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Celiac Test Results?


zip2play

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zip2play Apprentice

I am no doctor and was unable to speak to mine this morning. But I am seeing my GI specialists today, so I wanted the results in my hand to take to him. Well best I can read there were 3 areas where results are indicated. (now that doesn't mean there aren't more, I just don't see it! )

TTG Antibody IGA <3 -- which is in range

Gliadin Antibody (IGA) 14H -- out of range (equivocal 11-17)

IGA, Serum 154 -- which is in range

Anyone know what this means? I see there is something abnormal, but does this indicate Celiac?

Any help is greatly appreciated!

Monica


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zip2play Apprentice

I saw my GI Dr yesterday! At first he blew over my Celiac results, but then noticed the equivocal result. I am scheduled for a biopsy on 12/13! IS this really necessary? Is my bloodtest results borderline enough to justify one?

RiceGuy Collaborator

Lots of people get mostly negative results from the tests, but the diet speaks for itself. The thing is, unless you are making yourself sick a lot from gluten, the tests can show a false negative. Even with glutenizing yourself it still may not show, and it also depends on the kind of tests too.

I never bothered to get any tests, and I don't plan to. My substantial improvement from going gluten-free is all the proof I need. But of course, that's my choice. If you want a doctor to give you some proof, that's up to you.

Keep in mind that gluten intolerance is not the same as Celiac disease. The disease is the result of the intolerance if you keep eating gluten. So, if you catch it before damage is done, tests which look for that damage will be negative. In that case, consider yourself lucky.

zip2play Apprentice

SO do my blood results indicate Celiac?

Rachel--24 Collaborator

I think its good that your doctor is sending you for a biopsy. You do have something going on. It could be Celiac....remember, it could still be Celiac even if the biopsy is negative. I think I remember reading that it takes alot of damage for the tTG to be positive in the bloodwork. That part of the test may have been negative because there isnt alot of damage at this time. You never know though. Some people have all negative bloodwork and then a positive biopsy. Are you still on gluten for the biopsy? Dont go gluten-free till after the test. :)

zip2play Apprentice

I am still on gluten! I plan to stay that way till the biopsy. But my husband and I decided that after the biopsy, we will go gluten free...no matter the results. We may wait till after the New Year, but we then plan to have myself and hubby and kids go gluten free at home!

Thanks for the info!

Rachel--24 Collaborator
I am still on gluten! I plan to stay that way till the biopsy. But my husband and I decided that after the biopsy, we will go gluten free...no matter the results. We may wait till after the New Year, but we then plan to have myself and hubby and kids go gluten free at home!

Thanks for the info!

Good luck to you! Glad your hubby is supporting you. :)


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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