Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One week on gluten free diet - will test be valid?


Monggee

Recommended Posts

Monggee Newbie

I've seen many posts stating that patients must eat gluten for two months after going gluten free in order to test positive for celiac disease-- but how long does it take to leave your system? I've been gluten free for a week and have seen serious improvements in fatigue, brain fog. I also have chronic joint pain and muscle weakness but it's hard to say if they have gotten much better. Never had terrible GI stuff but it's there. 

Anyone know if I have to go back to gluten before I am tested for celiac? If so, for how long?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
 

I've seen many posts stating that patients must eat gluten for two months after going gluten free in order to test positive for celiac disease-- but how long does it take to leave your system? I've been gluten free for a week and have seen serious improvements in fatigue, brain fog. I also have chronic joint pain and muscle weakness but it's hard to say if they have gotten much better. Never had terrible GI stuff but it's there. 

Anyone know if I have to go back to gluten before I am tested for celiac? If so, for how long?

Thanks!

Celiac Disease is an autoimmune response triggered by Gluten.  That means while gluten might be in your intestine and past in a few hours or days, the autoimmune response can last for weeks, months or longer!  Most folks here see some good improvement within six months of being gluten free.  It can take a year or longer to completely heal from all the damage created by celiac disease.  

To test for antibodies, you have to be eating gluten daily for 8 to 12 weeks prior to the blood draw.  Only four to six weeks prior to endoscopy/biopsy.  Going off gluten for as little as two weeks can ruin the test results.  

Research more at the University of Chicago's celiac website or within this forum.  

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,919
    • Most Online (within 30 mins)
      7,748

    Zemiloie
    Newest Member
    Zemiloie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Alibu, Migraines ran in my family as well.  Correcting my Thiamine insufficiency made a dramatic improvement in frequency and duration.   If you take Thiamine, B12 and B6 together, they have analgesic (pain relieving) properties.  Taking thiamine every day has cut down on their occurrence and severity for me.   Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide).  These forms get into the brain easily.  Magnesium Threonate gets into the brain easily, too, and helps thiamine work.  My gave a sigh of relief when I first took it, and no migraines. Yes, lowering histamine levels helps one feel better, too.  Vitamin C and B12 help reduce histamine.  A low histamine diet can help, too.  DAO supplements lower histamine, as well.  DOA is a digestive enzyme we can run short on.  
    • knitty kitty
      @ehb   Great you're going to start the AIP diet!  I know it's scary and stressful, but you'll soon start feeling better.  It's a challenge, but you can make it.  Do ask for a Erythrocyte Transketolace test which tests for Thiamine level.   I hope your Vitamin D level is between 70 and 100 nmol/L.  In this optimal range, Vitamin D can act like a hormone and regulate the immune system.  Vitamin D 3 is the form that the body can utilize well.  I was prescribed the synthetic firm D2 and my body didn't like it.  I know getting my Vitamin D up in the eighties made a world of difference to me.  My depression improved and I felt so much better at higher levels.   I prefer Life Extension brand for many vitamins.  The important thing is to read the label and watch out for fillers like rice flour.  This may help. Keep us posted on your progress!  
    • ehb
      @knitty kitty I have an appointment to go over the results tomorrow. Vitamin D was in the normal range. I’ve decided to start the gluten contamination elimination diet, while avoiding nightshades as recommended by the AIP. I am still hoping to get support from a nutritionist or advice from the doctor about supplements to make sure I’m getting enough nutrients. I’m still having a hard time sorting through all of the different brands and possible combinations
    • cristiana
      We've definitely all had such thoughts.  But as Scott says, it does get easier with time.  I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes.   I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day  was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?"  The list is long, and it did help - sort of!  
    • Scott Adams
      It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain
×
×
  • Create New...