Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

pre diagnosed with celiac disease

brooklyn718

Recommended Posts

brooklyn718 Newbie
brooklyn718
Posted

Hey everyone so for the past 8 months to a year i have been losing weight and thinking nothing of it chalking it up to stress or whatever.until everyone i know told me i was losing weight so i started paying more attention, like getting stomach pains after i eat or using the bathroom more than usual. Knee joints pains among other symptoms. so i finally go to the doctor and with all the symptoms i been pre diagnosed with celiac. I get the results next week. Km not gonna lie i was devastated i went from being able to eat anything to having this problem. As a african american male i never really heard of this disease and it scared me.i just wanna know how to cope and if i ever will gain my weight back im 5'11 and a half and was weight roughly 190 to 200 now im down 167 .thank you for taking time out to read this .i appericate all the help. Sorry for the spelling errors lol.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome Brooklin!  

You are fortunate that your doctor was savvy enough to test you for celiac disease. if you do get negative results make sure you doctor ordered the entire panel.  The screening panel the TTG IGA and the IGA deficiency test (this one is just a control test to see if the TTG IGA test is valid) catches most celiacs but not all (like me! ). Keep eating gluten until all testing is complete.  

Here is more information from the University of Chicago.  Their celiac disease website is great!  

Open Original Shared Link

If  you do have celiac disease, you should be able to gain weight back after six months to a year depending on your intestinal damage, adherance to the gluten free diet, and how you heal in general (other illnesses, etc.)

brooklyn718 Newbie
brooklyn718
Posted
  • Author

Thank u @cyclinglady i really appreciate it i felt lost and confused when i first heard what the doctor told me . good to know there is a supportive community out there

Estes Contributor
Estes
Posted

I am newly diagnosed and finding great options for food.  Restaurants and social events will take some planning but at home eating may actually make you feel good since fruits, veggies, and meat are all gluten free.

Best of luck to you in your journey.  I believe you will find lots of support as you progress.

GAJulie Newbie
GAJulie
Posted

Hi, brooklyn718! If you get your diagnosis, it will change your life. You'll be overwhelmed at first, but after awhile you'll get the hang of it and you'll eat better, heal your body and feel better. I suggest you find a local support group or maybe even a couple online, like on Facebook. Check out the smart phone apps, like ipiit. You can enter what food ingredients you want to avoid and then scan the bar code of products. WARNING! There are lots of yummy gluten-free products out there, but many have higher amounts of sugar. Best to eat clean (meat, veggies, fruits) and stay away from processed foods. Don't be afraid to ask ANYTHING! We have all been there. You can do this! :D

 

zenjess1980 Contributor
zenjess1980
Posted
22 hours ago, brooklyn718 said:

Hey everyone so for the past 8 months to a year i have been losing weight and thinking nothing of it chalking it up to stress or whatever.until everyone i know told me i was losing weight so i started paying more attention, like getting stomach pains after i eat or using the bathroom more than usual. Knee joints pains among other symptoms. so i finally go to the doctor and with all the symptoms i been pre diagnosed with celiac. I get the results next week. Km not gonna lie i was devastated i went from being able to eat anything to having this problem. As a african american male i never really heard of this disease and it scared me.i just wanna know how to cope and if i ever will gain my weight back im 5'11 and a half and was weight roughly 190 to 200 now im down 167 .thank you for taking time out to read this .i appericate all the help. Sorry for the spelling errors lol.

Hello and welcome. Firstly, so glad your doctor was in the know about testing you for Celiac. That makes a big difference! It can definitely be overwhelming, but you'll get in a groove. There are a lot of foods that are naturally gluten free, and you'll learn the decent gluten free options for the occasional carbish desire [ie, gluten free breads and such.] I was originally diagnosed via celiac panel several years back and learned pretty quickly. I had a biopsy which came back inconclusive which i understand is common. I'm gluten free a week now and having an easier time. There is a lot of information out there and people who have been there too. Celiac and gluten sensitivity actually is not as uncommon as some would say. In my experience, especially the medical community. Best of luck with everything, and i hope you begin to heal soon :)

 -Jessica 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,725
    • Most Online (within 30 mins)
      7,748
    Mama51
    Newest Member
    Mama51
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free stool softener needed for after surgery

      By Scott Adams · Posted

      In general with pharmaceutical products cross-contamination is a much lower risk.
    • Scott Adams
      New to gluten-free

      By Scott Adams · Posted

      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      New to gluten-free

      By trents · Posted

      Just so you'll know, once you have been gluten-free for any length of time, it will invalidate testing for celiac disease.
    • QueenBorg
      New to gluten-free

      By QueenBorg · Posted

      Yes. I have not been tested for celiac. It took forever to get diagnosed with Fibromyalgia. lol. I have an appointment with my regular GP later this month and will convey my findings on improved symptoms and see what his thoughts are. Thank you. 
    • knitty kitty
      Refractory celiac disease

      By knitty kitty · Posted

      @Grahamsnaturalworld, It's never too late.   Have you been checked for Small Intestinal Bacterial Overgrowth?  SIBO can cause ongoing symptoms.  Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms.  The AIP diet can help with these by starving out SIBO bacteria and calming the immune system. Do you include dairy in your diet?  Casein in dairy can cause an autoimmune response the same as to gluten.  Have you been checked for lactose intolerance?  Some people lose the ability to produce the enzyme, lactase, needed to digest lactose, the sugar in dairy because the villi where the lactase enzyme is made are damaged.  AIP diet excludes dairy. Do you include grains in your diet?  Gluten free alternative grains and ancient grains can be inflammatory and cause symptoms.  Some people with Celiac react to corn and oats.  The AIP diet excludes all grains.  Lectins in grains can be inflammatory and cause symptoms. Do you eat nightshades (tomatoes, potatoes, peppers, and eggplant).  This family of plants produce glycoalkaloids, chemicals that promote Leaky Gut Syndrome.  The AIP diet excludes nightshades.   Are you on any medications?  Some medications can cause gastrointestinal symptoms.  Do you take any supplements?  Some herbal teas and supplements can cause digestive symptoms.  Medications for diabetes, antidepressants, and other pharmaceuticals can cause digestive symptoms as side effects. Have you been checked for nutritional deficiencies?  Malabsorption of essential nutrients can occur with continued symptoms.  Deficiencies in Niacin, Thiamine, and other B vitamins can cause digestive symptoms.  Gastrointestinal Beriberi and Pellagra are often overlooked by doctors because they are not familiar with nutritional deficiency disease symptoms.  Nutritional deficiencies can worsen over time as stores inside the body are depleted.   Have your doctors checked for all these?   I had a horrible time getting my symptoms under control.  I had to answer all these questions myself.  Yes, it's frustrating and exasperating because doctors don't have to live with these symptoms everyday. Interesting reading: AGA Clinical Practice Update on Management of Refractory Celiac Disease: Expert Review https://pubmed.ncbi.nlm.nih.gov/36137844/
×
×
  • Create New...