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Horrible smelling BM & Farts, gluten intolerant?


Bethanylynn

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Bethanylynn Rookie

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

  • 3 years later...

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Scott Adams Grand Master

Hopefully you've now recovered, and have been able to stay on a gluten-free diet. Let us know!

  • 1 month later...
victor-dan Newbie

I don't think Gluten affects the smell in the intestines that much. I think the combinations of food you eat are more likely affect the smell. Are you eating fruits on an empty stomach. Are you combining meat with bread? Also, I think you should consider having some blood/stool/glucose tests to see if you have a virus/bacteria in your intestines. Bacteria LIKE Helicobacter and Giardia can create unpleasant symptoms. I had such viruses once and I had the worst symptoms ever (including pain and smell). I wish no one this thing.

  • 1 year later...
12345678901234567890 Newbie
On 11/9/2015 at 5:54 PM, Bethanylynn said:

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

I'm unfortunately celiac now after having C.diff which ulcerated my intestines. It's been 2 years, and I've only accidentally been exposed to gluten now 4 times. It's horrible. But i usually can tell it's from a gluten exposure because of the awful sulfur gas. The smell is so intense and will usually linger for days!!! There is NOTHING else like it.  

  • 3 years later...
Shaam Newbie

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

trents Grand Master
46 minutes ago, Shaam said:

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

You say your functional doctor says you don't have the gene (actually there's more than one gene that has been connected with celiac disease) but did that doc actually order a genetic test for that?

And you say you were tested twice for celiac disease and told you didn't have it. Sounds like you have been on and off gluten for some years. My question for you is, when you were tested had you been eating regular amounts of gluten for weeks or months? Many people don't realize the tests for celiac disease are invalidated if you are off of gluten.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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