Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

All done with biopsies

CherylS

Recommended Posts

CherylS Apprentice
CherylS
Posted

I had EGD with biopsies and colonoscopy today.  I should have results of the biopsies by Thursday, I have follow up appointment with my doctor on January 21.

I truly believe I took a hit as a forming embryo and survived.  About 20 years ago I learned that I was born without a gallbladder.  

Today's EGD revealed that I have ectopic pancreas in my stomach.  It's congenital and harmless. It's just pancreatic tissue growing somewhere else in the GI tract.

My GI doctor wants to do a capsule endoscopy of my small intestine, I'm not sure why.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

Great job getting through it!  Please do let us know when you get results.

The gallbladder thing is crazy...but at least you won't have to have surgery to have it removed like so many of us!

Celiac Nutritionist Newbie
Celiac Nutritionist
Posted

Awesome news!  Let us know what your results are like!

This is just a guess about the capsule endoscopy -  but he might want to see if anything else is missing/ out of place / everything is functioning how he things it should be.  

Did they schedule one already or are they waiting for the results of the first one? 

CherylS Apprentice
CherylS
Posted
  • Author
12 hours ago, Celiac Nutritionist said:

Awesome news!  Let us know what your results are like!

This is just a guess about the capsule endoscopy -  but he might want to see if anything else is missing/ out of place / everything is functioning how he things it should be.  

Did they schedule one already or are they waiting for the results of the first one? 

I read the report of the colonoscopy.  It says "localized nodularity was noted in the cecum. Multiple cold forceps biopsies were performed for histology."  I'm trying to remain calm, but of course my brain goes to colon cancer.  She said there were no polyps, which gives me a little hope that I'm fine.  I think she probably wants to do the capsule endoscopy to look at my small intestine, especially the ileum since it's right next to the cecum.

The weirdest thing to me is that she told me that she didn't see anything on either procedure.  The EGD report talks about the ectopic pancreas and the colonoscopy talked about diverticulosis and the nodularity in the cecum.  I would think if you had to biopsy something and want further imaging it warrants telling the patient that you saw something potentially wrong.

I'm a nurse and know that diverticulosis isn't anything to be concerned about, so I'm not worried about that.

I'm waiting for insurance approval for capsule endoscopy.

cyclinglady Grand Master
cyclinglady
Posted

If you are talking about a visual confirmation of celiac disease, most doctors can not often see damage.  It should show up on the biopsies.   I had a Marsh Stage IIIB and yet my GI saw nothing wrong visually.  

Celiac Nutritionist Newbie
Celiac Nutritionist
Posted
13 hours ago, CherylS said:

I read the report of the colonoscopy.  It says "localized nodularity was noted in the cecum. Multiple cold forceps biopsies were performed for histology."  I'm trying to remain calm, but of course my brain goes to colon cancer.  She said there were no polyps, which gives me a little hope that I'm fine.  I think she probably wants to do the capsule endoscopy to look at my small intestine, especially the ileum since it's right next to the cecum.

The weirdest thing to me is that she told me that she didn't see anything on either procedure.  The EGD report talks about the ectopic pancreas and the colonoscopy talked about diverticulosis and the nodularity in the cecum.  I would think if you had to biopsy something and want further imaging it warrants telling the patient that you saw something potentially wrong.

I'm a nurse and know that diverticulosis isn't anything to be concerned about, so I'm not worried about that.

I'm waiting for insurance approval for capsule endoscopy.

When you are in the field, your mind always goes to the worst because you "know to much" - use your knowledge to research and logically think things through (which is super crazy difficult to do when its ourselves).    That is not very cool that she said she didnt see "anything"  - but maybe nothing of "concern" to her means nothing?       I hope your insurance comes through soon - any idea how long that will take for you?

 

CherylS Apprentice
CherylS
Posted
  • Author
9 hours ago, cyclinglady said:

If you are talking about a visual confirmation of celiac disease, most doctors can not often see damage.  It should show up on the biopsies.   I had a Marsh Stage IIIB and yet my GI saw nothing wrong visually.  

There was some nodularity in my cecum, I think she wants the capsule endoscopy to make sure my small intestine doesn't have any nodules, since it's right there near the cecum.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,866
    • Most Online (within 30 mins)
      7,748
    Jan Exum
    Newest Member
    Jan Exum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.