Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do i have celiac disease???

TaraZ

Recommended Posts

TaraZ Newbie
TaraZ
Posted

Long story but I'll do my best to make it short...

6 months ago I suddenly broke out with red bumps on my forearms,  thighs,  butt, and feet. And they are very symmetrical. The bumps on my arms itch a little but that's it. 

I went to a dermatologist who thought it was a contract dermatitis have me topical steroid cream. 6 months later zero change in bumps.

I recently had an endoscopy because I've been having constant diarrhea and horrible fatigue and occasional blood in the stool.  I had a colonoscopy before and that was clean.  So the endoscopy found a small ulcer in the duodenum. The biopsy came back negative for celiac.

I also have a history of taking nsaids (celebrex) so the Dr thinks my ulcer is due to that.  

But heres the kicker...

I've been gluten free for 8 years (by choice not because I have ever been diagnosed with celiac) and the red bumps appeared the day after I ate a couple bites of wheat pasta....I was on a plane and they served pasta, I am very good at being gluten free but I thought it wouldn't be a big deal you eat it so....

Anyway I've been sick on and off for the last 3.5 years.  2 years ago I got really skinny and I was eating  a lot of calories.  I was exhausted all the time.  I felt horrible.  I went to the doctor all the time and they never found anything wrong with me. it was very frustrating. Then I finally gained weight back but I'm still very tired.  

I'm wondering if I have undiagnosed celiac. but I'm all ready gluten free ! 

I'm seeing my dermatologist soon and I'm going to demand a biopsy of my skin lessons. I'm scared I'm not going to get good care here,  I live in hawaii and it's hard to find good drs.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Hi Taraz,

You probably won't test positive for celiac disease if you are already eating gluten-free.  Celiac testing requires a gluten challenge of eating, gluten for a time before the testing.  Two weeks eating gluten for the endoscopy and 12 weeks for the blood antibody testing.  About a 1/2 slice of regular gluteny bread is adequate per the University of Chicago ceilac center.

You could ask the doctor to test you for nutrient deficiencies also.  Celiac damage can cause malabsorption of nutrients and its good to know if you have that problem.

Welcome to the forum  Taraz! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,986
    • Most Online (within 30 mins)
      7,748
    mjdegraw0511
    Newest Member
    mjdegraw0511
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Kimmy88
      New Celiac Disease patient & new to this group-Questions

      By Kimmy88 · Posted

      Thanks trents. Appreciate it. 
    • trents
      New Celiac Disease patient & new to this group-Questions

      By trents · Posted

      Welcome to the forum, @Kimmy88! Most toothpastes are actually gluten-free. Most meds are gluten free. There are lists available for most prescription meds to determine if they contain gluten as an intentional ingredient. Google. Remember, "gluten free" does not mean "contains no gluten" it just means it contains less than a certain parts per million of gluten, in the USA that's < than 20 ppm for food items. For meds it may not be the same standard. And for generic meds, you would need to contact manufacturers. Pharmacies can give you contact info. Trace amounts from cross contamination may not be an issue unless you are in the subset of super sensitive celiacs.
    • trents
      Untreated celiac

      By trents · Posted

      Kidney issues? What makes you say that?  Villi can take up to two or three years to completely heal in mature adults adhering to a strict gluten free diet. Less time for younger people like you. Get antibody levels checked about every 6 months.
    • Mettedkny
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By Mettedkny · Posted

      Hi everyone, I am on a mission to figure find the source of a hidden gluten in my diet, and I would greatly appreciate help. I have been diagnosed with celiac disease for 17+ years, NEVER had an issue, has always had "perfect" numbers and after healing, no damage to my intentional lining (had an endoscopy done a month ago which did not show any signs of damage). My son, who also has celiac disease has perfect numbers, and is my "blind study" on this mission. Over the past year my IgG numbers have gone up from 3 to 93 (normal range under 15), my IgA is 1.5 (normal range below 15, and has not changed all this time). At first I thought it might be my "new" (started a year ago) Progesterone pills, which I checked were gluten-free before starting. I spoke to Aurobindo (the manufacturer) and they assured me that there is no gluten in the pills, but cannot state they are gluten-free.  I have asked in this forum regarding the pills to see if anyone else is having an issue, which does not seem to be the case and it does not seem likely that they are the culprit. I have stopped eating lunch at my job (which I have done previously without issue for 10+ years) to see if that would make a difference. After 3 months of bringing my own lunch, I can report that that was not the culprit either. I do not eat out, eat home cooked meals, in a 100% gluten-free kitchen and have never in my first 16 years of diagnosis had any problems at all. My latest idea is that perhaps it could be the Crunchmaster multigrain crackers, something that my son does not eat. The crackers are certified gluten free and have been my go-to food for a long time - but could they really be the problem?  I am at my witts end but I am determined to find the source of the problem. The strange thing is I have NO signs of being glutened (I am very sensitive and get a reaction at the slightest crosscontamination = mouth ulcers and the worse), and as I said, have no damage to my intestine.  Any suggestions?? Thank you all for your help.
    • Scott Adams
      Diagnosed gluten allergy but not Celiac

      By Scott Adams · Posted

      Celiac disease is an autoimmune disorder, not something one "outgrows"; the historical belief that children did has been completely debunked by modern science. The immune response to gluten is lifelong. Furthermore, the idea that a strong immune system can "subdue" celiac disease is incorrect—the disease is the immune system mistakenly attacking the body. Symptoms manifest due to this autoimmune response, not because the immune system is too weak to suppress it. Finally, wheat is not chemically addictive, though the habit of eating it can be powerful and difficult to break. While maintaining adequate Vitamin D is crucial for overall immune function and bone health in celiac patients, this theory overstates its role. Vitamin D deficiency is a common consequence of celiac disease due to malabsorption in a damaged gut, not a proven root cause of its onset. The claim that high-dose Vitamin D can effectively neutralize the systemic autoimmune reaction to gluten is not supported by clinical evidence; a strict gluten-free diet remains the only known treatment. Furthermore, recommending a daily intake of 10,000 IU is potentially dangerous without medical supervision, as it can lead to hypercalcemia and kidney damage, despite newer, higher safety thresholds.
×
×
  • Create New...