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Can someone help me understand these results?


hersheygirl9

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hersheygirl9 Explorer

Hey guys. I recently visited a GI for some original gastritis diagnosis due to excessive alcohol use turned digestive issues. The digestive issues include bloating, gas, diarrhea from the gastritis diagnosis and then a few days of normal stools and then flip flopping between diarrhea and regular stools but then recently i had a few days of constipation and now I think I'm back to diarrhea. My concern started with me seeing clear undigested food in my stools that got me really scared and then I just kept seeing food and it was terrifying. Doc doesn't suspect celiac and thinks it might be IBS and the PPI medication from the gastritis but did tests nonetheless. All the results were normal except for some blood count stuff which was low but nothing the GI thought was worrisome. He also did an endoscopy and said my stomach has mild inflammation and the duodenum appears normal but took biopsies as he has to have them looked under a microscope to actually see damage. I'm really really scared about the biopsy results which I won't know for another week or so. All this is happening so quickly and I've been suffering since my gastritis diagnosis two months ago with all these different problems. If someone could help me out with how likely you think that I do have celiacs or just learning to deal with this stuff it would be so so great. I'm in my freshman year of college and I'm so scared that I brought this upon myself just because I started drinking and I'm so frustrated.

IgA: 239 mg/dL

TtG: <2 U/mL

Both the IgA and TtG were reported as "normal". I noticed that other people's posts about the blood results contained some GDP tests? The IgA and TtG were the only celiacs related tests on my blood report. 

Please help me as much as you can. Thank you so so much! 

  • 4 months later...

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ShaneGrimes Newbie

First of all in regards to your test were you on a gluten free diet when the test was done if so , then the test would come back normal

Victoria1234 Experienced
3 hours ago, ShaneGrimes said:

First of all in regards to your test were you on a gluten free diet when the test was done if so , then the test would come back normal

The original poster hasn't been on for many months.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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