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Silent Celiac or Non-digestive symptoms

CiciStrong85

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CiciStrong85 Rookie
CiciStrong85
Posted

My celiac diagnosis started with me seeking medical attention for an ongoing migraine problem. This lead to MRI's that showed white spots on my brain which lead to blood work that showed a positive ANA (1:640) and a trip to the rheumatologist. The rheumatologist suggested the biopsy and a referral to a GI specialist after he felt confident that I didn't have lupus. The funny thing is that I don't have severe tummy troubles. I have some bloating occasionally and gas along with differing bowel patterns but that's about it. The most annoying and troublesome symptoms for me are migraines, fatigue and sometimes I get a little achy. My results for the prometheus test were high, blood anti-bodies were present and my biopsy revealed Grade B2 villi damage (the worst classification according to Corazza, Roberts, Ensari). Anyway I guess what I am wondering is how long after being "glutened" will I have a migraine, vitamin deficiency or other neurological symptom so that I will know that I am in trouble? I feel like if I had the tummy trouble to go with this I would know when I have eaten something that has been cross-contaminated. I just want to heal soon and not risk further intestinal damage or lymphoma.

Thanks for your reply!

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cyclinglady Grand Master
cyclinglady
Posted

Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!  

Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.  

Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  

Celiac Nutritionist Newbie
Celiac Nutritionist
Posted

O I feel your Migraine pain!  That was my one and only symptoms for YEARS and YEARS..... until one day finally it all turned into tummy problems and joint issues, (the list goes on and on...)  

Often you will notice your "main" symptom/s appear pretty soon after eating gluten (some its minutes, others its a day or so..). 

Following the proper diet strictly you should be able to drastically reduce those pains in head. 

Vitamin deficiency isn't likely to happen after one episode of being glutened - it is usually accumulative of your body not being able to absorb the nutrients (because of the damage done by gluten over time). 

Have you had your vitamin levels currently checked?  (Bringing certain vitamins / minerals back into balance can help alleviate the migraines faster!) 

 

 

CiciStrong85 Rookie
CiciStrong85
Posted
  • Author

Ladies thank you for your response! I am in a hurry to get well as I have 3 precious littles that have tons of energy to play, so every piece of info helps!

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