Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis after Barium Swallow


babco120

Recommended Posts

babco120 Newbie

Hi everybody,

I was just recently diagnosed with Celiac after an Upper GI x-ray (with barium swallow and air contrast). However, most of my bloodwork came back negative. I was just wondering if anyone else has also been diagnosed in the same way, as well as what I should expect in the first couple of weeks after diagnosis (i.e. possible other tests). Thank you so much!

Ashley


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
19 minutes ago, babco120 said:

Hi everybody,

I was just recently diagnosed with Celiac after an Upper GI x-ray (with barium swallow and air contrast). However, most of my bloodwork came back negative. I was just wondering if anyone else has also been diagnosed in the same way, as well as what I should expect in the first couple of weeks after diagnosis (i.e. possible other tests). Thank you so much!

Ashley

They can't biopsy during that - so they have not actually diagnosed you with Celiac.  Maybe if you had positive blood work and genetics....  

kareng Grand Master
20 minutes ago, babco120 said:

Hi everybody,

I was just recently diagnosed with Celiac after an Upper GI x-ray (with barium swallow and air contrast). However, most of my bloodwork came back negative. I was just wondering if anyone else has also been diagnosed in the same way, as well as what I should expect in the first couple of weeks after diagnosis (i.e. possible other tests). Thank you so much!

Ashley

They can't biopsy during that - so they have not actually diagnosed you with Celiac.  Maybe if you had positive blood work and genetics....  

kareng Grand Master

"If antibody tests and/or symptoms suggest celiac disease, the physician needs to confirm the diagnosis by obtaining tiny pieces of tissue from the small intestine to check for damage to the villi. This is done in an endoscopic biopsy procedure. Under sedation, the physician eases a long, thin tube called an endoscope through the mouth and stomach into the small intestine, and then takes samples of the tissue using small instruments passed through the endoscope. "

 

Open Original Shared Link

 

babco120 Newbie
20 minutes ago, kareng said:

"If antibody tests and/or symptoms suggest celiac disease, the physician needs to confirm the diagnosis by obtaining tiny pieces of tissue from the small intestine to check for damage to the villi. This is done in an endoscopic biopsy procedure. Under sedation, the physician eases a long, thin tube called an endoscope through the mouth and stomach into the small intestine, and then takes samples of the tissue using small instruments passed through the endoscope. "

 

Open Original Shared Link

 

The diagnosis was due to villous atrophy...is that enough to call it a diagnosis or do they still need more? Thank you so much for your help!

kareng Grand Master
26 minutes ago, babco120 said:

The diagnosis was due to villous atrophy...is that enough to call it a diagnosis or do they still need more? Thank you so much for your help!

Then they biopsied?  I don't think you can see on a microscopic level with a regular xray.

emma6 Enthusiast

this is so strange i've never heard of being diagnosed from a barium swallow. i didn't know it was even possible to see villous atrophy from an xray.

someone else probably knows more information about but im pretty sure there are other things which can cause villous atrophy so villous atrophy doesn't always means celiac disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran
1 hour ago, babco120 said:

Hi everybody,

I was just recently diagnosed with Celiac after an Upper GI x-ray (with barium swallow and air contrast). However, most of my bloodwork came back negative. I was just wondering if anyone else has also been diagnosed in the same way, as well as what I should expect in the first couple of weeks after diagnosis (i.e. possible other tests). Thank you so much!

Ashley

When you say "most" of your blood work came back negative. Can you be more specific? What blood tests were done & what were the results along with the reference ranges?

Never, ever heard of anyone being dx'd by X-Ray with barium and air contrast. Never, ever, never. I don't think they can see that well on an X-Ray. They take biopsies & send them to pathology in order to be able to see the villi. Is this a GI doc who did this? In this in the US?

cyclinglady Grand Master

It is possible, but the Gold standard is still biopsies obtained from an endoscopic procedure, along with testing for antibodies.  CT scans are often ordered when adults have unexplained abdominal pain.   In the old days they would use xrays like the procedure the OP had.  Radiologists are hoping to catch more celiacs by looking at abnormal thickness, etc.  Still they usually refer patients to a GI for an endoscopy and blood tests.  

Open Original Shared Link

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,286
    • Most Online (within 30 mins)
      7,748

    Molberry
    Newest Member
    Molberry
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.