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Sooo I Went To The Doc..

VydorScope

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VydorScope Proficient
VydorScope
Posted

And gave my two vilas of blood. So now Im going gluten-free agian, and wiating on the results. I hate on wiating. Did I mention that i hate waiting? Cause I realy do. Waiting stinks!!

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VydorScope Proficient
VydorScope
Posted
  • Author

Oh and this is intreating dunno if its related or not but since going on gluten my bp been steadly going up. This time it was 142/98.

VydorScope Proficient
VydorScope
Posted
  • Author

Ugh.. did I mention I hate waiting yet? This stinks. :( Prbly take a lot longer to get reustls cause of Turkeyday too.

CMCM Rising Star
CMCM
Posted
Oh and this is intreating dunno if its related or not but since going on gluten my bp been steadly going up. This time it was 142/98.

<{POST_SNAPBACK}>

That's interesting about the BP....mine is regularly in the range you mention, and for YEARS this has been an issue for me. I'm technically not overweight, in good health other than the celiac disease stuff, don't take medicines EXCEPT....I've tried various BP meds and nothing really helped. Right now I take diuretics for BP and that helps a bit and it usually keeps it around 120/85 or so, but the other day when I was having such a horrible reaction with dizziness etc. it was up to 148/98 or some such. So here's another area that may have a connection to celiac disease....although not always, obviously, because my Mom had LOW BP for years. Go figure!

jerseyangel Proficient
jerseyangel
Posted

My BP is also in the same range as yours. I take 2 different BP meds. now and they seem to be keeping it in the normal range. Its been high for about 8 years now. Does this have something to do with celiac disease or just a coincidence?

WGibs Apprentice
WGibs
Posted

If it makes you feel any better, I'm right here waiting with you. I had more blood taken on Friday, after getting a high AGA result. I still don't think that they are running all the tests people on here ask for, but I'm hoping it'll be enough. I started gluten-free on Saturday and immediately got relief from all my GI symptoms. I really hope I've found an answer! I can't believe how much better I feel...there has got to be a connection.

Part of me feels like I should still be eating gluten, since I may need more tests, but I just don't know if I can -- I feel so much better.

For some reason, though, I'm still expecting my blood work to come back negative.

VydorScope Proficient
VydorScope
Posted
  • Author
If it makes you feel any better, I'm right here waiting with you.  I had more blood taken on Friday, after getting a high AGA result.  I still don't think that they are running all the tests people on here ask for, but I'm hoping it'll be enough.  I started gluten-free on Saturday and immediately got relief from all my GI symptoms.  I really hope I've found an answer!  I can't believe how much better I feel...there has got to be a connection. 

Part of me feels like I should still be eating gluten, since I may need more tests, but I just don't know if I can -- I feel so much better.

For some reason, though, I'm still expecting my blood work to come back negative.

<{POST_SNAPBACK}>

They prbly WONT do all the test, most insurance will only cover one fo the tests, one that is considered for "screening" ttIGA or somthign like that.... I cant keep them straight.

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VydorScope Proficient
VydorScope
Posted
  • Author
My BP is also in the same range as yours.  I take 2 different BP meds. now and they seem to be keeping it in the normal range.  Its been high for about 8 years now.  Does this have something to do with celiac disease or just a coincidence?

<{POST_SNAPBACK}>

Dunno all I know is I used to be on BP meds, then went low carb, lost 50 pounds and stopped the meds. BP was a bit high, but in normal range till I went back on gluten... could be conicdence ... or not, duno.

mightymorg Rookie
mightymorg
Posted

I'm also waiting on my blood test results--I can definetly relate!!

All this BP talk...when I went in on Friday, my BP was 104/61...Wednesday, right before my colonoscopy my BP was 116/84. I thought it would be higher than that because I was scared outta my mind! I guess that's a little high for me now, though...it makes sense though if my BP is going down since I have lost weight from not feeling good.

jerseyangel Proficient
jerseyangel
Posted

Yes! A few years ago, pre gluten-free, I went on the Atkins diet with a friend. I lost about 30 lbs. and was on BP meds. at the time. I got incredibly dizzy, and my BP got really low. Was taken off the meds. and was fine for a short time, but then it crept back up. Now I take Norvasc and Lisonopril. Anyway, hope you get your results back quickly :)

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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