Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing for vitamin etc. deficiencies after celiac diagnosis


villi-lover

Recommended Posts

villi-lover Newbie

My daughter was diagnosed with celiac disease in August via blood antibody test results.  We took her in because she did not grow as expected during her third year, dropping from the 90th percentile to the 25th in height.

When her test results came in, her doctor did not think it was necessary to do any further bloodwork to check for vitamin or mineral deficiencies, or for anemia.  She thought that kids bounce back quickly once going gluten-free, and any deficiencies would quickly correct themselves as her body healed.

She has been gluten-free for 4 months.  The first two weeks (!) she grew an entire inch, which was amazing, but has not grown appreciably since, or gained any weight whatsoever.  I read a study which indicated most catch-up growth takes place in the first 6 months...so I am now concerned she may have underlying zinc or vitamin D deficiency or anemia that is interfering with her appetite and growth. 

So my question is:  did your doctors do follow-up bloodwork after the celiac diagnosis to check for correctable deficiencies?  (My husband certainly did after his diagnosis!)  I don't want to needlessly stick my kid with needles, but I'm starting to worry we are missing something.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Vitamin deficiencies can continue to be a problem after years of diagnoses.  There are not many gluten free breads that are vitamin and nutrient fortified compared to gluten mainstream products.

For example my daughter was diagnosed with vitamin D deficiency 10 years on a gluten free diet.  Not to mention an iron test is done at every yearly check up, standard for every pediatric patient NOT diagnosed with Celiac.

  • 3 months later...
nmlove Contributor

Is this a pediatrician or a gi doctor? I could see the reply from the one and not the other. 

My kids saw the gi doctor every 3months for awhile and then every six months until normal labs and now they go once a year. Doc checks not just celiac stuff (adherence to diet) but vitamin levels (particularly d and calcium), and also thyroid. 

Adult doctors tend to blow me off with celiac but I have never had that happen with my children. My oldest in particular struggles with deficiencies. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,772
    • Most Online (within 30 mins)
      7,748

    Brandi J
    Newest Member
    Brandi J
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.