Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis biopsy ,update


manaja

Recommended Posts

manaja Apprentice

Hi everybody, well , I received a text from the doctor late yesterday evening to go down this morning at 08.30 , so I did, he then gave me a report saying my diagnosis is as follows . "Patchy inflammation of the duodenal mucosa, increased intraepithelial lymphocytes , crypt hyperplasia with villous atrophy,"  so it seems he says , "You DO have Celiac disease !"  I also need a follow up at the GI clinic in 8 weeks time, he said a note at the bottom says  that " the patient should now follow a strict gluten free diet" . I thought my biopsy was negative , seems they hadn't received the note from the consultant.  Well , at least now I know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Well, it can only get better now!  I am sorry that you have celiac disease, but it is nice that we can essentially heal ourselves with a good gluten-free diet.   Stick with whole foods and avoid processed until you feel better!

Hugs!  ?

Fundog Enthusiast

Yes, now you know!  (Hooray for having answers?)  The good news is, you can actually do something about it. :)

FG006 Rookie

What a story! But now you know it, you can start with a glutenfree diet to heal yourself, hope you will recover soon!

manaja Apprentice

Thank you for the replies , Its a big help to know there are lots of people in the same boat, willing to offer advice, my own brother is a Celiac and has spoken to me, its all very daunting what to eat and what not too eat and beer ... I like it a lot , but my brother drinks Corona and says its fine as are some Japanese lagers , many thanks again.

squirmingitch Veteran

I sure am glad that got settled! All first degree relatives should be tested every 2 years in the absence of symptoms & immediately if symptoms present.

This should help you a LOT. Read this thread & follow the links contained within:

As to the Corona, I wouldn't be caught dead drinking it but it's your gut & your health. You might wish to read this:

Open Original Shared Link

manaja Apprentice

Thank you again , I forwarded the link onto my brother who is a fan of "Corona " and he was astounded by the review, 200ppm , and its classed as safe ?!  Well I don't think he'l be drinking it anymore ,like he says , he's spent the last  year on a totally gluten free diet even buying his own pans and utensils thinking a couple of Corona's is fine , not knowing it was all for nothing !  both very good articles, I've a long way to go but many  thanks again .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You're welcome but in all fairness I must point out that it tests under 20ppm. The way the type is written is mistakable for extra zeros. I even had to do a double take, triple take on it. However, for every one you drink you're adding gluten.

For what it's worth, I wouldn't be caught dead drinking anything but a true gluten free beer. Well, if I did then I am sure I would eventually be found dead. To me it's just not worth it. You may not feel a reaction but that does not mean damage is not being done. Eventually it will catch up to you. There are some really good gluten-free beers out there and admittedly there are some that taste like crap. You just have to try them until you find one or 2 that YOU like and you can find that. There are more being made all the time. Or you can become a wine lover.

Personally I don't care for beer -- gluten free or otherwise. I'm quite sure that's because pre dx, beer always made me sick as a dog. I learned that even as a teen experimenting as teens do, with alcohol. Now I know why beer always tore my gut up something awful. My aversion to it still lingers. I'll take vodka. Yum. With apricot nectar, cranberry juice, Rose's Lime, black russian, white russian, bloody mary, orange juice, pineapple juice and a hundred other ways. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,833
    • Most Online (within 30 mins)
      7,748

    Grandma13
    Newest Member
    Grandma13
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.