Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What tests for Non Celiac gluten Intolerance?

Aspirant

Recommended Posts

Aspirant Apprentice
Aspirant
Posted

Hello,

I need  list of tests to be done by any doctor to Identifying Non Celiac Gluten Intolerance. Are there any tests which doctor can do.?

Any suggestions regarding these are always welcome.

Thanks,

Aspirant. 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
1 hour ago, Aspirant said:

Hello,

I need  list of tests to be done by any doctor to Identifying Non Celiac Gluten Intolerance. Are there any tests which doctor can do.?

Any suggestions regarding these are always welcome.

Thanks,

Aspirant. 

 

 

There aren't any that are accepted by the medical community

 

Open Original Shared Link

 

GFinDC Veteran
GFinDC
Posted

The only test I know is a self-administered elimination diet.  Cut out all gluten for 3 to 6 months and then re-introduce it.  Record your symptoms as you go.  If they change you may have your answer.  Some times NCGS is actually FODMAP intolerance per current thinking.  That's another route to explore.

squirmingitch Veteran
squirmingitch
Posted

I am wondering why you're asking specifically about NCGI. Have you been tested for celiac disease?

Jmg Mentor
Jmg
Posted

There isn't really a formal diagnosis, because there's not yet a test for it, although that may soon change, there's some Open Original Shared Link It's yet to reach the mainstream medical community however. Of course that won't stop Open Original Shared Link.

Your test at present would be to go through celiac testing process. If that's negative but you react to the gluten free diet then you could be diagnosed as ncgs by exclusion. At that point you may want to try the fodmaps diet as theOpen Original Shared Link that many who reported a reaction to gluten were actually reacting to fodmaps. 

However the ultimate arbiter of your health is you. If you come out of the other side of the diagnostic process without a firm diagnosis you need to decide for yourself on the evidence you have available what you're going to do. For me it was lifetime exclusion of gluten from my diet and with it the resolution or drastic improvement of a series of symptoms from GI to neurological.

Best of luck :)

 

 

 

Aspirant Apprentice
Aspirant
Posted
  • Author
On 1/21/2017 at 3:18 PM, kareng said:

There aren't any that are accepted by the medical community

 

Open Original Shared Link

 

The reason I am asking is for myself and my Son. who is 10 years old. He is showing the symptoms. 

kareng Grand Master
kareng
Posted
11 minutes ago, Aspirant said:

The reason I am asking is for myself and my Son. who is 10 years old. He is showing the symptoms. 

There aren't any.  You can get him tested for Celiac disease, which is a good idea to do before you make him gluten free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


deb-rn Contributor
deb-rn
Posted

Having negative basic testing... my diagnosis was going gluten-free and finding I felt better 3.5 yrs ago.  No looking back.  We have fine tuned even more now with no dairy, no soy, no chocolate, no coffee, no artificial sweeteners, limited eggs and peppers, no white potatoes, no rancid vegetable oils, very low carb and high fat.  Life is good again!  Those food pyramids by the government are just plain wrong!  The human body does NOT require any carbs for health.  Triggering an insulin response repeatedly leads to insulin resistance, obesity, cancer and a whole host of other diseases!  I was shocked when I found all this out.  How I wish I'd known this when my children were growing up.  We didn't learn any of this in nursing school!

Debbie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.