Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy....nervous?!

Jnylny

Recommended Posts

Jnylny Newbie
Jnylny
Posted

Hello! I first posted in October with lab resultsbut have been frequently checking in on other posts and learned alot about celiac disease. I am hoping for a little help/support. 

My bloodwork indicates celiac. I am scheduled for my endoscopy this Thursday and am looking for reassurance that this should be an "easy" procedure.  It was explained I will be asleep and should only last 15 or so until finished. I'm not sure if I am more nervous about the procedure or the results. Any advice or words of wisdom would be greatly appreciated! Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

No worries!  It is easy!  Nothing to it.  I had both an endoscopy and a colonoscopy at the same time.  It was the prep for the colonoscopy that was hard.  How much jello, lemon Gatorade and chicken broth can you stand?  ?

It will be over before you know it!

Whatever the outcome, you will be one step closer to being well!  Hugs! 

CherylS Apprentice
CherylS
Posted

I had my endoscopy on Friday, with a colonoscopy added in for a little more excitement!

It took a little over a half hour for both procedures.  I'm not sure how many biopsies she did on the endoscopy, when I asked I was told several.  

Think of it this way, whatever is going on has and will be going on if you know or not, so you might as well know what's going on.

squirmingitch Veteran
squirmingitch
Posted

Yup, endoscopies are a piece of cake. Nothing after midnight & you will be out for the procedure & it will be quick. Then you can drink, go home & eat & relax. 

canadianjem Rookie
canadianjem
Posted

I got the "Michael Jackson drug" for my endoscopy.  Apparently, I wasn't fully asleep and asked the doctor to not put a scope that has already been in someone else's butt down my throat...I may get germs!!!

*****Sooooooo embarrassed ********

Long story short...was super easy and fast and thankfully don't remember a thing.

CherylS Apprentice
CherylS
Posted
1 hour ago, canadianjem said:

I got the "Michael Jackson drug" for my endoscopy.  Apparently, I wasn't fully asleep and asked the doctor to not put a scope that has already been in someone else's butt down my throat...I may get germs!!!

*****Sooooooo embarrassed ********

Long story short...was super easy and fast and thankfully don't remember a thing.

They put some sort of thing in my mouth to hold it open for the scope, it made me drool because I couldn't close my mouth to swallow.  I had the propofol as well.  I do remember trying to move the pillow (I was on my left side) because there was drool on it, lol.  The things we worry about while drugged up, haha.

 

Jnylny Newbie
Jnylny
Posted
  • Author

Thank you all very much for replying with kindness and humor!! Tomorrow's the day and I am ready for some answers!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CherylS Apprentice
CherylS
Posted
1 hour ago, Jnylny said:

Thank you all very much for replying with kindness and humor!! Tomorrow's the day and I am ready for some answers!!

My GI doctor has a patient portal where you can view results, send messages, etc.  On my care plan it said something about awaiting pathology results from small intestine and cecum.  They took that goal down yesterday.  It means my results are there, but they didn't post them in the results section.  It's making me anxious.  The day of the procedures I asked them to please mail me a hard copy when they received them and they said they would.  I'm afraid they are going to make me wait until my follow up appointment on January 21 to get my results.  I'm not a patient person.

jessicacope Newbie
jessicacope
Posted

When they do the endoscopy, what are they looking to find in regards to Celiac?  Sorry, just learning about all of this. :(  

Praying your procedure goes well, CherylS!

kareng Grand Master
kareng
Posted
1 hour ago, jessicacope said:

When they do the endoscopy, what are they looking to find in regards to Celiac?  Sorry, just learning about all of this. :(  

Praying your procedure goes well, CherylS!

This website has a lot of good info

 

Open Original Shared Link

 

 

Jnylny Newbie
Jnylny
Posted
  • Author

CherylS, I feel for you!  Waiting is the worst!!  it seems that's all I've done this fall and early winter...wait for an appt, wait for blood work results, wait to get specialist appt, wait for endoscopy.  I hope that you are able to see the report soon!

Jessiacope, they are looking for damage to the villi in your small intestine.  They use the Marsh Scale to identify the extent of damage caused due to celiac disease.  

Jnylny Newbie
Jnylny
Posted
  • Author

You all were very correct! The scope was easy for me...I was out like a light and don't remember anything. I was told I asked why I wasn't home yet but I don't remember that:) 

Anyway, the Dr. took 4 biopsies and on his report noted mucosal damage and stippling of the duodenum typical of celiac but I must wait for biopsy results...and in the meantime I have begun to eat gluten free because the writing is on the wall for me....

squirmingitch Veteran
squirmingitch
Posted

Yay! It's over! Happy gluten free eating!!!!!!

CherylS Apprentice
CherylS
Posted
13 hours ago, Jnylny said:

You all were very correct! The scope was easy for me...I was out like a light and don't remember anything. I was told I asked why I wasn't home yet but I don't remember that:) 

Anyway, the Dr. took 4 biopsies and on his report noted mucosal damage and stippling of the duodenum typical of celiac but I must wait for biopsy results...and in the meantime I have begun to eat gluten free because the writing is on the wall for me....

Wow, so glad you got results so quickly!  Still waiting here, lol.

Are you feeling better gluten free?

Jnylny Newbie
Jnylny
Posted
  • Author

@CherylS, you're still waiting?! :( very sorry to hear that. 

My dr that performed the scope gave me a report to take home plus on the discharge paper it was handwritten about the mucosal damage. He also spoke to my husband about what he saw while I was sleeping off the meds. 

No call about the labs yet but like I said...it's all there... I am feeling a bit better. My stomach is already not as upset as before. Just trying to adjust to my new normal eating habits!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,538
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.