Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Six months in - so many food intolerances, can hardly eat anything


strawberrymoon

Recommended Posts

strawberrymoon Apprentice
On 03/11/2016 at 7:55 PM, Jaemac said:

Hi Strawberry,

I've tried making bone broth and I didn't think I was very successful at it until just last week when I bought some commercially made bone broth (It's made locally here for our grocery stores and is authentic with no additives) and this stuff tasted just like what I had made. I thought I'd made a mistake as mine tasted like dishwater. Well that seems to be what it's supposed to taste like, not like chicken broth, lol. If you make it just know it won't add flavor to your potatoes it will add nutrients though. 

Also, I didn't know you were a vegetarian. As I assume you have trouble eating beans (as do most people, i mean we all know the jokes about beans) are you sure you're getting enough protein? What is your main protein source? If it's soy/tofu, you may want to explore that this may be one of the things making you ill. Soy can be really controversial. I looked up some of the symptoms of not eating enough protein, they are below.Oh, and if you're having trouble with the milk in butter you can make it into Gee which essentially involves melting it and skimming off the milk proteins to then it won't bother any lactose intolerance you may have. Just look up how to do it. Gee can also be purchased if money isn't a problem for you. Then you'd be able to add flavor to your potatoes. If you want to try a good chicken broth the one I use is called Better Than Bouillon and it's fantastic, it's pricy and does have a fair amount of salt but it salt isn't your problem then that may be a way to add flavor to your potatoes too, just make the water into a chicken broth and the potatoes will absorb it. The company also makes vegetable broth but I like the chicken better, lol. Hope the info below helps.

Eating too little protein can result in these symptoms as well:

  • A sluggish metabolism
  • Trouble losing weight
  • Trouble building muscle mass
  • Low Open Original Shared Link and fatigue
  • Poor concentration and trouble learning
  • Moodiness and mood swings
  • Muscle, Open Original Shared Link
  • Blood sugar changes that can lead to diabetes
  • Slow wound healing
  • Low immunity

Hi jaemac, I've heard a mixture of things about bone broth, a lot of what I've read seems to say it tastes nice.  I'll give it a go this week and see what happens lol

I haven't eaten meat for 31 years but there's been a couple of times when I've seriously thought about having some.  I'm starting to feel like I might not have any choice soon.  I can't have soy/tofu, to be honest I don't think I'm getting much protein, if any, and I do have some of the symptoms you listed apart from trouble losing weight!

I didn't realise butter might be okay.  I had a big problem with cheese so cut all dairy out a few months ago.  I'll try some butter and see how I get on with it. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



strawberrymoon Apprentice
8 minutes ago, Ennis_TX said:

Note Nutritional yeast is not the same as a active yeast/bread yeast....I can not eat anything with yeast in it. Nutritional yeast is different and safe for most people who can not eat yeast used in breads etc. It is inactive, and for me does not cause any of the issues I get with normal yeast. Do some research into it might be worth a try.

 

I didn't realise that, thanks.  I'll look into it.

strawberrymoon Apprentice
On 05/11/2016 at 1:31 PM, Rowan13 said:

Hi,

Just wondering have you looked into oxalates and oxalate levels of foods that bother you? I've discovered that the high and very high levels of oxalates in some foods seems to make me sick. I've learned that if I stay under a certain level of oxalates per day it is better for me. Open Original Shared Link

This is the main site I learned a lot about it and also the associated Yahoo group/forum. I've already realized I'm reacting to Salicylates, histamines and a lot of other stuff. Like you I get down to only a handful of foods but I've managed a few times to get somewhat better by checking to make sure I'm not ingesting high levels of of any of these components. However, I didn't understand gluten & dairy was making me sick and kept regressing. I at least have more awareness that for example spinach has massive amounts of oxalate & steer clear. (Though I loved spinach as a child) Oxalates build up in the system and if you consume more in a day than you can break down it can make you feel very ill, poisoned almost and cause a lot of side effects.

What seems to help me a bit is magnesium salt baths, but not too much! I even react to too much of that. Also dead sea salt mixed with the magnesium. My fav brand is Ancient Minerals flakes which I order directly from their site. Also drinking plenty of water and I like Smart water, distilled water sometimes and less often spring because that can make me feel sick too. Getting out in the fresh air can help but when I'm really sick even that can make me feel worse. But I feel my lessening of exercise and being in the outdoors (because of being sick & other stresses) has contributed to my getting sicker. (A catch 22)

Using google calendar or something like that is helpful for me to keep track of when I've been sick, what i ate, etc.  Even if I can just write a few sentences later I can look back and possibly see a pattern. I know now I can NOT drink coffee anymore. At least not for now. Staying up late on the computer strains me too but I admit I still do it because it also cheers me up. But I know if I overdo that it affects me in the next few days. Bone broth made me feel awful but I don't know why. It seems any time I boil or simmer something for a long time it doesn't make me feel well.  And finally, you probably know it already but the Open Original Shared Link website is quite good for supplements, special food products & other pharmacy type products. I also like this companies products, Open Original Shared Link especially the Sensitive probiotics. (But I've only just gone gluten free so I'm not at all sure that that product is safe.)  Sorry for this mish mash.  Best wishes.

 

Hi Rowan, I did read something about oxalates a while back and meant to look into it more.  It sounds like this could be part of my problem.  I'll look into it again. 

Like you I can't drink coffee anymore, but feel better for cutting it out. I also tend to stay up late most nights which probably isn't doing me much good.  I stopped exercising a few months ago so I should probably start that again.  I've noticed anything I put in the blender seems to make me feel ill, it must be something to do with the way food reacts depending on how it's cooked I think, I can't think of any other reason.

Thanks for this and the links I'll have a look at them.  I hope things improve for you soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.