Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sooo I Went To The Doc..

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted

And gave my two vilas of blood. So now Im going gluten-free agian, and wiating on the results. I hate on wiating. Did I mention that i hate waiting? Cause I realy do. Waiting stinks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
  • Author

Oh and this is intreating dunno if its related or not but since going on gluten my bp been steadly going up. This time it was 142/98.

VydorScope Proficient
VydorScope
Posted
  • Author

Ugh.. did I mention I hate waiting yet? This stinks. :( Prbly take a lot longer to get reustls cause of Turkeyday too.

CMCM Rising Star
CMCM
Posted
Oh and this is intreating dunno if its related or not but since going on gluten my bp been steadly going up. This time it was 142/98.

<{POST_SNAPBACK}>

That's interesting about the BP....mine is regularly in the range you mention, and for YEARS this has been an issue for me. I'm technically not overweight, in good health other than the celiac disease stuff, don't take medicines EXCEPT....I've tried various BP meds and nothing really helped. Right now I take diuretics for BP and that helps a bit and it usually keeps it around 120/85 or so, but the other day when I was having such a horrible reaction with dizziness etc. it was up to 148/98 or some such. So here's another area that may have a connection to celiac disease....although not always, obviously, because my Mom had LOW BP for years. Go figure!

jerseyangel Proficient
jerseyangel
Posted

My BP is also in the same range as yours. I take 2 different BP meds. now and they seem to be keeping it in the normal range. Its been high for about 8 years now. Does this have something to do with celiac disease or just a coincidence?

WGibs Apprentice
WGibs
Posted

If it makes you feel any better, I'm right here waiting with you. I had more blood taken on Friday, after getting a high AGA result. I still don't think that they are running all the tests people on here ask for, but I'm hoping it'll be enough. I started gluten-free on Saturday and immediately got relief from all my GI symptoms. I really hope I've found an answer! I can't believe how much better I feel...there has got to be a connection.

Part of me feels like I should still be eating gluten, since I may need more tests, but I just don't know if I can -- I feel so much better.

For some reason, though, I'm still expecting my blood work to come back negative.

VydorScope Proficient
VydorScope
Posted
  • Author
If it makes you feel any better, I'm right here waiting with you.  I had more blood taken on Friday, after getting a high AGA result.  I still don't think that they are running all the tests people on here ask for, but I'm hoping it'll be enough.  I started gluten-free on Saturday and immediately got relief from all my GI symptoms.  I really hope I've found an answer!  I can't believe how much better I feel...there has got to be a connection. 

Part of me feels like I should still be eating gluten, since I may need more tests, but I just don't know if I can -- I feel so much better.

For some reason, though, I'm still expecting my blood work to come back negative.

<{POST_SNAPBACK}>

They prbly WONT do all the test, most insurance will only cover one fo the tests, one that is considered for "screening" ttIGA or somthign like that.... I cant keep them straight.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
  • Author
My BP is also in the same range as yours.  I take 2 different BP meds. now and they seem to be keeping it in the normal range.  Its been high for about 8 years now.  Does this have something to do with celiac disease or just a coincidence?

<{POST_SNAPBACK}>

Dunno all I know is I used to be on BP meds, then went low carb, lost 50 pounds and stopped the meds. BP was a bit high, but in normal range till I went back on gluten... could be conicdence ... or not, duno.

mightymorg Rookie
mightymorg
Posted

I'm also waiting on my blood test results--I can definetly relate!!

All this BP talk...when I went in on Friday, my BP was 104/61...Wednesday, right before my colonoscopy my BP was 116/84. I thought it would be higher than that because I was scared outta my mind! I guess that's a little high for me now, though...it makes sense though if my BP is going down since I have lost weight from not feeling good.

jerseyangel Proficient
jerseyangel
Posted

Yes! A few years ago, pre gluten-free, I went on the Atkins diet with a friend. I lost about 30 lbs. and was on BP meds. at the time. I got incredibly dizzy, and my BP got really low. Was taken off the meds. and was fine for a short time, but then it crept back up. Now I take Norvasc and Lisonopril. Anyway, hope you get your results back quickly :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      I take both Benfotiamine and TTFD. You might want to start with the Benfotiamine for a few days and then add in the TTFD. You can look for NeuroMag (Magnesium Threonate). A magnesium glycinate is fine, too. Doctor's Best is a good brand. Don't take more than 300mg total per day of magnesium or it may have a laxative effect. Be sure...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for...
    3. Oliverg
      - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar. 2 hours later I was throwing up violently on my hands and knees over the loo. .horrendous stomach pains, My hair was wet fro...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      Yes, do take your B Complex with Benfotiamine or Thiamax. Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day. Taking them too close to bedtime can keep you too energetic to go to sleep. The Life Extension Benfotiamine with Thiamine is Benfotiamine and...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748
    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Glutened

      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.