Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

5m old son needs gluten free dairy free CORN free nut free probiotic!!!

Mbrent8686

Recommended Posts

Mbrent8686 Newbie
Mbrent8686
Posted

My son was recently diagnosed with dairy gluten corn peanut tomato chicken beef and shellfish allergy and I'm struggling to nurse him. Corn is in everything. I desperately need help finding a probiotic to help us! And just reg vitamins too if anyone knows any! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
3 hours ago, Mbrent8686 said:

My son was recently diagnosed with dairy gluten corn peanut tomato chicken beef and shellfish allergy and I'm struggling to nurse him. Corn is in everything. I desperately need help finding a probiotic to help us! And just reg vitamins too if anyone knows any! 

How can you even tell a 5 month old is allergic to corn?  He doesn't eat it.  Do all those things cross over as a protein in breast milk?  You eliminated all those things, one by one, to find out what he was allergic to?

 

Mbrent8686 Newbie
Mbrent8686
Posted
  • Author

Yes, I am nursing him. Whatever I eat he eats as well. We have had him scratch tested at the allergist as well to confirm the allergies. All except gluten. I have figured that out by process of elimination. 

GFinDC Veteran
GFinDC
Posted

Sauerkarut is supposed to be a good pro-biotic.

emsimms Apprentice
emsimms
Posted

Hello there,

HMF Probiotics by GENESTRA has a huge selection free of all (or most) allergens! They also have a baby version.
I usually order online.
All the best, these must be stressful times for you!

StephanieL Enthusiast
StephanieL
Posted

Scratch testing on an infant that age is unusual. What reactions were you seeing that lead to testing?  Also know that allergy testing is only accurate about 50% of the time when there is a positive result.  

 

As for probiotics- you can check out Custom Probiotics. They were a miracle for our kiddo.  I know they are free of D,E, PN, TN and gluten for sure but you would have to check for corn which we did have to avoid for a while and know it's hard to do on top of all the others. 

 

Mbrent8686 Newbie
Mbrent8686
Posted
  • Author

Yes apparently this is an unusual thing that he has already had testing done. I swear every person I talk to that doesn't live in the northern Ohio area find this amazing! Our pediatric allergist is in the Cleveland clinic. We also has a 2 year old daughter that is anaphylactic to dairy peanuts and eggs and just allergic to beef and coconut. She was also tested for the first time at 5m. Both children had severe eczema. My daughters was the worst. To the point of open sores on her face. They were scared she had staph. My sons was getting to that point so clearly I knew it was a food allergy. He would scream and have mucusy stools as well. (I nurse him so whatever I eat he eats).  He also had blood work done which all came back negative. As for knowing the testing isnt 100% accurate, I'm aware thanks. His scratch test told us a different story. But my daughters test results were true at 5m and are still true to this day:) 

thank you for the info for the probiotics! Those seem to be the number one recommendation! I think we will go with them! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

I am in NE Ohio. I'm going to guess you see Dr. Melton.  Also, was it wheat that he was dx with? Because there isn't a real gluten allergy though you can be allergic to wheat. 

 

ravenwoodglass Mentor
ravenwoodglass
Posted

Have you considered switching him to an hypoallergenic formula since he is reacting to foods you are eating? Then you could start introducing low risk foods to him one at a time when he is ready for solids. For example when he is ready for cereal try cream of buckwheat rather than the more common baby cerealss and whole foods like mashed fruit rather than premade.  Introduce items one at a time for a week to watch for any reactions before adding anything else new.

 

Mbrent8686 Newbie
Mbrent8686
Posted
  • Author

Stephanie YESSS! we see doc Melton! Also no he wasn't allergic to wheat and I'm aware of that:) 

ravenwood I have thought about this we are actually seeing the doc today to figure out a game plan. We also tried switching to a hypo formula with my daughter but she still broke out from it. He highest allergy is dairy and there are still milk proteins in the formula. So we are anticipating same results.

StephanieL Enthusiast
StephanieL
Posted
4 hours ago, Mbrent8686 said:

Also no he wasn't allergic to wheat and I'm aware of that:) 

You mention gluten in your first post-I'm a little confused. 

A really good food log can often help pinpoint the offending foods when nursing (we did every ingredient, time, reaction time, BM info) to figure it out. I nursed 3 kids with a variety of intolerance/allgery issues over 7 years.  This is what helped find the problems for us. I was very committed to nursing so was willing to do what I could but did look at super specialized formulas if we needed to go there. They proteins are so broken down that they are tolerated by most kiddos but not all. It is very expensive as well (I'm sure you know all this).  I know the Neonate Splash my kid is on now at 9 is $6.50 per "juice box" and they want him on 3-5 day. 

 

Mbrent8686 Newbie
Mbrent8686
Posted
  • Author

I have been keeping a diary and that was what lead me to believe he also has a gluten problem. By process of elimination. I made bread with out all of his allergens and he still broke out and had stomach pains. So then I made gluten free bread and he seems to not have any reaction. Is this wrong? Should I have done it differently? Same with noodles we tried reg noodles and he had issues. So I got gluten free noodles and he didn't have any reaction to them. The allergist today (not Melton) ordered blood work but I'm just going to hold off until he is a year. I'm exhausted with all these tests. We tried alimentum with our daughter (similacs hypo formula) and she still broke out from it. So today the doc told us to try the nutrimagen. We may give it a whirl but I'm really only wanting to nurse. I was commited for my last daughter and I really don't want to give up on him:( 

StephanieL Enthusiast
StephanieL
Posted

You are doing the best you can Mama!  Please don't think I was trying to judge- I was just relaying our experience was all. Sounds like you've been through the steps.  

The gluten thing may be. I was just trying to clarify when you said he had a gluten allergy that you mentioned in the first post then said it wasn't a wheat allergy.  You can't be allergic to gluten but you can be allergic to the gluten containing grains so I was just trying to understand was all. Thats' why I asked.  

Allergy testing this young really is kind of hit an miss, even more so than when the kiddos get over and it's 50/50. I myself and many I know remove a lot of foods that don't need to be based on erroneous testing and I hate to see that since it can set up other issues. Again, that's why I was asking. If Melton tested for food you WEREN't seeing reactions to I would really seek another opinion because again, false positives are pretty common and definitely in the younger set (we were dx with all of the top 8 expect for wheat, citrus, corn and a few others when blanket tested.  In reality, there were only 4 we did have true allergies to plus Celiac disease so... )  

Allergens can take a while to clear out of breastmilk. Some up to 6 weeks.  Have you considered seeing Dr. Witt in Cleveland?  She specialized in babies and breastfeeding Mom's (we had a tongue tie issue with our 3rd along with other dietary and nursing issues- she's amazing!)  Just an option but I know you are already doing so much. Again, you know your family and what you choose if absolutely the best for them no matter what route you choose!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748
    Paul1567
    Newest Member
    Paul1567
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.