Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood sugar, hunger, celiac


dania

Recommended Posts

dania Explorer

So I have celiac disease and also Hashimoto's thyroiditis (but not on meds because it's apparently "not bad enough" yet...). When I was still on gluten, I had chronically high cortisol and also high blood sugar and insulin. And when these were high (cortisol, blood sugar, insulin) I had constant hunger. Like I was starving all the time, and eating didnt help and often actually made me hungrier. It was a pretty horrible time, and no one even thought to test my blood sugar for a long time because I was young (21/22), thin (bmi 19), and have ZERO family history of diabetes.

When I got off the gluten, cortisol came down over time, blood sugar improved some but still not ideal. (Getting glutened raises these again)

For further blood sugar support, I took chromium and cinnamon and cut down on carbs (I'm not super low carb though). A few months ago I started taking berberine and that's helped a lot.

My recent blood tests showed that my fasting blood sugar was 4.7 and my A1c was 5.6. My doctor was pleased.

However, what I don't get is that I still have hunger issues at times. I mean, it has improved a ton since the worst times. I do have meals where I feel satisfied. But other times I feel like I haven't eaten very much at all after a meal. I thought when I got my blood sugar into the normal range I wouldn't have to think about this anymore, i would just eat, feel satisfied, not start feeling hungry until at least a few hours later, etc.It doesn't even seem to correlate to whether the meal is higher carb or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

How much fat are you consuming?  Going lower carb and not adding in fats can make you hungry.  

So, do you know that Type 1 diabetes is strongly linked to celiac disease?    I would ask your doctor for a GAD antibodies test to rule out type 1.  

Open Original Shared Link

Open Original Shared Link

  I basically eat to my meter and that translates to a Low Carb High Fat diet.  Keeps my doctor happy with my lab results! 

dania Explorer

Thanks for your reply. I'm not sure how much fat I'm having, I will check. That could be contributing.

Yup I do know about the link between Type 1 and celiac. But when it was first discovered my blood sugar was high, my insulin was tested and it was high...actually it was double the normal amount. C-peptide was tested too and I don't remember exactly but I think it was slightly high? If I had Type 1 or LADA, wouldn't my insulin be lower?

It is strange though how I have none of the risk factors for insulin resistance and/or type 2... And in fact I had been on a super healthy whole food, "anti-candida" diet for several years before my blood sugar suddenly went really wacko!

  • 1 month later...
nutritionguy Rookie

Celiac disease can be associated with mineral deficiencies (e.g.: iron, copper, etc.), and there is some evidence to suggest that copper deficiency can be associated with glucose intolerance.  Ask your doctor to do a check of your serum copper level.  Also, if you have anemia, ask your doctor to check your ferritin level to assess your iron stores.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    MLB1970
    Newest Member
    MLB1970
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.