Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

People Do Care!

darlindeb25

By darlindeb25
in Coping with Celiac Disease

Recommended Posts

darlindeb25 Collaborator
darlindeb25
Posted

Last week, Kal, the doctor I work for, asked me what do I get to eat for Thanksgiving. He says, "Can you have pumpkin pie?" I told him that we can but that I have to make it myself, I cant have regular pie crust and that yes, we can have most turkeys, and yes, mashed potatoes and on and on. Well, come to find out, they buy all of us pies for Thanksgiving dinner and he was trying to figure out what to get for me. He hadnt been through this with me cause I started working there on Jan 3rd last year. Anyways, they bought me a turkey breast and right under the ingreds it states--gluten free. His wife Stacey was so proud of herself for finding it. There are good people out there, just give them the chance. This was so nice of them to do something extra for me. Deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

What a nice boss! Happy Thanksgiving :)

KaitiUSA Enthusiast
KaitiUSA
Posted

That was so nice of them....really shows that they care :)

Guest nini
Guest nini
Posted

awww that is so nice! So glad to see that people do really care!

tarnalberry Community Regular
tarnalberry
Posted

That's fabulous! Thanks to them! :-)

jenvan Collaborator
jenvan
Posted

that's wonderful!

Guest BERNESES
Guest BERNESES
Posted

That's so nice! I've had a few nice things happen to me lately. My mother-in-law, who has taken a serious interest in my diet, gave me the Gourmet magazine with the gluten free recipes in it along with all the necessary flours/ingredients for my birthday.

Then yesterday, a student in my freshman English class gave me a copy of the same recipes. She said she had seen them and thought of me.

Two weeks ago, i was talking to a professor I have had for a series of classes while all this has been going on and I told her that I thought my last memo was not that great because I had been glutened. She told me that she couldn't believe the progress I had made in a year. She said last year that I had to ask for an extension on every project and this year I had asked for none. Also, last year, I missed about 25% of the classes and this year, I had only missed one. I walked away amazed because much of the time I feel like I'm not making much progress. Sometimes you lose sight of the big picture in the day to day!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

Way to go ... Nice bosses! Progress is being made all over. :D

debmidge Rising Star
debmidge
Posted

That's a great thing for your boss & his wife to do. It really shows that they care and listen. The first year my husband was diagnosed with celiac disease (not me) my immediate team leader knew the diagnosis; it was October 2003 and that christmas she gave me a gift box containing (wheat) cookie mixes with cookie cutters. I appreciated the thought, but again, she sits right next to me and doesn't listen, unless the conversation is about how wonderful she is, etc.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

      Good, balanced analysis. I liked the comparison of the different platforms in this context. Fwiw, the same essay largely would work if you substitute any of many contemporary topics. As a moderator of this site, have you stepped back and considered how this site fits into this essay? Personally, I don't think I have enough visibility into the comments...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      4

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

      This is technical feedback for the moderators to consider: I don't know how much of the page layouts are automated, but on this particular story, immediately below the subheading "What “Gluten-Free Counterfeit” Really Means" is the image of a food product that is being promoted. For a moment I thought that the headline was referencing this product but the...
    3. Scott Adams
      - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also h...
    4. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten...
    5. suek54
      - suek54 replied to Kayla S's topic in Dermatitis Herpetiformis
      4

      Need advice for some relief!

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,658
    • Most Online (within 30 mins)
      7,748
    Pope rome
    Newest Member
    Pope rome
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Need advice for some relief!

      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.