Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

MonaDan

Recommended Posts

MonaDan Rookie

Hi everyone,

 

I'm a recently diagnosed ceoliac. I'm 25 (female), and I've been free from gluten and dairy for 4 days and yesterday the pains from withdrawal hit me - aching joints, sharp pains, foggy mind, etc. Yet yesterday night my stomach felt good and unbloated for the first time in so long. Today, however, I've woken with a tender lower stomach and swollen legs that have increased as the day progressed - swollen legs having been a nightmare for me throughout this entire time. My hands are also prone to swelling and I get bad water retention. My upper stomach isn't TOO bad. I'm still feeling constipated, too, which isn't helping. How long do these withdrawals last? Does anyone know how to overcome them or at least ease them? Especially the leg swelling - I work on my feet all day so it's hard. Did anyone else suffer from the leg swelling?

I feel really lost and confused because no doctor has given me any guidance other than "don't eat gluten and dairy". 

Please help! I feel so out of control and low! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome to then forum, Mona!

No swelling for me but I can encourage you to read our Newbie 101 section under "Coping".  Learning how to be gluten free takes time.  Withdrawal affects some of us, but not all.  Remember this is an autoimmune disorder that is triggered by gluten (unlike MS or lupus where the trigger is unknown).  But when triggered the autoimmune response (aka "flare up") can last for days, weeks or months.  So, please give yourself time. 

Try to rest and put up your feet after work.  Hopefully, others here will have good tips for your specific complaint -- swelling.

Read through the forum.  Ask questions.  We are here to help.  Like you, my GI just gave me a list of gluten-free restaurants.  Really!  

Take care!  You will get better!  

  • 1 month later...
GFinDC Veteran

Hi Mona,

I had leg swelling or rather mostly ankle swelling for a long time.  It turned out to be a reaction to soy causing most of it for me.  Maybe with a side of high blood pressure too.  Welcome to the forum!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    2. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    4. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    5. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,185
    • Most Online (within 30 mins)
      7,748

    JudahS
    Newest Member
    JudahS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.