New Celiac Mom

[Marcindy3]

My ten yr old daughter was dx approx 2 weeks ago w/ Celiac via blood test & biopsy. She wouldn't stop vomiting. She was in two different hospitals & it was a pretty trying time. Once we came home, we decided we'd all go gluten free. She did great for one week & then the vomiting began again. Back to the dr & they said no dairy but lactose free would be ok. Well apparently lactose free isn't ok because the vomiting has continued. This morning she vomited up even Popsicles. She's kept dry toast down for 2 hours now. Every minute I'm holding my breath praying she's not running to vomit. She can't keep any anti-nausea meds down. Any suggestions? I'm feeling very overwhelmed. 

[cyclinglady]

May I suggest not giving her toast?  I know that the BRAT diet was recommended in the past, but I am not so sure that it is a good thing.  Plain whole foods, nothing processed.  Like mashed sweet potatoes, veggies, stewed meats, broth, soups, fruit, things that are easy-to-digest (think mushy, think crockpot tender).    Bananas or even applesauce is good.  Just try to stay away for processed foods as she may be reacting to other ingredients.  For example, I still can not tolerate Xanthan gum which is added to many gluten-free breads and goodies.  Not saying your daughter has a problem with Xanthan gum, but it could be a contributing issue (and often only a temporary one) when you are newly diagnosed.   Make her some Popsicles from scratch just using juice.   

Have you read our Newbie 101 thread pinned under the "Coping" section?  You might find it useful.  Remember the learning curve to going gluten free and avoiding cross contamination is steep.  But you will all adjust!  We are a gluten free house.  I give gluten-containing foods (prepackaged) for my non-celiac daughter to take to school.  Otherwise, she is thriving on a healthy whole foods gluten-free diet (she's 15) while at home. 

Remember, too, celiac disease is not an allergy.  It is an autoimmune disorder triggered by gluten (the only AI that has a known trigger!).  Once a flare-up occurs, it can take days, weeks or months to calm down.  The good news is that kids heal fast!  

Keep her hydrated!  (But you already know that.....)

[StephanieL]

If she's been like this for weeks, I think you should take her back to the Dr/hospital.  There are IV anti-nausia drugs if it's that bad. 

[Marcindy3]

She ended up being admitted to the hospital. Vomiting has lessened but is still daily. We're praying for the day it's over. Thank you for your responses. It's a blessing knowing there are others feeling the same way, having the same emotions. 

[SLLRunner]

10 minutes ago, Marcindy3 said:

She ended up being admitted to the hospital. Vomiting has lessened but is still daily. We're praying for the day it's over. Thank you for your responses. It's a blessing knowing there are others feeling the same way, having the same emotions. 

My heart goes out to you and your family, Marcindy. I hope they find out what else is going on with daughter.