Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

can't figure out what is glutening me


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

There is something that has been glutening me the last several weeks and I can't figure it out. I don't know what in the world it is. I am so frustrated. I ate a gluten-free hot dog yesterday and had some food for life cookies. Not sure if that was it. But every few days something is getting me to react. 

What can I safely eat for a few days to test what it is. I eat almond milk in my coffee.  I'm wondering if the coffee is too strong or just what it could be. My gut is in a knot and I keep having painful loose stool. 

I just want to be better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2lonedogs Newbie

Wow, you probably have a long way to go... It's not just gluten many people have found out. Since it wrecks your autoimmune system, your body treats all kinds of foods as invaders and attacks them with those same gluten type symptoms and others. To give you some hints at what may be doing it, I avoid all dairy, grains, fruit, chemicals ( preservatives, baking soda, baking powder) soy, nuts. Basically I eat only veggies and fresh meats. Chemicals make my brain fog-up and nausea/ tired takes over for a few hours. Watch for bloating, gas and diarrhea after meals. I'm in my early 60s so joint paint is an issue because food intolerance creates taut muscles which puts pressure on your joints... Creates pulled muscles, muscle cramping and joint pain. 

If you weigh yourself every day, you can also detect issues by sudden weight gain overnight of 2-3 lbs ( in my case. )

Have been at this 2 years and I feel 30 yrs old again most days except when I try another food that doesn't work... Whether you like it or not, you are now your own personal human test subject. Good luck in your efforts... Check back here often!

jerseyangel Proficient

Hi, I noticed that you use almond milk, and thought I'd pass along something that I learned while doing a dairy free trial a while back and subbed almond milk for dairy in my daily tea.

A lot of commercial almond milks contain carrigeenan, which can cause pretty severe intestinal irritation in some people.  It's *not* a gluten issue, but it's something to consider if you're trying to figure out what's bothering you.  At any rate, I hope you get to the source of your discomfort:)

cyclinglady Grand Master
19 minutes ago, jerseyangel said:

Hi, I noticed that you use almond milk, and thought I'd pass along something that I learned while doing a dairy free trial a while back and subbed almond milk for dairy in my daily tea.

A lot of commercial almond milks contain carrigeenan, which can cause pretty severe intestinal irritation in some people.  It's *not* a gluten issue, but it's something to consider if you're trying to figure out what's bothering you.  At any rate, I hope you get to the source of your discomfort:)

Excellent suggestion!  I had issues with xanthan gum found in most commercial breads.   I also can not eat anything with a sausage casing.  It comes right back up after a few hours suffering nausea.  Not a gluten issue, just a "me" problem.  

mommyto2kids Collaborator

Does almond yogurt have carrageenan? Could it be am probiotic? It is gluten-free tho.

jerseyangel Proficient

Carrageenan is used as a thickener, to enhance texture, it's not a probiotic.  If it's in a product, it will be listed as such on the ingredient list.

tbiz Newbie

I was gluten free for months and still having the same nagging gluten symptoms. That is until i finally put it together that I felt worse after corn containing products. Turns out, corn has its own form of gluten. Most people with a gluten issue can tolerate corn gluten just fine, but some cannot. I feel much much better since going corn free, as much as it's stunk giving up some of my favorites (i was a soda junkie beforehand!)

I'm hoping that after some healing time I can slowly reintroduce corn into my diet in small amounts simply for the fact that it's in A LOT of stuff!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyto2kids Collaborator

I keep thinking about it. Could it be my probiotic? Can I not tolerate all probiotics right now? Recently I tried two different ones that claim to be gluten-free. I was thinking it may be my Udi's bread. Then I was thinking it may be the food for life chocolate chips. But I started retaking probiotics recently as well, after a long break. I used to take them ok I think. But I have to consider ALL foods or meds. 

Is there a fool proof probiotic that you can think of? If so, please let me know. Can I get probiotic in foods other than dairy?

 

  • 3 weeks later...
cap6 Enthusiast

Food products like hot dogs, cookies and bread all have multiple ingredients which can play hell on a gut that is still struggling to heal.  Stick with fresh, whole, clean foods for at least 6 months and then slowly introduce one of your favorite goodies, like a hot dog, and see how you do.   If a food product has ingredients, then it is not a whole clean food.  Bake a piece of chicken with some spices, roast or steam some veggies, bake a sweet potato & pour a little coconut oil on it.  Yummy, good for you and ingredient free!  Help for your healing gut!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,127
    • Most Online (within 30 mins)
      7,748

    Steve715
    Newest Member
    Steve715
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.