Strange stmptoms

[Nredekop]

My 9 year old daughter has had gluten intolerance for the past few years, but we have only figured it out recently. Starting in grade 1, she developed hives which were never diagnosed. Also since that time she has always spent large amounts of time on the toilet wth tummy aches and  vomiti g, dark circles under the eyes. Also not diagnosed. The symptoms started to change(?) and increase this year. Tingly toes and fingers, slow in growth, excruciating tummy aches, affecting her life, very tired after eating, headaches. So we removed gluten from her diet. And she gained weight and everything h started t look up. But now we have noticed she is sensitive to the smell of wheat ( in the bakery etc) and it makes her sick. She also has a sensitivity to anything modified. Excruciating pain. Some foods sat gluten free but still have modified ingredients. We have appt with her pediatrician and to have a biopsy. But does this sound like celiac? Thanks! 

 

[Darren]

So sorry to hear about this. How tough for a little one to have to go through this as well as you.  The good thing is that you are doing the right thing having by a biopsy done, but you also need the celiac blood panel done as both together are required for diagnosis. It could be several different causes but what you are describing may very well be celiac as it has many many symptoms. Make sure she isn't gluten free leading up to the biopsy, and at least have hope that once diagnosed a strict gluten-free diet will "cure" it. Best of luck and I hope your daughter gets better fast. Once you go strictly gluten free things improve fast so better days are ahead!

[cyclinglady]

Welcome to the forum.  Unfortunately in order to get a diagnosis, you have to be consuming gluten daily and depending on the tests, it can be 8 to 12 weeks (blood test) or 2 to 4 weeks (for endoscopy/biopsies).  For DH (celiac rash), it must be active and the dermatologist must be very celiac savvy.  Here's more information about testing:

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Does it sound like celiac disease?  Who knows?  There are over 200 or more symptoms related to celiac disease.  Please continue to research and advocate for your daughter!