Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Home testing kit

Sally6

Recommended Posts

Sally6 Newbie
Sally6
Posted

I had a light bulb moment a few weeks ago and wondered if I was gluten sensitive/celiac. I'm 58 and probably have suffered from this all my life!!  So decided to cut out glutten for 4 days, what a difference I felt like a new woman. 

 

But then i started googling and realised  I needed to be on gluten for 6 weeks for a reliable result. So I'm back on it and all my symptoms are back. 

 

I bought a home testing kit as I was impatient. I was celiac negative after 10 minutes but celiac positive after 30 minutes.

im still eating gluten but was interested if anyone else had experienced this. 

 

Thanks a lot 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I don't know if they are reliable or not.  What test did you use?

Sally6 Newbie
Sally6
Posted
  • Author

Bio card from boots. I'm from the UK.  

kareng Grand Master
kareng
Posted
6 minutes ago, Sally6 said:

Bio card from boots. I'm from the UK.  

We don't have them here, yet.  Might call the company and ask about the odd result.

cyclinglady Grand Master
cyclinglady
Posted

So, the Biocard is a start.  Now, you should get into your GP and ask for a full celiac panel if at all possible.  Bring the biocard results in to show your doctor.  Keep eating gluten until you get all testing done (more blood tests and an endoscopy to obtain biopsies of the small intestine.  

Good luck!  

GFinDC Veteran
GFinDC
Posted

Hi Sally6,

The Biocard results are good for a certain number of minutes, after which they aren't reliable, per the test kit instructions.  That doesn't mean you don't have celiac disease though.  The Biocard test only measures one antibody type.  There are several more in the complete celiac disease antibodies panel.  If you can get your physician to do the complete celiac panel, it might show IgA or IgG antibodies.  Some people don't show an antibody reaction on one type of antibody, but do on another.  So although the basic common screening test (ttg IgA) does catch most people, it doesn't catch all cases of celiac disease.

Your symptoms do sound like possible celiac disease.  Also, Hashimoto's Thyroiditis is a condition associated (higher risk of getting it) with celiac disease.

You are correct that you need to continue eating gluten until testing is completed.  But only 4 days off gluten should not be a big problem for the tests.  If you can get the testing done soon, that would be great.  Usually the process includes a blood antibodies panel followed by an endoscopy later.  The endoscopy should take 4 to 6 biopsy samples for microscopic review.  They check them for damage to the villi lining of the small intestine cause by celiac disease.

You don't need to eat a lot of gluten each day to keep the antibodies active.  The University of Chicago celiac center recommends 1/2 slice of bread daily.

Welcome to the forum Sally! :)

P.S.  There is a thread titled Newbie 101 stickied to the top of the coping with forum.  It has some good information for beginners.

Sally6 Newbie
Sally6
Posted
  • Author

Thanks everyone. That's really helpful. My GP is good but wants to wait for the full 6 weeks before he does a blood test. I've got another 5 weeks which feels like a long time at the moment. I can't wait to be gluten free again as I have never felt so well!!

 

will sort out the newbie bit now ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
7 hours ago, Sally6 said:

Thanks everyone. That's really helpful. My GP is good but wants to wait for the full 6 weeks before he does a blood test. I've got another 5 weeks which feels like a long time at the moment. I can't wait to be gluten free again as I have never felt so well!!

will sort out the newbie bit now ?

Good going Sally!  Shoot, I think it took me about 6 months to sort out the gluten-free diet as a newbie.  That's a bummer they won't do the blood test now.  Did the doctor have any comment on the Biocard test?  I am guessing they would want to see the Biocard test done in their office before they would accept it.  I think the Biocard tests are really useful for individuals trying to sort out if there is a problem themselves, before going to a doctor.

Well, now you've got a chance to use up all those remaining bits of gluten in the cupboard.  You could stop eating dairy now, if it is bothering you.   Quite a few celiacs have problems with dairy before going gluten-free.  Going dairy-free won't affect the celiac testing.  But it might relieve some of the symptoms you are having.

 

Sally6 Newbie
Sally6
Posted
  • Author

From the above advice I have decided to bring forward my blood test at the docs.  It is now scheduled for next Friday. So hopefully my 4 days gluten free a couple of weeks ago, out of 58 years I should get a reliable result. 

Just want a bit of advice prior to the blood test as I don't want to miss the opportunity of them testing for the minimum. I've been under a neuro surgeon this year for tingling legs. He has decided it is fairly  innocutious and labelled it as peripheral neuropathy . He did a blood test for an autoimmune problem and it came back ok. Will it be the same as a celiac blood test?? Any ideas welcome. 

 

Thankyou. 

GFinDC Veteran
GFinDC
Posted

Hi Sally,

I don't know what test he did, but it is likely an ANA spot test.  The ANA test can show some autoimmune problems, but it won't diagnose celiac disease.  Celiac disease is diagnosed by anti-gliaden antibodies (AGA) in the bloodstream, and a positive endoscopy showing immune damage to the gut lining.  So, the ANA isn't a bad test to do, it just isn't specific to celiac disease.

Here's a link with the tests for celiac disease:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,730
    • Most Online (within 30 mins)
      7,748
    Sumac
    Newest Member
    Sumac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.