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Best Gluten Free List?


hkeener

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hkeener Newbie

I have now had my biopsy after positive blood test results so am trying to go gluten free to start to be able to eat more than apple sauce again... I am wondering what the best resource is for listing what "regular foods" (and even hygiene products, etc.) are gluten free and which are not. I would like something to give me a starting list as I learn how to spot the not so obvious sources of gluten. Any suggestions of books, mail order lists, internet downloads, etc. would be great! Thanks!


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mart Contributor

Hi. My son was diagnosed just 3 months ago. It hasn't been easy, but this site has made life bearable again. I haven't bought any lists yet, but I have bought cookbooks. I bought all of Bette Hagman's cookbooks, and they were okay. Her bean flour breads have a wonderful consistency but a horrible flavor. So we just buy our breads from Kinnickinnick. I've yet to find a good commercial bread mix for the expensive bread mix we invested in. I am very pleased, however, with Annalise Roberts' cookbook. Her recipes are so fantastic that they even appear in Gourmet Magazine. Just made her chocolate chip cookies (which Gourmet Magazine praised highly) and I've gotta tell you, there's no way you can distinguish these from regular Toll House cookies! Good luck!

jenvan Collaborator

hkenner-

there are several lists around. one is the delphi forum list, compiled by fellow celiacs. you can view their gluten-free food lists here: Open Original Shared Link i will say i often double check the items on this list myself...but it serves as a good guide. i printed this list off and put in a binder i keep at home.

another list is the clan thompson food list. it is a software you purchase and you install on your computer or palm pilot. it is updated with new products every few months. this list has been well worth it for me, b/c it is on my palm pilot, i have it wherever i go, and it has come in handy MANY times at the grocery store. you can download a demo if you just want to try it first. view it here: Open Original Shared Link

there is also the list that CSA puts out. i honestly never purchased that one, so someone else can speak to that...

:)

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    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
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    • Trish G
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