Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis biopsy ,update


manaja

Recommended Posts

manaja Apprentice

Hi everybody, well , I received a text from the doctor late yesterday evening to go down this morning at 08.30 , so I did, he then gave me a report saying my diagnosis is as follows . "Patchy inflammation of the duodenal mucosa, increased intraepithelial lymphocytes , crypt hyperplasia with villous atrophy,"  so it seems he says , "You DO have Celiac disease !"  I also need a follow up at the GI clinic in 8 weeks time, he said a note at the bottom says  that " the patient should now follow a strict gluten free diet" . I thought my biopsy was negative , seems they hadn't received the note from the consultant.  Well , at least now I know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Well, it can only get better now!  I am sorry that you have celiac disease, but it is nice that we can essentially heal ourselves with a good gluten-free diet.   Stick with whole foods and avoid processed until you feel better!

Hugs!  ?

Fundog Enthusiast

Yes, now you know!  (Hooray for having answers?)  The good news is, you can actually do something about it. :)

FG006 Rookie

What a story! But now you know it, you can start with a glutenfree diet to heal yourself, hope you will recover soon!

manaja Apprentice

Thank you for the replies , Its a big help to know there are lots of people in the same boat, willing to offer advice, my own brother is a Celiac and has spoken to me, its all very daunting what to eat and what not too eat and beer ... I like it a lot , but my brother drinks Corona and says its fine as are some Japanese lagers , many thanks again.

squirmingitch Veteran

I sure am glad that got settled! All first degree relatives should be tested every 2 years in the absence of symptoms & immediately if symptoms present.

This should help you a LOT. Read this thread & follow the links contained within:

As to the Corona, I wouldn't be caught dead drinking it but it's your gut & your health. You might wish to read this:

Open Original Shared Link

manaja Apprentice

Thank you again , I forwarded the link onto my brother who is a fan of "Corona " and he was astounded by the review, 200ppm , and its classed as safe ?!  Well I don't think he'l be drinking it anymore ,like he says , he's spent the last  year on a totally gluten free diet even buying his own pans and utensils thinking a couple of Corona's is fine , not knowing it was all for nothing !  both very good articles, I've a long way to go but many  thanks again .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You're welcome but in all fairness I must point out that it tests under 20ppm. The way the type is written is mistakable for extra zeros. I even had to do a double take, triple take on it. However, for every one you drink you're adding gluten.

For what it's worth, I wouldn't be caught dead drinking anything but a true gluten free beer. Well, if I did then I am sure I would eventually be found dead. To me it's just not worth it. You may not feel a reaction but that does not mean damage is not being done. Eventually it will catch up to you. There are some really good gluten-free beers out there and admittedly there are some that taste like crap. You just have to try them until you find one or 2 that YOU like and you can find that. There are more being made all the time. Or you can become a wine lover.

Personally I don't care for beer -- gluten free or otherwise. I'm quite sure that's because pre dx, beer always made me sick as a dog. I learned that even as a teen experimenting as teens do, with alcohol. Now I know why beer always tore my gut up something awful. My aversion to it still lingers. I'll take vodka. Yum. With apricot nectar, cranberry juice, Rose's Lime, black russian, white russian, bloody mary, orange juice, pineapple juice and a hundred other ways. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.