Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

test results

Kwall

Recommended Posts

Kwall Apprentice
Kwall
Posted

Hi, I got my lab results back this week, but have yet to talk to my doctor about it.  Just a little confused by what I am reading.  This is what my results say, and if anyone can give me some advice on interpreting them that would be great...thanks

Deamidated Gliadin peptide Ab IgG
 
5.8
<12.0
U/mL
  NEGATIVE

 

Tissue Transglutaminase Ab IgA
HI
>^250.0
<12.0
U/mL
 

POSITIVE

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Well, you already know that it says "positive".  That means you have a chance (very good) for having celiac disease.  The next step is to get a Gastroentrologist referral for an endoscopy to obtain intestinal biopsies.   Keep eating gluten until all testing is complete as all the celiacs test (ALL) require you to be consuming gluten daily for accurate results.  Learn more from this reputable site. Ask us!  We are here to help.  ?

Open Original Shared Link

Kwall Apprentice
Kwall
Posted
  • Author

What does this mean in relation to a Celiac dx : Deamidated Gliadin peptide Ab IgG negative?  and how long does it usually take to get in to a get a biopsy done??  thanks

cyclinglady Grand Master
cyclinglady
Posted
On September 2, 2016 at 1:48 PM, Kwall said:

What does this mean in relation to a Celiac dx : Deamidated Gliadin peptide Ab IgG negative?  and how long does it usually take to get in to a get a biopsy done??  thanks

It means that the DGP IGG test for celiac disease is negative.  But you only need one positive on the celiac panel for a GI to order an endoscopy.  I guess your doctor was just looking for celiac disease.  Some doctors are using the DGP to measure other  illnesses related to the brain:  ADHD, Autism, schizphrenia, cerebral palsy (Green, Peter, MD., Gluten Exposed.  Harper Collins Publishers,  2016.). 

 How long does it take to schedule?  It depends on the doctor, your insurance, your country, etc.  

Kwall Apprentice
Kwall
Posted
  • Author

ok thank you for your help cyclinglady.  I will talk to my family GP this week and go from there.

 

Kwall Apprentice
Kwall
Posted
  • Author

So my doctors office says....you are celiac...go see a dietician!  So I say shouldn't I be diagnosed with a scope.  The secretary says she will inquire.  I called back today and yes they are going to refer me to a gastroenterologist.  

Today my 12 year old had a doctors appt for something else and I brought up testing him for celiac.  Doc says what symptoms is he showing?  I gave him a few examples but explained with my high positive that I wanted to get it ruled out for him.  He says that people don't get diagnosed until atleast in their 20's, he doesn't have any stomach pain or abnormal b.m.'s.  I insist.  So he fills out the request.  Then he says because my doctor didn't request an immunoglobulin for me that I might have celiac I might not.  AHHHHH!!!!  

RMJ Mentor
RMJ
Posted

If your son's doctor is saying your doctor didn't test you for total IgA, he's thinking in the wrong direction.  Low IgA could lead to a false negative result (looking like a negative when it is really positive).  Since you already have a positive result the total IgA result isn't really needed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kwall Apprentice
Kwall
Posted
  • Author

he is saying she should have tested immunoglobulin? and he also said that false positives are common?? I honestly don't think he really knows.  But he did say a scope is the gold standard which my doc was not going to do until I sort of insisted.

Kwall Apprentice
Kwall
Posted
  • Author

and he also said they don't scope kids, is this true?

 

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Kwall said:

and he also said they don't scope kids, is this true?

 

No, kids are scoped.  Because the celiac antibody tests are much better than in the past, in Europe they are diagnosing kids without scoping them.  But, there is certain criteria that must be met.  In the U.S.,most doctors still consider biopsies as the "Gold Standard".  But, every patient is different.  Some are too ill, for the endoscopy, etc.  

What you need is a celiac-savvy GI doctor.  Make sure that referral is to a GI who specializes in in or at least has a few celiac patients if you have a choice (a phone call or reading a doctor's biography is good).   It is important that you research and make sure you are up-to-speed on celiac disease.  I know that two of my PCP doctors are clueless when it comes to celiac disease.  Can I blame them?  No.  I'm just one of 2500 patients for my current one.  I used to  just arm myself with celiac disease information regarding follow-up testing and they run the tests for me.  Now, I have found a new celiac-savvy GI (changed insurance).  He's great.  Even before I showed up, he ordered all the necessary follow-up testing.  I was impressed (I had provided my new GI with written copies of all my celiac disease lab results prior to confirm my celiac disease diagnosis).  

You are most likely not IGA deficient.  If you were, your TTG IgA tests results would be low (negative).  Get to a GI.  Keep eating gluten as all testing (even the biopsies require it).  He/She might  even run the entire celiac panel for extra confirmation.  

 

frieze Community Regular
frieze
Posted

crazy ar-- pediatrician

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,443
    • Most Online (within 30 mins)
      7,748
    Mprice
    Newest Member
    Mprice
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.