Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food and Supplement Sensitivities


cashs mom

Recommended Posts

cashs mom Rookie

I'm certain that I have a gluten sensitivity.  I've been gluten free since May 2015.  For a  few months I was doing really well.  My sleep was great and all was good.  I had gone to a nutritionist for a number of years.  At first he really helped me but then something went off the rails and he was having me take a ton of supplements and I started having reactions to them and couldn't sleep at all.  I should have stopped going to him earlier but he had helped me so much for 7 or 8 years that I trusted him.  I'm at the point now that I can't take and OTC sleep stuff.  I can't take melatonin and am pretty much afraid to try too much stuff now.  I needed to do my yearly checkup and went to an internist who was recommended to me but I'm not sure he's really going to help me.  He seemed rather focussed on my hot flashes which I consider the least of my problems and the drug he gave me for them made me sleep even worse. 

I'm still gluten free and doing well with that, but I'm still having tons of sensitivities to food and supplements.  I'm just wondering if anyone else has experienced this and how they coped. 

 

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Cash's Mom,

It's possible the supplements he recommended are not gluten-free.  You may be able to find out by checking the maker's website, or emailing them.  The supplement industry in the USA is not well regulated, so it's a bit tricky to find good, safe products.  You could try searching the forum for brands people have found safe in the past.  But always check for yourself also.  Products can change ingredients sometimes.

cashs mom Rookie

Some of the ones he had me taking were not gluten free and I discontinued those last May.  I have been checking everything since then to make sure it is gluten free but still have sensitivities.   I had bloodwork done at my yearly exam, but it was basic and didn't show anything.  My chiropractor has been very good about working with me and helping me out.  I'm going to talk to him next week about doing more thyroid tests and cortisol tests.  I strongly suspect that cortisol is at the root of my sleep problems and may be causing other problems.

cyclinglady Grand Master

I am not a doctor, but I have had sleep issues and hot flashes (still do) which can be related to perimenopause and menopause (post) symptoms.  HRT was helpful for me.   The benefits outweighed any risks.   I also manage my Hashimoto's thyroiditis as well with hormone replacement.  Those hormone levels can be checked by your medical doctor.

It's been almost a year that you have been gluten free.  In theory you should be able to get the nutrients you need from a well-balanced diet.  I take no supplements now.  Tests showed no deficiencies after my first year of being gluten free.  

I would recommend only certified gluten free supplements if you and your medical doctor think that you have deficiencies (based on lab tests).    I think chiropractors should stick to what they were trained for.  My own medical doctor goes to one, so I am not against them, but he does not take medical advice when he goes in for an adjustment!  I would never go to one.  I have osteoporosis.  I shudder to think of getting a bone broken (as mine have crumbled from doing nothing in the past!)   That's just my opinion.     

cashs mom Rookie

I take only certified gluten free supplements.  And at 63, no doctor is going to prescribe HRT nor am I going to take it.  Hot flashes, to me, are a secondary problem and not worth the cancer risks that are present with HRT's.   

I have gone to a chiropractor for almost 20 years now.  He's also a certified nutritionist as are many chiropractors.   He has kept my back in line and helped me a lot.   I have never found a doctor that was much good at helping with nutrition.  They seem to mostly do tests and prescribe drugs and blurp platitudes like "eat well".

 

cyclinglady Grand Master

I am sorry that I was not able to help you.  I am definitely not a doctor.  I am 54 and was on and off HRT for over a decade, but autoimmune issues run in my family -- not cancer (though you never know).  

  I agree that medical doctors do not get much training when it comes to nutrition (though I think they are improving).    I laugh each time I see a poster with a huge helping of brown rice on the place in my GP's office.    I'm a diabetic and that rice (white or brown) would spike my blood sugar for sure!  

You went to your MD for an annual check-up.  Did he check your thyroid?  

I wish you well!  

 

GFinDC Veteran

Hi Cash's Mom,

It could be you are reacting to some4thing besides gluten.  The old standby treatment is an elimination diet.  They generally always work if it is a diet related issue.  Sometimes our bodies develop reactions to other foods.  Possibly related to the irritation of the gut lining over a long period of time.   Any of the top 8 food allergens are suspect, plus numerous others foods.  Most times a food intolerance can't be tested by doctors, and has to be identified by the elimination diet process.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,719
    • Most Online (within 30 mins)
      7,748

    storeopinionpc
    Newest Member
    storeopinionpc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.