Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Advice


Natalie1980

Recommended Posts

Natalie1980 Rookie

Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

There will be ups & downs for 6 months, maybe as much as a year. Sort of like being on a roller coaster ride. You can also get gluten withdrawal; just hang in there! I had swelling while eating gluten.

Natalie1980 Rookie

It's all very new and a little daunting I feel a difference already but yes I suppose after 35 years of eating gluten it's not going to disappear overnight Thankyou though x

GFinDC Veteran

Hi Natalie,

That sounds like how it often goes after beginning the gluten-free diet.  We'd like to think that it would be steady progress in the up direction but it seems like our healing goes back and forth a little.  The immune system reaction takes a while to settle down, weeks to months.  So it is hard for the gut to heal while that reaction is going on.

It's helpful to eat simple foods at first and avoid dairy.  Processed foods including baked goods are best left on the shelf.  Try to eat whole foods only including meats, vegetables and nuts.  Carbs and sugar are not helpful.

Things should get better after a month or two if your diet is clean of gluten and diary.  Then you can try adding things back in slowly one item a week.

Peppermint tea can help with bloating.  Probiotics may help too.

Welcome to the forum! :)

Natalie1980 Rookie

Thankyou so much that's really helpful I did wonder about dairy as I seem to bloat a little after a coffee with milk

squirmingitch Veteran

Read the Newbie 101 & follow the links contained within. This will give you a ton of good info. & teach you how to avoid cross contamination.

Yep, you're exactly right.... you didn't get sick overnight & you're not going to heal overnight.

We're here for you though through the good times & the bad & for pity parties too. Questions? Just ask!:)

Natalie1980 Rookie

Thankyou it's nice to have a go to of people tjat understand do u think dairy and carbs are best eliminated a little at first ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

I think it won't hurt a bit to eliminate dairy for a while. As far as carbs, that's kind of an individual thing. Some do better without them or with limiting them and some, like myself, have to have carbs. I am skinny, have a high metabolism & would dry up & blow away without my carbs & I eat lots of carbs. They don't bother me.

Keeping a food & symptom log can be a great help especially in the beginning.

GFinDC Veteran
28 minutes ago, Natalie1980! said:

Thank-you it's nice to have a go to of people that understand do u think dairy and carbs are best eliminated a little at first ?

Hi Natalie,

The dairy should be eliminated completely for a few weeks at least.  It can be hard to tell what food is causing symptoms at first.  Dairy is a known problem for many people, even those who don't have celiac disease.  Carbs are bad if you are having digestive upset and bloating.  The carbs feed the bacteria that make gas in your gut and that can cause symptoms.  Everybody is an individual though so you may not have bad symptoms.  But when you are trying to heal fast and aren't sure what's causing the problems, eliminating some common problem foods makes sense.  There is no reason to reduce the dairy and carbs slowly though.  They can be cut out completely right away.  You should be able to tell if it's helping within a week or so.  Eliminating them is no problem as long as you don't blow away! :)

 

 

Natalie1980 Rookie
2 hours ago, squirmingitch said:

Read the Newbie 101 & follow the links contained within. This will give you a ton of good info. & teach you how to avoid cross contamination.

Yep, you're exactly right.... you didn't get sick overnight & you're not going to heal overnight.

We're here for you though through the good times & the bad & for pity parties too. Questions? Just ask!:)    Thankyou do yp

Wow I'm gonna be a skinny Minnie in no time rather than a bloated and confused Thankyou I'll try look at these images 4 days gluten free

image.png

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...