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Results From My Endo. And Colonos.


pixiegirl

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pixiegirl Enthusiast

A week ago I had both an endoscopy and colonoscopy. Immediately after the procedure I was told I had 6 small ulcers in my stomach and diverticulosis. I was told to take zantac (in the past zantac has given me more relief then prolosic or other belly drugs) and was given an Rx that is refillable many times.

Last night at 10 pm (I was sleeping on the couch) my doctor called me with results from the biopsies. I'm going to recall their office this morning to be sure I have all the info correct but I have the gist of it and I'm looking for comments, advice, etc.

She said I have gastroenteritis, which I guess means my insides are inflamed. I do not have h. plyori so that didn't cause the ulcers. She said the lining of my stomach and intestine is filled with cells associated with allergies (not sure what those are... would that be like Ige antibodies?) and this in itself is unusual. She said that also the fact that Zantac seems to work better for me instead of prilosic which is considered the stronger medicine is interesting because Zantac is slightly different then the other drugs in that it blocks histamine which of course is associated with allergy.

So... first we are going to run some basic blood work, yet again, cbc, blah blah. Then I guess some tests for parasites, etc. Then she is talking about having food allergy tests done.

I don't know much about food allergies, my daughter is severely allergic to peanuts/nuts. But I know there are different sort of tests... skin prick, rast, which is best? Has anyone paid for the York allergy tests you can order on your own? How reliable are they?

Anyhow that's the scoop so far... I know a lot of you all deal with multiple food allergies but for me this is a first and I'm a bit depressed by the thought that I will have more stuff I can't eat....

Susan

PS - she also said my biopsy for celiac was perfect, no damage so at least I'm doing pretty well with gluten-free.


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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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