Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick on vacation...so frustrated!

icelandgirl

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted

Yes, this will be a complaining thread.  I apologize in advance.

I'm on vacation and I've been glutened.  I have no idea by what, but I'm so frustrated that I just want to cry.  My husband works super hard for us.  I'm a stay at home mom of 3.  Every paycheck for the past year we've been putting some money aside to take everyone to the beach.  Starting on day 3 I have felt bad.  I've had the massive D, body aches, headache and utter exhaustion.  I've laid on my bed in tears over the cramping in my gut.  Today we had arranged to take a boat out and we couldn't cancel so my husband took the boys.  I had to stay right by the bathroom.

Ugh!!  Thanks for listening.  The rest of the trip I'm eating bananas, blueberries, chicken, potatoes and well cooked veggies.  Nothing else. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I'm so sorry! Great big huge hugs! {{{{{{{{{{{{{{{{{{{{{{ Icelandgirl }}}}}}}}}}}}}}}}}}}}}}}}}}

manasota Explorer
manasota
Posted

Jeez, i am sooooooooo sorry!  That really stinks!  So very disappointing!  You have every right to complain, cry, stomp your feet--whatever helps you to vent.   Great big hugs to you, Icelandgirl!!  Lots of hugs.

cyclinglady Grand Master
cyclinglady
Posted

Oh no!  I am so sorry that you are sick!  My last glutening was in  July.  A whole year has gone by and I confess, I have NEVER eaten out again!  I just order coffee.  The benefits of eating out (convenience) just don't outweigh the risks (being sick) for me. 

I hope you feel better soon!  

Hugs!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thank you all so much!  I don't eat out ever because I got sick last summer.  I do the same as you, cyclinglady, I order coffee.  I ate out once, at a gluten free bakery...but I was starting to have issues already...so something from the day before.  I've cooked everything myself...now I'm thinking I've gotten cc'd somehow in the kitchen of this condo.  My husband wants us to get an RV and do all traveling that way to keep me safe.  Sigh...one good thing...this glutening has shown me just how far I've come.  I used to feel like this every day...

cyclinglady Grand Master
cyclinglady
Posted

Well, I confess we do have an RV.  I grew up with one, but my hubby did not.  He never even camped.  

It is gluten free.  It allows us to travel and sight see without worry.  If we can find a safe restaurant, then we'll go for it.  If not, we'll skip it and I'll prepare a meal.  

We just spent the last three nights camped in our RV in the driveway while we got new sewage and fresh water lines.  We wanted to avoid all the dust when they were breaking walls and then when patching.  No glutening for us!  We did lots of prep work to keep the dust at bay.  It makes for a great guest room too.  

We are heading out of the country again this year.  Am worried about staying safe.  But we have done it in the past.  We just have to eat from a grocery store if we can't find a suitable restaurant.  So, often, it's just a cold meal.   My glutening last year occurred days before I left to visit my parents.  I suspect two products but I'll never know for sure.   Am packing a lot of Lara Bars this time for sure!  

We camp at the beach and love it.  We bring bikes, surf, and meet up with other families.  We travel and explore our state and we've gone across country a few times.  We have plans to travel more when our daughter is in college.  

Maybe, it is not a glutening.  Maybe it's a bug.  That's what I thought last summer, as I had lots of intestinal issues, abdominal pain, vomiting, etc.  I just had anemia when I was diagnosed, so I thought that I was mistaken.  Got home and tested a month after I became ill and my antibodies were sky high.  Yep, it was a glutening.  

The good news is that I have been well now for a year.  So, you'll feel better soon!  And no, it did not take a year to get well!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thanks cyclinglady...the RV sounds great and safe!  I'm fairly sure that this is gluten...but I'm just hoping that it isn't weeks to get better like last time.  I'm eating super simple...baked a piece of chicken and roasted potato and zucchini for dinner.  I'll keep doing that and drinking water.  It's the worst being on vacation and wishing you could go home!

Good luck on your international trip...so cool that you don't let this stuff stop you from traveling!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.