Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis biopsy ,update


manaja

Recommended Posts

manaja Apprentice

Hi everybody, well , I received a text from the doctor late yesterday evening to go down this morning at 08.30 , so I did, he then gave me a report saying my diagnosis is as follows . "Patchy inflammation of the duodenal mucosa, increased intraepithelial lymphocytes , crypt hyperplasia with villous atrophy,"  so it seems he says , "You DO have Celiac disease !"  I also need a follow up at the GI clinic in 8 weeks time, he said a note at the bottom says  that " the patient should now follow a strict gluten free diet" . I thought my biopsy was negative , seems they hadn't received the note from the consultant.  Well , at least now I know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Well, it can only get better now!  I am sorry that you have celiac disease, but it is nice that we can essentially heal ourselves with a good gluten-free diet.   Stick with whole foods and avoid processed until you feel better!

Hugs!  ?

Fundog Enthusiast

Yes, now you know!  (Hooray for having answers?)  The good news is, you can actually do something about it. :)

FG006 Rookie

What a story! But now you know it, you can start with a glutenfree diet to heal yourself, hope you will recover soon!

manaja Apprentice

Thank you for the replies , Its a big help to know there are lots of people in the same boat, willing to offer advice, my own brother is a Celiac and has spoken to me, its all very daunting what to eat and what not too eat and beer ... I like it a lot , but my brother drinks Corona and says its fine as are some Japanese lagers , many thanks again.

squirmingitch Veteran

I sure am glad that got settled! All first degree relatives should be tested every 2 years in the absence of symptoms & immediately if symptoms present.

This should help you a LOT. Read this thread & follow the links contained within:

As to the Corona, I wouldn't be caught dead drinking it but it's your gut & your health. You might wish to read this:

Open Original Shared Link

manaja Apprentice

Thank you again , I forwarded the link onto my brother who is a fan of "Corona " and he was astounded by the review, 200ppm , and its classed as safe ?!  Well I don't think he'l be drinking it anymore ,like he says , he's spent the last  year on a totally gluten free diet even buying his own pans and utensils thinking a couple of Corona's is fine , not knowing it was all for nothing !  both very good articles, I've a long way to go but many  thanks again .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You're welcome but in all fairness I must point out that it tests under 20ppm. The way the type is written is mistakable for extra zeros. I even had to do a double take, triple take on it. However, for every one you drink you're adding gluten.

For what it's worth, I wouldn't be caught dead drinking anything but a true gluten free beer. Well, if I did then I am sure I would eventually be found dead. To me it's just not worth it. You may not feel a reaction but that does not mean damage is not being done. Eventually it will catch up to you. There are some really good gluten-free beers out there and admittedly there are some that taste like crap. You just have to try them until you find one or 2 that YOU like and you can find that. There are more being made all the time. Or you can become a wine lover.

Personally I don't care for beer -- gluten free or otherwise. I'm quite sure that's because pre dx, beer always made me sick as a dog. I learned that even as a teen experimenting as teens do, with alcohol. Now I know why beer always tore my gut up something awful. My aversion to it still lingers. I'll take vodka. Yum. With apricot nectar, cranberry juice, Rose's Lime, black russian, white russian, bloody mary, orange juice, pineapple juice and a hundred other ways. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac disease symptoms

    2. - Churro posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac disease symptoms

    3. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      4

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,051
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Churro! Several things need to be said here: 1. Your physician neglected to order a "total IGA" test to check for IGA deficiency. If a person is IGA deficient, the results of other IGA antibody tests specific to celiac disease will not be valid. A total IGA test should always be ordered when checking for celiac disease with blood IGA antibody test. You should ask your physician to order a total IGA test. 2. Iron deficiency anemia can also give distorted IGA celiac disease blood antibody tests. 3. If you were already on a gluten-free diet or had been restricting gluten consumption for weeks/months prior to the antibody testing blood draw, then the test results would not be valid. Accurate celiac disease blood antibody testing requires you to have been consuming significant amounts of gluten for a significant time period leading up to the blood draw. It takes time for the antibody levels in the blood to build up to detectable levels. 4. Your low iron levels and other symptoms could be due to celiac disease but could also be caused by lots of other medical issues.
    • Churro
      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease? 
    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.