Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten sensitive?


LaurynGF

Recommended Posts

LaurynGF Newbie

I'm new to this forum so I apologize in advance! 

I'm a 22 year old female. I recently was seen by a gastroenterologist because I've had adominal pain with distention/bloating and change in bowel habits that was onset about 11 months ago. At first I assosicated this with the stress of school and a dirty diet that consisted of mostly takeout but I realized it was much more serious because it's been persistent and hasn't gone away..... ever. 

My GI specialist ordered labs and sent me for a abdominal ultrasound and said everything came back looking good on my blood work and ultrasound other than an overgrowth of "bad bacteria" she gave me an antibiotic and reassured me that I didn't test positive for celiac. My GI doctor is under the impression that this is either IBS or that I'm very much "gluten sensitive" so now I have to do a trial and error of cutting gluten from my diet completely for 8 weeks. My chief complaint is the adominal bloating associated with pain. My question is has anyone experienced common symptoms, and did going gluten free help? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Lauryn,

Do you know what tests they did for celiac disease?  There are several antibodies that are part of the complete celiac disease test panel.  But often a doctor will do only the initial ttg IgA screening test and call it a day.  The ttg IgA is a good test, but it doesn't catch every celiac.   Maybe you can get a copy of your test results for celiac disease and post them in this thread?  The results should include the actual tested values and also a range of values to check them against.

I don't suggest giving up on celiac testing until you are sure they did the full celiac disease panel, including the DGP IgA and DGP IgG.  Plus total serum IgA which is tells if your body makes IgA antibodies at all.  Some people do not make much IgA at all.  In those people the IgA tests are useless and they have to look at IgG instead.

Welcome to the forum Lauryn! :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.