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Horrible smelling BM & Farts, gluten intolerant?


Bethanylynn

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Bethanylynn Rookie

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

  • 3 years later...

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Scott Adams Grand Master

Hopefully you've now recovered, and have been able to stay on a gluten-free diet. Let us know!

  • 1 month later...
victor-dan Newbie

I don't think Gluten affects the smell in the intestines that much. I think the combinations of food you eat are more likely affect the smell. Are you eating fruits on an empty stomach. Are you combining meat with bread? Also, I think you should consider having some blood/stool/glucose tests to see if you have a virus/bacteria in your intestines. Bacteria LIKE Helicobacter and Giardia can create unpleasant symptoms. I had such viruses once and I had the worst symptoms ever (including pain and smell). I wish no one this thing.

  • 1 year later...
12345678901234567890 Newbie
On 11/9/2015 at 5:54 PM, Bethanylynn said:

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

I'm unfortunately celiac now after having C.diff which ulcerated my intestines. It's been 2 years, and I've only accidentally been exposed to gluten now 4 times. It's horrible. But i usually can tell it's from a gluten exposure because of the awful sulfur gas. The smell is so intense and will usually linger for days!!! There is NOTHING else like it.  

  • 3 years later...
Shaam Newbie

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

trents Grand Master
46 minutes ago, Shaam said:

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

You say your functional doctor says you don't have the gene (actually there's more than one gene that has been connected with celiac disease) but did that doc actually order a genetic test for that?

And you say you were tested twice for celiac disease and told you didn't have it. Sounds like you have been on and off gluten for some years. My question for you is, when you were tested had you been eating regular amounts of gluten for weeks or months? Many people don't realize the tests for celiac disease are invalidated if you are off of gluten.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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