Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D supplement?

kam00096

Recommended Posts

kam00096 Contributor
kam00096
Posted

I had 2 positive blood tests for celiac around 2 months ago and after struggling to decide what to do next, due to very long waiting times for endoscopies, I decided just to go gluten-free. I ended up with some other non-related serious health problems so wasn't as strict about it as I would have liked to begin with but for the last 3 weeks or so have been better.

A couple of weeks ago I found out I have a pretty bad vitamin D deficiency and high parathyroid hormone (calcium fine) which the doctors think is because of the celiac. They've put me on a really high dose of vitamin D for 7 weeks then will retake bloods. Am just wondering if they should have waited until I'd been gluten-free for longer because surely at the moment I'm still not going to be absorbing it properly because everything's still damaged and not had time to heal? Or are medications absorbed differently? Seems like it might be a waste of time to take it at the moment?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

OK,   How low was your Vitamin D level??

 

kam00096 Contributor
kam00096
Posted
  • Author

Honestly I'm not sure (there's been a lot going on) but the doctor said it was 'in my boots' and low enough to be messing up my parathyroid. 

cyclinglady Grand Master
cyclinglady
Posted

Your small intestine is long!  You could have some severe damage in sections, but some nutrients may still get through.  I would take the Vitamin D.  When I was first diagnosed, I was very anemic.  My iron stores were practically nil.  I took iron supplements for a few months until I saw an upward trend.  That's what your doctor might be looking for.  A little goes a long way to helping you heal!  

Vitamin D is important.  I am no longer low in any nutrients based on lab results.  I do get my vitamins from natural foods now, but was happy to take them when I was ill.  Now I get most of my D from the sun because I live in sunny Southern California!  

captaincrab55 Collaborator
captaincrab55
Posted
 

Take the time to find out how low your Vitamin D was.    

 

Honestly I'm not sure (there's been a lot going on) but the doctor said it was 'in my boots' and low enough to be messing up my parathyroid. 

 

frieze Community Regular
frieze
Posted

hopefully you are not taking those little green footballs.....

GFinDC Veteran
GFinDC
Posted

There is some good info on the Vitamin D Council website.  They say you can't get enough vitamin D from foods (usually), so sunshine or supplements are helpful.

Open Original Shared Link

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748
    Victor bowden
    Newest Member
    Victor bowden
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.