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Pre Dignosis/Testing for Ceoliac

Frazer

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Frazer Newbie
Frazer
Posted

Hi everyone,

I'm new to this group today so bare with me! So i started about 6 weeks ago getting quite mentally confused/dizzy. Then came the overwhelming tiredness usually after eating and occasional bout of diarrhoea. 4 weeks down the line I have developed quite dreadful brain fog, feel drowsy quite a lot, depression/anxiety, lost about 1 stone, feel very weak, light coloured constipation, general strange noises coming from my upper stomach and gas. I've had blood taken on monday for Ceoliac disease should take around 2 weeks to know the results. Im writing today for some kind of reassurance. In element these problems have ruined my life over the last 6 weeks as I'm usually a happy active 19 year old lad however I've been able to/felt like doing nothing. Do people think this sounds like Ceoliac? in a way i hope it is so i can start to make some changes! Anyone had similar symptoms??

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CherylS Apprentice
CherylS
Posted

I'm not a doctor so I can't diagnose you, but I wanted to let you know that I hope you get some answers soon. I hope they also checked your liver enzymes.  You have the exact symptoms I had when I was diagnosed with autoimmune hepatitis.

Jessica77 Newbie
Jessica77
Posted

My daughter had some of the same symptoms and tested positive for Celiacs although she had the symptoms for years before she was diagnosed.  If your test comes back positive you may have to have a biopsy done to confirm. That's what they did for her and then she started a gluten free diet. She had to eat normal to get an accurate test. The goods news is if it is positive you should see some relief once going gluten free and there are a lot of good gluten free options. Good luck!

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      Is it gluten?

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      Thanks for the reply. 
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      nothing has changed

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Is it gluten?

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