Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder/Gallstones Questions


Galixie

Recommended Posts

Galixie Contributor

It turns out that I have a very large gallstone (think golf ball sized). I know it's been there for over a year because it was spotted on a CT scan that was done in January 2015 as well as one that was done two weeks ago. As far as I know, I've never had a gallbladder attack. (I'm guessing I would know if I had.)

One of my friends suggested that maybe I'd be able to reintroduce the gluten and dairy that I currently have to avoid if I had my gallbladder removed. I thought that seemed doubtful, but I decided to see what I could find online about that topic. I found one article about a woman who was able to go back to eating gluten after gallbladder removal, but by far the majority of the articles all seemed to mention that there is a link between celiac and gallbladder disease. I have, so far, not seen any of the research that backs that. I'm kind of terrible at online searches, so I am willing to assume there really have been studies. It brings up a few questions for me:

1) Some of the articles seemed to indicate that gallbladder disease without stones was more likely in a celiac patient. Does the association only apply to gallbladder disease without stones?

2) My sensitivity to gluten is odd because the only real symptom I've ever pinpointed was gluten ataxia, and gluten ataxia is generally more associated with celiac, which I have never tested positive for. Is the combination of gallstones and gluten ataxia enough to point to it being actual celiac rather than gluten sensitivity? (I realize that, for practical purposes, the answer to this question shouldn't matter. I can't help wondering though.)

3) Does anyone know if it's possible to get rid of a large stone without having to have the gallbladder removed? I'd kind of like to avoid surgery if possible.

4) If I do have to have the gallbladder removed, do I need to be concerned about not absorbing fat soluble vitamins? I've read things that say a person doesn't *need* a gallbladder, but the people I've talked to who've had it removed all seem to have issues from not having one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hi Galixie!

I had my gallbladder removed almost a decade ago (celiac disease dx in 2013).  I often wonder if my gallbladder could have been saved if I had known about celiac disease and had been healed by adhering to the gluten-free diet.  Anyway, I have not researched this much as it is "water under the bridge".  But I can tell you that my diet is heavy in fats (am a diabetic) and I do not have any trouble digesting them.  I have heard of others having issues but I have been lucky.  

My GB was diseased.  It had 0% functionality and was basically rotting away (infected).  I had surgery while on a business trip.  My recovery was fine, but not a quick as I thought it would be (or was told).  

It is always nice to keep all body parts, but in my case, I would have been dead (sepsis) without the surgery. It is a family curse and celiac disease does run on that same side of the family.  My dad is one of 7 and 6 has their GB's out.  No stones, but I did have an aunt who had stones post surgery in her bile duct.  

Finally, I can not eat gluten even without a gallbladder!  I doubt that the woman in the article actually had celiac disease in the first place.  Perhaps, by not eating gluten, she felt much better.   Just like I felt better not eating dairy and nuts.  Turns out those were intolerances as a result of untreated celiac disease.  I eat them now!  

 

Galixie Contributor

Thanks Cyclinglady.

I think you are right that the woman in the article probably didn't have celiac to begin with. Hope spring eternal that I'll someday stumble upon something that lets me go back to a semi-normal way of eating. (Life would be easier if I could have soy sauce.)

Gallstones seem to run in my family also. Oddly, though multiple people in my family have had them, only one great aunt has had to have hers removed. I'm scheduled for an ultrasound tomorrow, although I'm not too clear on what that would show as far as the health/functionality of my gallbladder. I guess I'll find out tomorrow.

Was your surgery laparoscopic? I fear that, if I have to have surgery, my stone is so large that laparoscopic won't be an option. :(

cyclinglady Grand Master

The ultrasound will catch the stones, but a HIDA scan (nuclear test) will determine functionality.  You might not need this if you are not having pain or digestion issues.  

I had uterine fibroid tumors (one huge strangulated one was removed during my C-section).   More grew back, but those never bothered me.  They are still there for all I know.  Maybe your stone just needs to be checked once-in-awhile or dealt with if it blocks the bike duct and causes pain.  

My surgery was laparoscopic.  The main cut was at my belly button.  No scar left.    I would think they could get yours out.  

  • 2 weeks later...
boron Rookie

Theoretically they can break your gallstones in a similar way as they break kidney stones (lithotripsy), but they won't do this in all hospitals. A single big stone may be much less problematic than small stones, which can leave the gallbladder and lodge in the bile duct, which can cause severe pain. Breaking a big gallstone can cause exactly this...

They could also open your gallbladder and take the stone out, but again, who will do this?

Gallbladder only stores the bile, it does not produce it. When they remove your gallbladder, the bile flows from the liver, where it is produced, directly into the intestine all the time. Some people experience diarrhea or bile reflux after this...You will absorb fat-soluble vitamins just fine, because the bile will always flow into your intestine.

Something about gallbladder pain:

Open Original Shared Link

Galixie Contributor

Thank you Boron. So far I haven't been given any recommendations on treatment, but I do think I prefer not to have surgery if I can avoid it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,549
    • Most Online (within 30 mins)
      7,748

    MKSolo
    Newest Member
    MKSolo
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.