Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

how quickly do nutrients drop


ironictruth

Recommended Posts

ironictruth Proficient

Has anyone had labs done after being glutened? 

I had weak positive bloodwork DGP IGA last year and a negative biopsy after a 6 week gluten challenge. Had been gluten-free for 8 mos. I have been gluten-free again since March with some cc. Had 3 episodes of bad D since July. One tanked my potassium, magnesium and alkaline phosphatase. They all returned to normal. This last one landed me in the hospital with metabolic acidosis last week. My RBC count going in was normal and dropped a tad below normal within 3 days along with hemoglobin. My protein went from 7.4 to 5.6 in 12 hours. Normal is 6.4 and up (and I snuck in a protein bar and gluten-free turkey sandwich too). A day later my Alkaline phosphatase was low. 

My RBC and protein are back to normal, at least in non-fasting state. I literally spent 3 days drinking protein drinks and taking molasses. I also have to eat  every 2-3 hours. I am currently fasted for a CT scan and queasy/weak.

I refused to officially go back on gluten after this because it led to a damaged adrenal gland and inflamed thyroid. I also have mild bilateral plueral effusions. They scoped me again in the hospital and I do not have the paper results yet but the doc said the biopsies he took showed the duodendum is inflamed and has white cells infiltrating but no villi blunting. I looked it up and it said this could be caused by bacterial infection or also by someone with celiac on a gluten-free diet.

Needless to say, prior to my gluten challenge last winter I took a multivitamin. I was fine! So I am going to be crazy neurotic about gluten from now on. I even have new makeup. 

Has anyone had labs done right after being glutened? Did they tank quickly and come back up after the big D stopped and you could eat again? It hurts to eat though. 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
16 minutes ago, ataglance said:

Has anyone had labs done after being glutened? 

I had weak positive bloodwork DGP IGA last year and a negative biopsy after a 6 week gluten challenge. Had been gluten-free for 8 mos. I have been gluten-free again since March with some cc. Had 3 episodes of bad D since July. One tanked my potassium, magnesium and alkaline phosphatase. They all returned to normal. This last one landed me in the hospital with metabolic acidosis last week. My RBC count going in was normal and dropped a tad below normal within 3 days along with hemoglobin. My protein went from 7.4 to 5.6 in 12 hours. Normal is 6.4 and up (and I snuck in a protein bar and gluten-free turkey sandwich too). A day later my Alkaline phosphatase was low. 

My RBC and protein are back to normal, at least in non-fasting state. I literally spent 3 days drinking protein drinks and taking molasses. I also have to eat  every 2-3 hours. I am currently fasted for a CT scan and queasy/weak.

I refused to officially go back on gluten after this because it led to a damaged adrenal gland and inflamed thyroid. I also have mild bilateral plueral effusions. They scoped me again in the hospital and I do not have the paper results yet but the doc said the biopsies he took showed the duodendum is inflamed and has white cells infiltrating but no villi blunting. I looked it up and it said this could be caused by bacterial infection or also by someone with celiac on a gluten-free diet.

Needless to say, prior to my gluten challenge last winter I took a multivitamin. I was fine! So I am going to be crazy neurotic about gluten from now on. I even have new makeup. 

Has anyone had labs done right after being glutened? Did they tank quickly and come back up after the big D stopped and you could eat again? It hurts to eat though. 

 

No matter what the cause, excessive diarrhea can cause dehydration and nutrition issues.

 

cyclinglady Grand Master

If you mean celiac antibody testing after a glutening, yes!  Did the hospital think to retest for celiac antibodies to perhaps exclude a glutening?    My GI tested me after a suspected glutening (not sure what even glutened me ?.)   My symptoms suggested SIBO, since they were so different from when I was diagnosed (no intestinal issues, but anemia).  My antibodies were off the charts four weeks later!  It took me 3 months to feel better.

I consumed a lot of stew (soft and mushy) because anything I ate hurt to digest.  

Oh, my endoscopy looks normal.  Only the biopsies revealed damaged villi.  

Karen is right about her advice too.  It is not always celiac disease!  

ironictruth Proficient

You guys are good. So my DGP IGA was weak positive before all of this. We tested it in July and it was 15. Normal is under 20. My celiac sibling is one of the few who is sero negative but biopsy positive, gene positive, and extremely sensitive. So we never held my breath that any serum levels would be positive.

I did not see anything in my labs from the hospital originally so I just checked now and it was 28. So, weak positive again. Do they continue to rise after or drop again right away? 

The GI doc did say my biopsy results would be consistent for someone with celiac who has been gluten-free for awhile (I have been for 6 months). 

After 8 months of feeling like a nutcase with an attacked thyroid and calcified adrenal gland, I can finally feel like this is enough of an answer for me. 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,443
    • Most Online (within 30 mins)
      7,748

    Mprice
    Newest Member
    Mprice
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.