyroxin. I understand the lethargy can be related with it but even a slight physical activity Leads to low grade fever which is very strange. The whole day I spent sitting on a couch . Sometimes I feel so embarrassed and no one understands the condition I am going through. I feel I am just charged like two bars of a mobile and the more I do some work the battery is discharged. Miserable.......

 

RMJ Mentor

Are you sure that all of yur vitamins and supplements are gluten free?

cyclinglady Grand Master

Is your brand of thyroid replacement really gluten free?  Confirm with the manufacturer and check their website or insert packet for the ingrediant list as formulations change.  

Seriously, you could have mono on top of everything.  Just had a member who was diagnosed with it last month.  There is a blod test to check.  

Here is a dumb idea, but I thought my kid was running a low fever.  Turns out her digital thermometer was not calibrated right.  The old-fashioned Mercury thermometer was correct.  Had to buy a new digital.  

Nelly Rookie

Yes all my supplements and my thyroid medicine is gluten free. I use mercury thermometer and when I have low grade fever my My pains are bit severe than normal and plus I have a Bad headache which I usually don't have

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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