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Help with the biopsy result

Nelly

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Nelly Rookie
Nelly
Posted

Here is my daughters biopsy report . She's 18 years old and is asymptomatic. Her ttg igG was above 300 but her ttg igG was 5. Can you please help me with her biopsy results as she's is reluctant to go on gluten free diet. Also suggest me if I should go for her genetic testing  which I wanted to avoid but will only do so to convince my daughter that she's celiac and has to follow gluten free diet.

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cyclinglady Grand Master
cyclinglady
Posted

Welcome!  I think you made a typo.  You listed the TTG IgG twice with two different values.  Can you please clarify?  

The genetic test helps rule out celiac disease -- not diagnose it.   That's because some 30% of the population carries the genes, but only a few actually go on to develop celiac disease.  You might consider asking for the EMA and DGP blood tests, but honestly, it looks like you need to get your daughter to talk to a doctor.  He/she should be able to convince your daughter that she needs to go gluten free.  Perhaps, investigate the negative outcomes of untreated celiac disease.  

My heart goes out to you and your daughter.  I suggest the family goes gluten free with her at least for a while.  Just choose naturally gluten free foods (meat, fish, rice, potatoes, fruit and other veggies.  Snack on nuts, corn or potato chips.  Things the whole family can eat -- ice cream.   Others can grab gluten foods away from home.  Read our Newbie 101 thread located at the top of the "Coping" section of this forum.  

All first degree relatives need to get tested.  If she is not symptomatic, what prompted her testing?  

Nelly Rookie
Nelly
Posted
  • Author

Sorry for the error. Her ttg iga was above 300 and her ttg igG was 5. I myself was diagnosed celiac in 2015. I got my daughter tested for celiac because since she was 5 she used to have severe stomach pains when ever she ate fried things or when she used to miss her meals. In both cases she used to suffer from severe pains which lasted for 5-6 hrs with sometimes vomiting and diarrhoea. But she outgrew from the issue a year back when she was diagnosed in early 2016. So this was the reason I get her tested for celiac. Kindly can you tell what her biopsy results say. Is it celiac and which marsh level

cyclinglady Grand Master
cyclinglady
Posted

I am not a doctor, but this may help:

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From a parent's perspective, it's celiac disease.  That TTG is super high.  The good news is that she can undo the damage (e.g. Like building up her bone mass).  

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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