Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Common symptoms


Hendo6

Recommended Posts

Hendo6 Newbie

Hello all,

I am a 20 year old female and I've been experiencing GI symptoms for a long time now. I was bleeding when I was going poop and it first started 2 years ago. At first th3 GI doctor brushed me off and said it was constipation and your tearing the lining just take some laxitives and you'll be fine. A long time went by and I didn't have any bleeding but then a year and a half later I did but there was ALOT more blood in the toilet  (like your on your period). I went back to the doctor and they told me to go see the GI doctor once again. they're doing a colonscopy on Friday because they think it's internal hemmorids (I know I do not have external ones and internal ones don't bleed that bad most of the time) or polyps. I all the sudden started having these symptoms

-bloating

-as long as I can remember going to the bathroom 2-3 times a week

-one day I had extreme nauseasa 

-soars on my lip

-dry mouth

-distended stomach (one day it was so bad it was almost hard)

-for a long time now I've had numbness in just my pinky toe

-headaches

-really bad stomach aches after every time I ate

-I had mucus buildup in my throat (felt like it was just stuck there)

-iron deficiency anemia 

-extreamly tired all the time

-irritablitly 

-symptoms of ADD/or ADHD (not diagnosed)

-foggy memorie 

-same day that my stomach distended that bad and when I was very nauseous I was extremely shaky (almost out of control) and dizzy 

-possible polyps/ possibly internal hemmorids

-bleeding RARELY when I go to the bathroom

-gas

-I've weighted 118lb since middle school until about a year ago I started getting to 125lb

-weird "rash" not blistering or itchy but it's on my face and arms and it's super red and it just radiates heat.

I just never thought that I could have a gluten problem and I'm just trying to figure out from people who have this if I'm almost "text book" symptoms for this (I do know it is different for everyone though) I'm going though with the colonoscopy no matter what but after that should I make a doctors appointment to get blood tested? I also started eating gluten free and I do feel like my normal self again but I have cheated and ate a donut that was not gluten free and I got a little bloated but that was about it.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Hendo,

Welcome to the forum! :)

You do need to keep eating gluten (wheat, rye, barley) until the testing is complete.  The first testing step is usually blood antibodies testing, and later an endoscopy (not colonoscopy).  The endoscopy is to take biopsy samples of the small intestine for microscopic review.

The blood tests are for IgA and IgG antibodies to gliaden, a protein in wheat.

Your symptoms do sound like they could be from celiac disease.  I had some bleeding also but it was mostly related to a dairy reaction.  The ongoing irritation of the gut lining can result in reactions to many different foods.  Sometimes those reactions are temporary but sometimes not.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,687
    • Most Online (within 30 mins)
      7,748

    Patricia M Robinson
    Newest Member
    Patricia M Robinson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hummer01
      Hi trents, thanks for the response.  The 2nd opinion doctor said that if my CRP is still elevated at that time, he would advise me to look at Crohns/UC or another autoimmune issue. The colonoscopy I had this year seemed to rule those 2 out for now so he still believed celiac may explain it. No previous doctors have suggested any explanation for it even after calling to tell me it was a concerning result.  I guess it feels tough knowing I have positive blood testing, permissive genetics, and visible duodenum changes... and somehow it's NCGS instead of celiac. I'm still surprised the biopsies came back negative when the doctor was so sure they would be positive.
    • trents
      "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong! This is a highly accurate test for celiac disease, that requires specialized expertise to perform and interpret, and it is more expensive than other blood tests. It is generally used as a last test to confirm celiac disease after a positive tTG-IgA test. The sensitivity of a test refers to its ability to correctly identify individuals with the condition. For the EMA-IgA blood test, the sensitivity is generally very high, ranging from 90% to 98%. This means that the test can accurately detect celiac disease in a significant percentage of people who have the condition. The specificity of a test refers to its ability to correctly identify individuals without the condition. For the EMA-IgA blood test, the specificity is also high, typically around 95% to 100%. This indicates that the test can effectively rule out celiac disease in individuals who do not have the condition. Taken from the following article: Looking at the whole picture, I am wondering if you are transitioning from NCGS to celiac disease. Some experts in the gluten disorder field believe NCGS can be a precursor to celiac disease.
    • Hummer01
      Hi all, just wanted to post an update.  I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom.  Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was to stay with a celiac-level gluten free diet (no CC) for 6-12 months then retest to make sure TTG-IGA is still negative. He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac.  Today I had a follow up with the original GI that performed the scope. She is confident it is NCGS and says I can still have gluten sometimes. When I asked about the visible duodenum damage, she said it is just "irritation" from gluten because the biopsies were negative. She also said that my positive EMA isn't valuable because it has "a high false positive rate."  I guess I'm having trouble reconciling the totally different advice from these 2 GI's. I want to believe the new doctor more at this point because what he said just makes more sense to me, and he gave an actionable timeline for possible next steps. Feeling lost and disappointed at this point and wanted to write it down here in case anyone has input. Thank you.   
    • knitty kitty
      @junell, Can you get a DNA test to look for genes for Celiac Disease?   Have you had your thyroid checked? Have you been checked for nutritional deficiencies?  Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies.   Talk to your doctor and dietician about supplementing with essential vitamins and minerals.
    • Rebeccaj
      Hello , I would like to know what happens to people living or working in a industry or living with people that are non celiac or allergy Pron or anaphylaxis.    what are the symptoms and have you reached neurological symptoms during Airbourne exposure or hours later. persistent just ptsd related or unknown as its usually only high inflammation in the body when consumed with Vegas nerve symptoms of ingested or neuroglial of ingestion of inhalation accidently as my doctor has given me the ok to work but then my boss has let me go for a focal seizure as  Allery or ptsd unsure  any Insite of what someone else has gone through I was diagnosed when I was 27 so gluten free for the rest of my life but my family are not . ?
×
×
  • Create New...