Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Opinions


Ennis-TX

Recommended Posts

Ennis-TX Grand Master

Wanting some opinions on these, the b12 is high but I found reducing my current supplement levels by any seems to leave me fatigued but I reduced them by 20% anyway. They did a few other test and nothing really stood out. I can post the other serum test if any might be relevant, they did over a dozen.  These were initially taken while investigating on my anemia (I think it is the intestinal hemorrhaging and the bloody stools) and they found that my ferritin level is 1 out of a reference of 26-388.

Iron is

TOTAL IRON BINDING CAPACITY 391 250-450 ug/dL   Final NAVARRO REGIONAL HOSPITAL (LAB)
UIBC 329.0   ug/dL   Final NAVARRO REGIONAL HOSPITAL (LAB)
IRON (FE) SERUM 62 65-175 ug/dL Low Final NAVARRO REGIONAL HOSPITAL (LAB)
IRON SATURATION 15.9

(on iron supplements, and high iron rich foods anyway)

And my B12....well

VITAMIN B 12 >2000 211-946 pg/mL High Final NAVARRO REGIONAL HOSPITAL (LAB)
FOLATE/FOLIC ACID >20.0 >3.0->3.0 ng/mL   Final

NAVARRO REGIONAL HOSPITAL (LA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hi Ennis,

I really can not comment about your results because I am not a doctor.  I can tell you how I have handled my tests results which are comparable in terms of the Folate and B-12 (elevated off the charts).  I was not supplementing at the time of my first post diagnosis annual check-up and my vitamin panel ordered by my GI indicated that my levels were high.  (At least I did not think I was supplementing (taking vitamins). For example,  I was lactose intolerant for decades, so I used soymilk which is supplemented.  By eliminating most processed foods (like the soymilk), my folate and B-12 levels are now in the normal range.  I think I was not processing the non-methalated versions of these nutrients.  As a result, I do not take any supplements at all and choose to get my nutrients from natural sources.  My last check-up showed that I am doing great.  I am not deficient in anything and am in normal ranges.  

There is a theory about the MTHFR gene, but I have never been tested.  It seems plausible since I know that cancers have been ruled out (reasons for elevated Folte and B-12).  It seems that this gene may run strongly in my family, but we have no concrete evidence (genetic testing).  

Open Original Shared Link

What it boils down to again and again, is that we are each unique and how we handle our diets must be individually based.  

GFinDC Veteran
13 hours ago, Ennis_TX said:

IRON (FE) SERUM 62 65-175 ug/dL Low Final NAVARRO REGIONAL HOSPITAL (LAB)

Maybe I'm nuts, but doesn't this say your serum ferite is 62?  so it is a a few points lower than the normal range of 65 to 175?

  65-175 ug/dL Low  

I am not saying being low is a good thing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,668
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.