Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis biopsy ,update


manaja

Recommended Posts

manaja Apprentice

Hi everybody, well , I received a text from the doctor late yesterday evening to go down this morning at 08.30 , so I did, he then gave me a report saying my diagnosis is as follows . "Patchy inflammation of the duodenal mucosa, increased intraepithelial lymphocytes , crypt hyperplasia with villous atrophy,"  so it seems he says , "You DO have Celiac disease !"  I also need a follow up at the GI clinic in 8 weeks time, he said a note at the bottom says  that " the patient should now follow a strict gluten free diet" . I thought my biopsy was negative , seems they hadn't received the note from the consultant.  Well , at least now I know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Well, it can only get better now!  I am sorry that you have celiac disease, but it is nice that we can essentially heal ourselves with a good gluten-free diet.   Stick with whole foods and avoid processed until you feel better!

Hugs!  ?

Fundog Enthusiast

Yes, now you know!  (Hooray for having answers?)  The good news is, you can actually do something about it. :)

FG006 Rookie

What a story! But now you know it, you can start with a glutenfree diet to heal yourself, hope you will recover soon!

manaja Apprentice

Thank you for the replies , Its a big help to know there are lots of people in the same boat, willing to offer advice, my own brother is a Celiac and has spoken to me, its all very daunting what to eat and what not too eat and beer ... I like it a lot , but my brother drinks Corona and says its fine as are some Japanese lagers , many thanks again.

squirmingitch Veteran

I sure am glad that got settled! All first degree relatives should be tested every 2 years in the absence of symptoms & immediately if symptoms present.

This should help you a LOT. Read this thread & follow the links contained within:

As to the Corona, I wouldn't be caught dead drinking it but it's your gut & your health. You might wish to read this:

Open Original Shared Link

manaja Apprentice

Thank you again , I forwarded the link onto my brother who is a fan of "Corona " and he was astounded by the review, 200ppm , and its classed as safe ?!  Well I don't think he'l be drinking it anymore ,like he says , he's spent the last  year on a totally gluten free diet even buying his own pans and utensils thinking a couple of Corona's is fine , not knowing it was all for nothing !  both very good articles, I've a long way to go but many  thanks again .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You're welcome but in all fairness I must point out that it tests under 20ppm. The way the type is written is mistakable for extra zeros. I even had to do a double take, triple take on it. However, for every one you drink you're adding gluten.

For what it's worth, I wouldn't be caught dead drinking anything but a true gluten free beer. Well, if I did then I am sure I would eventually be found dead. To me it's just not worth it. You may not feel a reaction but that does not mean damage is not being done. Eventually it will catch up to you. There are some really good gluten-free beers out there and admittedly there are some that taste like crap. You just have to try them until you find one or 2 that YOU like and you can find that. There are more being made all the time. Or you can become a wine lover.

Personally I don't care for beer -- gluten free or otherwise. I'm quite sure that's because pre dx, beer always made me sick as a dog. I learned that even as a teen experimenting as teens do, with alcohol. Now I know why beer always tore my gut up something awful. My aversion to it still lingers. I'll take vodka. Yum. With apricot nectar, cranberry juice, Rose's Lime, black russian, white russian, bloody mary, orange juice, pineapple juice and a hundred other ways. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    2. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      40

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Russ H commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,381
    • Most Online (within 30 mins)
      7,748

    Becky Coleman
    Newest Member
    Becky Coleman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.