Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help with the biopsy result

Nelly

Recommended Posts

Nelly Rookie
Nelly
Posted

Here is my daughters biopsy report . She's 18 years old and is asymptomatic. Her ttg igG was above 300 but her ttg igG was 5. Can you please help me with her biopsy results as she's is reluctant to go on gluten free diet. Also suggest me if I should go for her genetic testing  which I wanted to avoid but will only do so to convince my daughter that she's celiac and has to follow gluten free diet.

IMG_4522.PNG

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome!  I think you made a typo.  You listed the TTG IgG twice with two different values.  Can you please clarify?  

The genetic test helps rule out celiac disease -- not diagnose it.   That's because some 30% of the population carries the genes, but only a few actually go on to develop celiac disease.  You might consider asking for the EMA and DGP blood tests, but honestly, it looks like you need to get your daughter to talk to a doctor.  He/she should be able to convince your daughter that she needs to go gluten free.  Perhaps, investigate the negative outcomes of untreated celiac disease.  

My heart goes out to you and your daughter.  I suggest the family goes gluten free with her at least for a while.  Just choose naturally gluten free foods (meat, fish, rice, potatoes, fruit and other veggies.  Snack on nuts, corn or potato chips.  Things the whole family can eat -- ice cream.   Others can grab gluten foods away from home.  Read our Newbie 101 thread located at the top of the "Coping" section of this forum.  

All first degree relatives need to get tested.  If she is not symptomatic, what prompted her testing?  

Nelly Rookie
Nelly
Posted
  • Author

Sorry for the error. Her ttg iga was above 300 and her ttg igG was 5. I myself was diagnosed celiac in 2015. I got my daughter tested for celiac because since she was 5 she used to have severe stomach pains when ever she ate fried things or when she used to miss her meals. In both cases she used to suffer from severe pains which lasted for 5-6 hrs with sometimes vomiting and diarrhoea. But she outgrew from the issue a year back when she was diagnosed in early 2016. So this was the reason I get her tested for celiac. Kindly can you tell what her biopsy results say. Is it celiac and which marsh level

cyclinglady Grand Master
cyclinglady
Posted

I am not a doctor, but this may help:

Open Original Shared Link

From a parent's perspective, it's celiac disease.  That TTG is super high.  The good news is that she can undo the damage (e.g. Like building up her bone mass).  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      36

      Blood results

      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies? A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers. What sort of food does she eat on the GFD? Many gluten free processed foods?
    2. knitty kitty
      - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Confused about HLA-DQ Celiac gene test result

      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease. Just having one copy is sufficient to develop Celiac. Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line...
    3. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      Pain in the right side of abdomen

      I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upc...
    4. Scott Adams
      - Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease
      2

      Sugar intolerance 10 years into gluten-free diet

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood. I think what I am trying to say is you are going through a lot all at once, it is not surprising that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,465
    • Most Online (within 30 mins)
      7,748
    Dferares
    Newest Member
    Dferares
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood results

      By knitty kitty · Posted

      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies?   A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers.  What sort of food does she eat on the GFD?  Many gluten free processed foods?
    • knitty kitty
      Confused about HLA-DQ Celiac gene test result

      By knitty kitty · Posted

      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease.  Just having one copy is sufficient to develop Celiac.   Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening "...importantly, a comparable risk of celiac disease development was present in individuals carrying a double dose of HLA-DQB1*02 alleles, no matter the paired HLA-DQA1 alleles." And... "If we could consider a mass screening looking for the carrier status of HLA-DQB1*02 only, we may identify 95% of celiac disease predisposed patients and, concomitantly, rule out (with no more than a 5% error) the lifetime risk of disease in 60%-70% of the general population: These non-predisposed individuals should never receive the serological screening, unless any consistent clinical symptoms appear at some point of the existence without any other explanation." https://pmc.ncbi.nlm.nih.gov/articles/PMC7109277/ Classical celiac disease is more frequent with a double dose of HLA-DQB1*02: A systematic review with meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6375622/ Also, the Malabsorption of Celiac can cause low B vitamins (and minerals) that are related to poor oral health. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/ Best wishes for your Celiac journey!
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upcoming dietitian visit is a great step, since hidden gluten exposure or nutritional gaps can sometimes contribute to ongoing symptoms. That said, if the pain is persistent, worsening, or feels similar to her prior cyst symptoms, it’s reasonable to mention that to her doctor for peace of mind. It’s not uncommon for multiple things to overlap, so checking both GI and gynecologic angles can help rule things out and reduce anxiety while her body continues healing. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.    
    • Scott Adams
      Sugar intolerance 10 years into gluten-free diet

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • cristiana
      Insomnia help

      By cristiana · Posted

      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood.  I think what I am trying to say is you are going through a lot all at once, it is not surprising that you are not feeling 100 per cent. Even if we love our relative to bits, and they love us, they often can't understand that we too have lives, and need to keep our houses, families and jobs in running order. Something has to give, but it's often the carer!  When an elderly loved one is resistant to change, it makes things even more exhausting.  Often it has taken a crisis for me to be able to introduce the help that has actually been needed for so long.  It sounds as if you are doing an amazing job but can you get any support from any carers associations or other groups where you live, which might help?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.