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Results From My Endo. And Colonos.


pixiegirl

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pixiegirl Enthusiast

A week ago I had both an endoscopy and colonoscopy. Immediately after the procedure I was told I had 6 small ulcers in my stomach and diverticulosis. I was told to take zantac (in the past zantac has given me more relief then prolosic or other belly drugs) and was given an Rx that is refillable many times.

Last night at 10 pm (I was sleeping on the couch) my doctor called me with results from the biopsies. I'm going to recall their office this morning to be sure I have all the info correct but I have the gist of it and I'm looking for comments, advice, etc.

She said I have gastroenteritis, which I guess means my insides are inflamed. I do not have h. plyori so that didn't cause the ulcers. She said the lining of my stomach and intestine is filled with cells associated with allergies (not sure what those are... would that be like Ige antibodies?) and this in itself is unusual. She said that also the fact that Zantac seems to work better for me instead of prilosic which is considered the stronger medicine is interesting because Zantac is slightly different then the other drugs in that it blocks histamine which of course is associated with allergy.

So... first we are going to run some basic blood work, yet again, cbc, blah blah. Then I guess some tests for parasites, etc. Then she is talking about having food allergy tests done.

I don't know much about food allergies, my daughter is severely allergic to peanuts/nuts. But I know there are different sort of tests... skin prick, rast, which is best? Has anyone paid for the York allergy tests you can order on your own? How reliable are they?

Anyhow that's the scoop so far... I know a lot of you all deal with multiple food allergies but for me this is a first and I'm a bit depressed by the thought that I will have more stuff I can't eat....

Susan

PS - she also said my biopsy for celiac was perfect, no damage so at least I'm doing pretty well with gluten-free.


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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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