Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Someone trying to help


Justine123

Recommended Posts

Justine123 Newbie

I have been Diagnosed with celiacs since May and it has been a roller coaster of a time. My boyfriend who is my best friend is so very supportive and will sometimes only eat gluten free food with me. He tries really hard at restaurants and makes sure that i am as comfortable a I can be! I am so thankful for him being so good with this when I am still in shock and coping because no one in my family has this. But something happened the other night that kind of upset me.

We went out to eat at a nice restaurant and he told the waiter that we were both celiacs so be careful of the cross contamination, it bugged me that he claimed to be celiacs, because I wouldn't wish that on anyone, but I don't know why is bugged me so much that he said that. Does anyone have any experience with that? or have any advice? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

You could ask him about it and see what he says.  Then decide if it makes sense to you.

kareng Grand Master

Some times my hub eats gluten-free, too, so we can share or I can at least taste his.  He probably just wanted to be sure the waiter took it seriously.  Depending on the restaurant, sometimes it is safer if your whole table orders gluten-free - less chance of confusion in a busy kitchen.  If he is drinking beer, he usually just explains that it's so I can have some of each meal.   Why not ask him?  

ERH Newbie

His intentions were probably good, but pretending to be celiac can cause a lot of damage for those of us who really are celiac.  Non-celiacs make exceptions and aren't that cautious about having a total gluten-free meal which creates the impression that it really isn't that important.  The "a little bit won't hurt" impression is very destructive.   Waiters get the impression that people who request special attention for their food are just fussy/aggravating customers who exaggerate their problem or who are following a fad diet.

It's always a good idea to touch base with the Manager when you enter the restaurant because his instructions to the waiter and kitchen will carry weight.  Speak up for yourself -- tell the waiter that you have a medical condition -- celiac -- and that you can get very sick if there is even a small amount of gluten in your food -- then add (with a smile) that your friend can "eat anything."  The message gets across clearly. 

deb-rn Contributor

I was not fully tested, by choice, and don't know if I'm Celiac, nevertheless, I have no intention of eating gluten.  I know I felt better immediately when I stopped eating it!  My husband, out of necessity, went gluten free as well and found out he didn't tolerate it when overindulging at a restaurant some months later!  Gluten is directly linked to 55 diseases!  Google it, it's very interesting.  Is it "good" for you?  Absolutely NOT!  Do some people tolerate it?  YES.  That is not to say it isn't doing damage in the background due to the Zonulin causing Leaky Gut!  Letting molecules through the barrier that weren't supposed to be there sets up all sorts of illness related to antibody production.  I guess I'm not sure why it bothers you that he said he was Celiac?  I just explain that I MUST be gluten free and leave it at that.  If they looked at me oddly, I would add that I have a medical condition, which I do!  I just chose not to do further testing after the first was inconclusive and a diet change made me feel so much better!

You could just state that  WE  are gluten free and not give any other reasons if you feel like he lied.  I'm sort of thinking that is where your guilt is.  Having bread crumbs, etc all over the table isn't going to do  YOU  any good either!  Good for him for stepping up to the plate!

Debbie

Beverage Proficient

My first reaction is that he told them that so that there would be no chance of cross contamination with the preparation of his food along with yours. If you've ever worked in the restaurant biz, dishes for the same table are prepared at the same time, depending what it is, by the same person. Maybe he was just thinking of you, not trying to claim anything for some other reason.

  • 2 weeks later...
mommida Enthusiast

Could it be like a spouse/life partner saying, "We are pregnant."?  As a concept you are a united team.  Less chance of cross-contamination by meaning gluten is not allowed at this table.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    5. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.