Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder/Gallstones Questions


Galixie

Recommended Posts

Galixie Contributor

It turns out that I have a very large gallstone (think golf ball sized). I know it's been there for over a year because it was spotted on a CT scan that was done in January 2015 as well as one that was done two weeks ago. As far as I know, I've never had a gallbladder attack. (I'm guessing I would know if I had.)

One of my friends suggested that maybe I'd be able to reintroduce the gluten and dairy that I currently have to avoid if I had my gallbladder removed. I thought that seemed doubtful, but I decided to see what I could find online about that topic. I found one article about a woman who was able to go back to eating gluten after gallbladder removal, but by far the majority of the articles all seemed to mention that there is a link between celiac and gallbladder disease. I have, so far, not seen any of the research that backs that. I'm kind of terrible at online searches, so I am willing to assume there really have been studies. It brings up a few questions for me:

1) Some of the articles seemed to indicate that gallbladder disease without stones was more likely in a celiac patient. Does the association only apply to gallbladder disease without stones?

2) My sensitivity to gluten is odd because the only real symptom I've ever pinpointed was gluten ataxia, and gluten ataxia is generally more associated with celiac, which I have never tested positive for. Is the combination of gallstones and gluten ataxia enough to point to it being actual celiac rather than gluten sensitivity? (I realize that, for practical purposes, the answer to this question shouldn't matter. I can't help wondering though.)

3) Does anyone know if it's possible to get rid of a large stone without having to have the gallbladder removed? I'd kind of like to avoid surgery if possible.

4) If I do have to have the gallbladder removed, do I need to be concerned about not absorbing fat soluble vitamins? I've read things that say a person doesn't *need* a gallbladder, but the people I've talked to who've had it removed all seem to have issues from not having one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hi Galixie!

I had my gallbladder removed almost a decade ago (celiac disease dx in 2013).  I often wonder if my gallbladder could have been saved if I had known about celiac disease and had been healed by adhering to the gluten-free diet.  Anyway, I have not researched this much as it is "water under the bridge".  But I can tell you that my diet is heavy in fats (am a diabetic) and I do not have any trouble digesting them.  I have heard of others having issues but I have been lucky.  

My GB was diseased.  It had 0% functionality and was basically rotting away (infected).  I had surgery while on a business trip.  My recovery was fine, but not a quick as I thought it would be (or was told).  

It is always nice to keep all body parts, but in my case, I would have been dead (sepsis) without the surgery. It is a family curse and celiac disease does run on that same side of the family.  My dad is one of 7 and 6 has their GB's out.  No stones, but I did have an aunt who had stones post surgery in her bile duct.  

Finally, I can not eat gluten even without a gallbladder!  I doubt that the woman in the article actually had celiac disease in the first place.  Perhaps, by not eating gluten, she felt much better.   Just like I felt better not eating dairy and nuts.  Turns out those were intolerances as a result of untreated celiac disease.  I eat them now!  

 

Galixie Contributor

Thanks Cyclinglady.

I think you are right that the woman in the article probably didn't have celiac to begin with. Hope spring eternal that I'll someday stumble upon something that lets me go back to a semi-normal way of eating. (Life would be easier if I could have soy sauce.)

Gallstones seem to run in my family also. Oddly, though multiple people in my family have had them, only one great aunt has had to have hers removed. I'm scheduled for an ultrasound tomorrow, although I'm not too clear on what that would show as far as the health/functionality of my gallbladder. I guess I'll find out tomorrow.

Was your surgery laparoscopic? I fear that, if I have to have surgery, my stone is so large that laparoscopic won't be an option. :(

cyclinglady Grand Master

The ultrasound will catch the stones, but a HIDA scan (nuclear test) will determine functionality.  You might not need this if you are not having pain or digestion issues.  

I had uterine fibroid tumors (one huge strangulated one was removed during my C-section).   More grew back, but those never bothered me.  They are still there for all I know.  Maybe your stone just needs to be checked once-in-awhile or dealt with if it blocks the bike duct and causes pain.  

My surgery was laparoscopic.  The main cut was at my belly button.  No scar left.    I would think they could get yours out.  

  • 2 weeks later...
boron Rookie

Theoretically they can break your gallstones in a similar way as they break kidney stones (lithotripsy), but they won't do this in all hospitals. A single big stone may be much less problematic than small stones, which can leave the gallbladder and lodge in the bile duct, which can cause severe pain. Breaking a big gallstone can cause exactly this...

They could also open your gallbladder and take the stone out, but again, who will do this?

Gallbladder only stores the bile, it does not produce it. When they remove your gallbladder, the bile flows from the liver, where it is produced, directly into the intestine all the time. Some people experience diarrhea or bile reflux after this...You will absorb fat-soluble vitamins just fine, because the bile will always flow into your intestine.

Something about gallbladder pain:

Open Original Shared Link

Galixie Contributor

Thank you Boron. So far I haven't been given any recommendations on treatment, but I do think I prefer not to have surgery if I can avoid it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

    3. - Jmartes71 replied to annamarie6655's topic in Super Sensitive People
      4

      Airborne Gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,132
    • Most Online (within 30 mins)
      7,748

    Laura Lewis
    Newest Member
    Laura Lewis
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
    • Jmartes71
    • Wheatwacked
      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.