Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How do you know that you're healing from celiac disease?


sella

Recommended Posts

sella Explorer

I've had undiagnosed celiac disease for decades. As a child, I suffered from constipation and still do. After being on a gluten-free diet for 3 years, I'm not sure if I gained 20 lbs due to having a hysterectomy or gluten-free diet at the same time. I know that women often gain weight during menopause. I also still lose lots of hair like I have in the past, but hormone imbalances also cause hair loss. I still have peeling skin. The only new thing I have noticed is that my liver enzymes have gone down to normal range and I'm not as dizzy as I used to be. 

Some people might reply to get a biopsy. I swallowed the camera instead of biopsy. It showed damage to my small intestine that you get with celiac disease. I don't want to have a biopsy, but if the camera test showed less damage, would that mean I was healing? I know when the damage doesn't heal, you have celaic sprue that is more likely the longer you have had undiagnosed celiac.

The big question I have is the celiac blood test. It has always been abnormal until I went on a gluten-free diet. But I think test results will be noraml if you don't eat gluten to have a reaction?

I haven't stopped eating dairy, though. So, I wonder if that's getting in the way of healing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
23 hours ago, sella said:

I've had undiagnosed celiac disease for decades. As a child, I suffered from constipation and still do. After being on a gluten-free diet for 3 years, I'm not sure if I gained 20 lbs due to having a hysterectomy or gluten-free diet at the same time. I know that women often gain weight during menopause. I also still lose lots of hair like I have in the past, but hormone imbalances also cause hair loss. I still have peeling skin. The only new thing I have noticed is that my liver enzymes have gone down to normal range and I'm not as dizzy as I used to be. 

Some people might reply to get a biopsy. I swallowed the camera instead of biopsy. It showed damage to my small intestine that you get with celiac disease. I don't want to have a biopsy, but if the camera test showed less damage, would that mean I was healing? I know when the damage doesn't heal, you have celaic sprue that is more likely the longer you have had undiagnosed celiac.

The big question I have is the celiac blood test. It has always been abnormal until I went on a gluten-free diet. But I think test results will be noraml if you don't eat gluten to have a reaction?

I haven't stopped eating dairy, though. So, I wonder if that's getting in the way of healing.

They usually do the endoscopy to get a biospy.  Celiac damage is usually microscopic, to the camera can't see it.  If you have high Celiac antibodies and they can actually see the damage, and you antibodies go down on a gluten-free diet -  then it sounds, to me, like you have Celiac.  Celiac Sprue is the old fashion name for Celiac.  It is the same thing.  

 

Pineapple Newbie

Why am i losing so much hair.  Ive always had thick long hair.  Lots of it. Its coming out every day.  Help someone@

kareng Grand Master
Just now, Pineapple said:

Why am i losing so much hair.  Ive always had thick long hair.  Lots of it. Its coming out every day.  Help someone@

I commented on your other post, too.  Please start your own topic and explain your situation and we can see if we can help.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,625
    • Most Online (within 30 mins)
      7,748

    Adrian Moten
    Newest Member
    Adrian Moten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.