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Results From My Endo. And Colonos.

pixiegirl

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pixiegirl Enthusiast
pixiegirl
Posted

A week ago I had both an endoscopy and colonoscopy. Immediately after the procedure I was told I had 6 small ulcers in my stomach and diverticulosis. I was told to take zantac (in the past zantac has given me more relief then prolosic or other belly drugs) and was given an Rx that is refillable many times.

Last night at 10 pm (I was sleeping on the couch) my doctor called me with results from the biopsies. I'm going to recall their office this morning to be sure I have all the info correct but I have the gist of it and I'm looking for comments, advice, etc.

She said I have gastroenteritis, which I guess means my insides are inflamed. I do not have h. plyori so that didn't cause the ulcers. She said the lining of my stomach and intestine is filled with cells associated with allergies (not sure what those are... would that be like Ige antibodies?) and this in itself is unusual. She said that also the fact that Zantac seems to work better for me instead of prilosic which is considered the stronger medicine is interesting because Zantac is slightly different then the other drugs in that it blocks histamine which of course is associated with allergy.

So... first we are going to run some basic blood work, yet again, cbc, blah blah. Then I guess some tests for parasites, etc. Then she is talking about having food allergy tests done.

I don't know much about food allergies, my daughter is severely allergic to peanuts/nuts. But I know there are different sort of tests... skin prick, rast, which is best? Has anyone paid for the York allergy tests you can order on your own? How reliable are they?

Anyhow that's the scoop so far... I know a lot of you all deal with multiple food allergies but for me this is a first and I'm a bit depressed by the thought that I will have more stuff I can't eat....

Susan

PS - she also said my biopsy for celiac was perfect, no damage so at least I'm doing pretty well with gluten-free.

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    • trents
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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