Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice


Natalie1980

Recommended Posts

Natalie1980 Rookie

Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

There will be ups & downs for 6 months, maybe as much as a year. Sort of like being on a roller coaster ride. You can also get gluten withdrawal; just hang in there! I had swelling while eating gluten.

Natalie1980 Rookie

It's all very new and a little daunting I feel a difference already but yes I suppose after 35 years of eating gluten it's not going to disappear overnight Thankyou though x

GFinDC Veteran

Hi Natalie,

That sounds like how it often goes after beginning the gluten-free diet.  We'd like to think that it would be steady progress in the up direction but it seems like our healing goes back and forth a little.  The immune system reaction takes a while to settle down, weeks to months.  So it is hard for the gut to heal while that reaction is going on.

It's helpful to eat simple foods at first and avoid dairy.  Processed foods including baked goods are best left on the shelf.  Try to eat whole foods only including meats, vegetables and nuts.  Carbs and sugar are not helpful.

Things should get better after a month or two if your diet is clean of gluten and diary.  Then you can try adding things back in slowly one item a week.

Peppermint tea can help with bloating.  Probiotics may help too.

Welcome to the forum! :)

Natalie1980 Rookie

Thankyou so much that's really helpful I did wonder about dairy as I seem to bloat a little after a coffee with milk

squirmingitch Veteran

Read the Newbie 101 & follow the links contained within. This will give you a ton of good info. & teach you how to avoid cross contamination.

Yep, you're exactly right.... you didn't get sick overnight & you're not going to heal overnight.

We're here for you though through the good times & the bad & for pity parties too. Questions? Just ask!:)

Natalie1980 Rookie

Thankyou it's nice to have a go to of people tjat understand do u think dairy and carbs are best eliminated a little at first ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

I think it won't hurt a bit to eliminate dairy for a while. As far as carbs, that's kind of an individual thing. Some do better without them or with limiting them and some, like myself, have to have carbs. I am skinny, have a high metabolism & would dry up & blow away without my carbs & I eat lots of carbs. They don't bother me.

Keeping a food & symptom log can be a great help especially in the beginning.

GFinDC Veteran
28 minutes ago, Natalie1980! said:

Thank-you it's nice to have a go to of people that understand do u think dairy and carbs are best eliminated a little at first ?

Hi Natalie,

The dairy should be eliminated completely for a few weeks at least.  It can be hard to tell what food is causing symptoms at first.  Dairy is a known problem for many people, even those who don't have celiac disease.  Carbs are bad if you are having digestive upset and bloating.  The carbs feed the bacteria that make gas in your gut and that can cause symptoms.  Everybody is an individual though so you may not have bad symptoms.  But when you are trying to heal fast and aren't sure what's causing the problems, eliminating some common problem foods makes sense.  There is no reason to reduce the dairy and carbs slowly though.  They can be cut out completely right away.  You should be able to tell if it's helping within a week or so.  Eliminating them is no problem as long as you don't blow away! :)

 

 

Natalie1980 Rookie
2 hours ago, squirmingitch said:

Read the Newbie 101 & follow the links contained within. This will give you a ton of good info. & teach you how to avoid cross contamination.

Yep, you're exactly right.... you didn't get sick overnight & you're not going to heal overnight.

We're here for you though through the good times & the bad & for pity parties too. Questions? Just ask!:)    Thankyou do yp

Wow I'm gonna be a skinny Minnie in no time rather than a bloated and confused Thankyou I'll try look at these images 4 days gluten free

image.png

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,117
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.