Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

cyclinglady

Recommended Posts

cyclinglady Grand Master

We survived!  Three weeks and we did not get glutened!  This is our second trip trip to Europe since my diagnosis!  

 I just want to point out some tips for safe travel.

Celiac Travel Cards -- download them to your phone or print off in any language for free (just Google).

Delta Airlines -- Even though we ordered gluten-free meals for our flight, once again, Delta departing from Atlanta, failed to provide gluten-free meals.  Fortunately, I packed a collapsible cooler that contained lunch meats, cheeses, gluten-free crackers, chips, cookies, nuts, veggies and fruit.  The good news is that Belgium (Delta/KLM) was on their toes and we did received gluten free meals on the way home!  Yeah! 

Italy -- This is the best European country to visit as a celiac.  All reviews were so true!  Senza Glutine!  Our Rome hotel was able to accommodate us, but I was nervous (not hubby), so I stuck to grocery store food items and in the morning ate boiled eggs, whole fruit and yogurt.  Hubby ate the gluten-free bread our hotel provided.  We found a 100% celiac restaurant in Livorno, Italy.  The owner has celiac disease and she has both a restaurant and bakery in town!  What luck!  Even luckier was after our Tour of the Vatican, hubby found a 100% gluten free restaurant within walking distance called Mama Frites.    (I missed out on this restaurant because I took my parents back to the hotel).   Hubby said that a kid was passing out pizza flyers.  He told the kid that we needed to be gluten-free and the kids said that the restaurant next door was owned by the same family and was dedicated 100%!   Hubby confirmed with other celiac customers!  gluten-free foods can be found in any Italian pharmacy -- not the best foods, but things like cookies, crackers and bread.  We ate lots of gelato -- celiac friendly gelato places, scooped from new containers using dedicated spoons!  I kid you not!  We are definitely going back to Italy for an extended stay!  

Celebrity Cruise Line -- Just like Royal Caribbean, Celebrity kept us safe.  I even toured the kitchen where special allergy/type diets are prepared.  I can not say enough about Celebrity!  They were terrific!  The only down fall is their attempt to make pizza next to the regular pizza!  I watched them and then declined the pizza. I did talk to the head chef for the buffet restaurant, so I am confident that they make improvements.   On Royal Caribbean, you get a frozen Udi's pizza but heated in foil, you know it is safe.  Best bet is to ALWAYS eat in the dining room.  Your head waiter will keep you safe -- not the cafe/buffet line!  

France -- We docked in near Nice.  No luck finding food in the small village (we were on a tour).  So, we stuck to the grocery store during our day trip.  

Spain -- We toured a few islands.  We packed a few Lara Bars and snacks.  No luck finding anything suitable in Palma Mallorca but we just ate when we got back to the ship.  We stayed a few days in Barcelona after the end of our cruise.   Found a gluten-free bakery and a nice burger joint that has a gluten free menu.  This restaurant was recommended online -- Open Original Shared Link.  Did I mention Costa Coffee from England?  Coffee and those prepackaged gluten-free brownies!  Yum!  

Poland -- I thought this was going to be tough because of language issues.    So, we used our celiac travel cards to decipher and get help from employees at even grocery stores.  The great news was that there was a Tesco in Krakow and a Polish restaurant that caters to celiac called Pod Baranam located in the city center.    We ate there for four days, pigging out on traditional Polish foods.  It was heaven.  We packed a picnic lunch when we ate with family at my Great Grandparent's farm.  We missed out on terrific food though.   My family went out of their way purchased some gluten-free prepackaged items for us, but they did not get the cross contamination issue concerning the cabbage rolls and sausages they prepared.  Same goes for the restaurant dinner we hosted.  We were out in the sticks and country folks haven't been exposed to information about celiac disease.  I am sure that will soon change!

Overall, the trip was a once-in-a-lifetime experience for my family.  How wonderful to be with three generations!   Best yet -- not to get sick! 

Yo soy celiaca!  Senza Glutine!  

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF-Cheetah Cub Contributor

We love the Pod Baranam in Krakow, Poland!!   This restaurant is how we survived Krakow for our 3 nights stay last summer.   We had dinner there every night.   At the end of the meal, I would purchase an extra gluten-free bread and butter to go.   Then next day, I would use their bread and butter to make breakfast and lunch sandwiches for my celiac daughter.   It was awesome.

icelandgirl Proficient

That's so wonderful cyclinglady!  I'm so happy for you...this makes me want to head to Europe!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,961
    • Most Online (within 30 mins)
      7,748

    Noa
    Newest Member
    Noa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.