Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely low level of energy

Nelly

By Nelly
in Coping with Celiac Disease

Recommended Posts

Nelly Rookie
Nelly
Posted

I am 44 years old diagnosed  with celiac in March 2015. I am hypothyroid also for which I am taking medicine. I am also taking all my vitamins and calcium supplements.before going gluten free I had stomach issues and occasional body aches but since I am on gluten free diet I am suffering from so many problems and low energy level has made me feel miserable. The more I move around do some regular chores I completely collapse. With low energy l Have joint pains too and whenever I do a little more physical work i have low grade fever . Please help I was fine before I went gluten free but now I feel horrible. I have left my job. Because of this my relationships are suffering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I would recommend going back to your doctor and get retested for celiac disease to confirm that you are diet compliant.   When was the last time your thyroid was checked?  Your prescription might need adjusting.   Fever is not one of the 300 symptoms of celiac disease so it may be something else.   Again, I think a doctor visit is in order.  

Nelly Rookie
Nelly
Posted
  • Author

Doctors have really disappointed me . They have no knowledge of celiac and they don't even bother to even listen to you. My thyroid Was .68 so the doctor decreased my dose so it went up to 19.6 and Then again I went back to my original dose of 100 mcg of thyroxin. I understand the lethargy can be related with it but even a slight physical activity Leads to low grade fever which is very strange. The whole day I spent sitting on a couch . Sometimes I feel so embarrassed and no one understands the condition I am going through. I feel I am just charged like two bars of a mobile and the more I do some work the battery is discharged. Miserable.......

 

RMJ Mentor
RMJ
Posted

Are you sure that all of yur vitamins and supplements are gluten free?

cyclinglady Grand Master
cyclinglady
Posted

Is your brand of thyroid replacement really gluten free?  Confirm with the manufacturer and check their website or insert packet for the ingrediant list as formulations change.  

Seriously, you could have mono on top of everything.  Just had a member who was diagnosed with it last month.  There is a blod test to check.  

Here is a dumb idea, but I thought my kid was running a low fever.  Turns out her digital thermometer was not calibrated right.  The old-fashioned Mercury thermometer was correct.  Had to buy a new digital.  

Nelly Rookie
Nelly
Posted
  • Author

Yes all my supplements and my thyroid medicine is gluten free. I use mercury thermometer and when I have low grade fever my My pains are bit severe than normal and plus I have a Bad headache which I usually don't have

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    2. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    3. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
    4. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Thanks for your input.
    5. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,063
    • Most Online (within 30 mins)
      7,748
    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.