Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing for vitamin etc. deficiencies after celiac diagnosis


villi-lover

Recommended Posts

villi-lover Newbie

My daughter was diagnosed with celiac disease in August via blood antibody test results.  We took her in because she did not grow as expected during her third year, dropping from the 90th percentile to the 25th in height.

When her test results came in, her doctor did not think it was necessary to do any further bloodwork to check for vitamin or mineral deficiencies, or for anemia.  She thought that kids bounce back quickly once going gluten-free, and any deficiencies would quickly correct themselves as her body healed.

She has been gluten-free for 4 months.  The first two weeks (!) she grew an entire inch, which was amazing, but has not grown appreciably since, or gained any weight whatsoever.  I read a study which indicated most catch-up growth takes place in the first 6 months...so I am now concerned she may have underlying zinc or vitamin D deficiency or anemia that is interfering with her appetite and growth. 

So my question is:  did your doctors do follow-up bloodwork after the celiac diagnosis to check for correctable deficiencies?  (My husband certainly did after his diagnosis!)  I don't want to needlessly stick my kid with needles, but I'm starting to worry we are missing something.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Vitamin deficiencies can continue to be a problem after years of diagnoses.  There are not many gluten free breads that are vitamin and nutrient fortified compared to gluten mainstream products.

For example my daughter was diagnosed with vitamin D deficiency 10 years on a gluten free diet.  Not to mention an iron test is done at every yearly check up, standard for every pediatric patient NOT diagnosed with Celiac.

  • 3 months later...
nmlove Contributor

Is this a pediatrician or a gi doctor? I could see the reply from the one and not the other. 

My kids saw the gi doctor every 3months for awhile and then every six months until normal labs and now they go once a year. Doc checks not just celiac stuff (adherence to diet) but vitamin levels (particularly d and calcium), and also thyroid. 

Adult doctors tend to blow me off with celiac but I have never had that happen with my children. My oldest in particular struggles with deficiencies. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,648
    • Most Online (within 30 mins)
      7,748

    Nic0000
    Newest Member
    Nic0000
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.