Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Stomach Pain


heather252

Recommended Posts

heather252 Newbie

Hi all-

  I am new on here and came across this site while on my google search for extreme stomach pain.  I guess it all started a few years ago with non specific complaints about random things.  After getting blown off from several Dr's I became incredibly frustrated.

  Fast forward to the beginning of January 2016 and I started having extreme bloating on a daily basis in my abdomen along with discomfort, pain and lower back pain.  I have also started having bleeding of my gums, dandruff more recent, but for years have had irritability, headaches, anxiety and hormone issues.  On a daily basis I am in a lot of pain.  It is hard for me to eat anything now because I feel so sick after I eat.  My stomach hurts from being hungry too.  I finally saw a new Dr. and he thought it could celiac.  I had the blood test a week ago and still have not gotten the results.

 I just want to cry and it is effecting my ability to work and be a mom.  Most nights I am laying on the couch from the pain of the extreme bloating.  This is my question....my stomach is really bloated (cannot fit into my clothes), hard, burning in my stomach, and sharp pains in my lower stomach (just above my pubic bone) and it feels like my stomach will rip open at any moment.  Has anyone else felt this?

 

Desperate-

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heather252 Newbie

I also forgot to mention that I also have constipation or diarrhea on a daily basis.  

SLLRunner Enthusiast

Hi Heather, 

I am having an endoscope on Friday, so I've not yet been diagnosed. But, yes, I have had many similar symptoms on and off for years, all of which worsened in the fall with a stressful medical situation with my guy.

I suggest you check back with your doctor as soon a possible to obtain your results. 

cyclinglady Grand Master

Welcome to the forum!  Many of us can relate to your symptoms.  But, the celiac blood panel, an endoscopy taking four to six biopsies can help diagnose celiac disease.  This is a good time to research celiac disease and the University of Chicago Celiac website is a great place to start.  They are one of the leading researchers in the U.S. and have a pretty good website.  

Open Original Shared Link

The important thing is to keep eating gluten until ALL testing is done even if you suspect celiac disease.  Let us know how it goes.  If positive, your first-degree relatives will need to be tested even if they are symptom free.  Many doctors often just order a TTG IgA and the IgA deficiency test as an initial screening (cheapest and most effective), but if my doctor had not ordered the entire panel, my diagnosis would have been missed.  So, if your TTG is negative, you should ask for the rest of the panel before ruling out celiac disease.  

Hang in there!  I know that you feel bad and  the responsibility of small children is difficult when you feel so bad.    Can you get someone to help you out?  Prepare a few meals for you?  I used to belong to a MOMS club and we always pitched in when a new baby arrived or when the family was ill.

Hugs!  Ask away, we are here to help each other!  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,714
    • Most Online (within 30 mins)
      7,748

    Ivys
    Newest Member
    Ivys
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.