Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Six months in - so many food intolerances, can hardly eat anything


strawberrymoon

Recommended Posts

strawberrymoon Apprentice
On 03/11/2016 at 7:55 PM, Jaemac said:

Hi Strawberry,

I've tried making bone broth and I didn't think I was very successful at it until just last week when I bought some commercially made bone broth (It's made locally here for our grocery stores and is authentic with no additives) and this stuff tasted just like what I had made. I thought I'd made a mistake as mine tasted like dishwater. Well that seems to be what it's supposed to taste like, not like chicken broth, lol. If you make it just know it won't add flavor to your potatoes it will add nutrients though. 

Also, I didn't know you were a vegetarian. As I assume you have trouble eating beans (as do most people, i mean we all know the jokes about beans) are you sure you're getting enough protein? What is your main protein source? If it's soy/tofu, you may want to explore that this may be one of the things making you ill. Soy can be really controversial. I looked up some of the symptoms of not eating enough protein, they are below.Oh, and if you're having trouble with the milk in butter you can make it into Gee which essentially involves melting it and skimming off the milk proteins to then it won't bother any lactose intolerance you may have. Just look up how to do it. Gee can also be purchased if money isn't a problem for you. Then you'd be able to add flavor to your potatoes. If you want to try a good chicken broth the one I use is called Better Than Bouillon and it's fantastic, it's pricy and does have a fair amount of salt but it salt isn't your problem then that may be a way to add flavor to your potatoes too, just make the water into a chicken broth and the potatoes will absorb it. The company also makes vegetable broth but I like the chicken better, lol. Hope the info below helps.

Eating too little protein can result in these symptoms as well:

  • A sluggish metabolism
  • Trouble losing weight
  • Trouble building muscle mass
  • Low Open Original Shared Link and fatigue
  • Poor concentration and trouble learning
  • Moodiness and mood swings
  • Muscle, Open Original Shared Link
  • Blood sugar changes that can lead to diabetes
  • Slow wound healing
  • Low immunity

Hi jaemac, I've heard a mixture of things about bone broth, a lot of what I've read seems to say it tastes nice.  I'll give it a go this week and see what happens lol

I haven't eaten meat for 31 years but there's been a couple of times when I've seriously thought about having some.  I'm starting to feel like I might not have any choice soon.  I can't have soy/tofu, to be honest I don't think I'm getting much protein, if any, and I do have some of the symptoms you listed apart from trouble losing weight!

I didn't realise butter might be okay.  I had a big problem with cheese so cut all dairy out a few months ago.  I'll try some butter and see how I get on with it. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



strawberrymoon Apprentice
8 minutes ago, Ennis_TX said:

Note Nutritional yeast is not the same as a active yeast/bread yeast....I can not eat anything with yeast in it. Nutritional yeast is different and safe for most people who can not eat yeast used in breads etc. It is inactive, and for me does not cause any of the issues I get with normal yeast. Do some research into it might be worth a try.

 

I didn't realise that, thanks.  I'll look into it.

strawberrymoon Apprentice
On 05/11/2016 at 1:31 PM, Rowan13 said:

Hi,

Just wondering have you looked into oxalates and oxalate levels of foods that bother you? I've discovered that the high and very high levels of oxalates in some foods seems to make me sick. I've learned that if I stay under a certain level of oxalates per day it is better for me. Open Original Shared Link

This is the main site I learned a lot about it and also the associated Yahoo group/forum. I've already realized I'm reacting to Salicylates, histamines and a lot of other stuff. Like you I get down to only a handful of foods but I've managed a few times to get somewhat better by checking to make sure I'm not ingesting high levels of of any of these components. However, I didn't understand gluten & dairy was making me sick and kept regressing. I at least have more awareness that for example spinach has massive amounts of oxalate & steer clear. (Though I loved spinach as a child) Oxalates build up in the system and if you consume more in a day than you can break down it can make you feel very ill, poisoned almost and cause a lot of side effects.

What seems to help me a bit is magnesium salt baths, but not too much! I even react to too much of that. Also dead sea salt mixed with the magnesium. My fav brand is Ancient Minerals flakes which I order directly from their site. Also drinking plenty of water and I like Smart water, distilled water sometimes and less often spring because that can make me feel sick too. Getting out in the fresh air can help but when I'm really sick even that can make me feel worse. But I feel my lessening of exercise and being in the outdoors (because of being sick & other stresses) has contributed to my getting sicker. (A catch 22)

Using google calendar or something like that is helpful for me to keep track of when I've been sick, what i ate, etc.  Even if I can just write a few sentences later I can look back and possibly see a pattern. I know now I can NOT drink coffee anymore. At least not for now. Staying up late on the computer strains me too but I admit I still do it because it also cheers me up. But I know if I overdo that it affects me in the next few days. Bone broth made me feel awful but I don't know why. It seems any time I boil or simmer something for a long time it doesn't make me feel well.  And finally, you probably know it already but the Open Original Shared Link website is quite good for supplements, special food products & other pharmacy type products. I also like this companies products, Open Original Shared Link especially the Sensitive probiotics. (But I've only just gone gluten free so I'm not at all sure that that product is safe.)  Sorry for this mish mash.  Best wishes.

 

Hi Rowan, I did read something about oxalates a while back and meant to look into it more.  It sounds like this could be part of my problem.  I'll look into it again. 

Like you I can't drink coffee anymore, but feel better for cutting it out. I also tend to stay up late most nights which probably isn't doing me much good.  I stopped exercising a few months ago so I should probably start that again.  I've noticed anything I put in the blender seems to make me feel ill, it must be something to do with the way food reacts depending on how it's cooked I think, I can't think of any other reason.

Thanks for this and the links I'll have a look at them.  I hope things improve for you soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to science enthusiast Christi's topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    2. - science enthusiast Christi posted a topic in Coping with Celiac Disease
      1

      Sugar intolerance 10 years into gluten-free diet

    3. - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    4. - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,463
    • Most Online (within 30 mins)
      7,748

    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
    • Healthierbody2026
      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.