Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looks like DH?


Porrin

Recommended Posts

Porrin Rookie

Hi everyone, i was tested for celiac twice, the first time was after 2 weeks of eating gluten every day (i was eating gluten free for almost a year) and the second was after about two months eating gluten, both came back negative in every antibody, but i've got this rash since i started eating gluten for the second test, wich is intermitent and very itchy, is on both my hands, i've never experience a rash like this and that lead me to belive it may be gluten related but since i tested negative idk... im going to try to push my doctor to ask for the biopsy anyway because i have many other symphtoms too and im deficient in vitamin D, A, and B12 + i have steathorrea, well this are the pictures of the rash

the one on my thumb is more similar to a blister, the others are still in development, but they are in te fingers of my two hands, itch like crazy and kind of come and go but never leave... any idea?

dedo1.webp

dedo2.webp

dedo3.png

dedo4.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

You need to get a dh biopsy from a derm experienced in dh. The biopsy is taken form clear skin adjacent to an active lesion NOT ON one. You would need to be actively eating gluten just like a gluten challenge & that's probably why your blood work was negative. You hadn't been eating gluten long enough so the tests are just plain invalid. See:

Open Original Shared Link

Porrin Rookie
6 hours ago, squirmingitch said:

You need to get a dh biopsy from a derm experienced in dh. The biopsy is taken form clear skin adjacent to an active lesion NOT ON one. You would need to be actively eating gluten just like a gluten challenge & that's probably why your blood work was negative. You hadn't been eating gluten long enough so the tests are just plain invalid. See:

Open Original Shared Link

Its been a while since i started eating gluten every day, i eat a little before the first try and then the two weeks, + the time that has passed since the blood test i think 12 weeks or 11 on total, so idk why it came back negative, maybe im not celiac but im going to go for the biopsy to be sure, thank you very much for your information about DH, do you think it could be? for how it looks? im goin to see a dermatologist but they all really busy at this time of the year 

cyclinglady Grand Master

Welcome to the forum.  Why did you go gluten free for a year?

Porrin Rookie
2 hours ago, cyclinglady said:

Welcome to the forum.  Why did you go gluten free for a year?

Thanks, i stopped eating gluten and lactose for a week because i was tired of feeling awful every day and i noticed an improvement almost intermediately, at first i thought it may be just something casual because for that week i was only eating fruits and vegetables so super healthy, and i thought that may be the cause of my health improvement, so i decide to reintroduce them and react bad to gluten, then i cut it off completely, i start to get better but i decide to get tested because of my family skepticism, the weird thing is that i have a patch on my knee of psoriasis gutata that never leaves, except when i was out of gluten for a long time, now i have it back, idk if psoriasis and gluten can be related tbh but it was a weird coincidence. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,125
    • Most Online (within 30 mins)
      7,748

    AndreaY
    Newest Member
    AndreaY
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.