Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Building works, feeling alone with symptoms


NightSky

Recommended Posts

NightSky Explorer

Hi,

I posted a while back and my symptoms have been so much better since I started on the Dr Fasano Gluten Cross Contamination Elimination Diet. Although the dermatologist said he wouldn't recommend I reintroduce gluten after five years of being gluten free because of the severity of my reactions and so couldn't diagnose whether or not I have DH, I wasn't reacting so strongly to trace amounts of gluten in my environment, so I was happy and well, getting stronger by the day.

Then... my reactions started to increase. I was getting sick, but weirdly only on Tuesdays and Thursdays. It started off mild and I thought I just needed to take a break, open the window or sit outside for a while but that made me SO much worse. I started to realise that 2 hours 45 minutes after sitting outside I would get sick (this is how long it takes for gluten to hit me EVERY time). There is a building site for a huge building just feet away from my window and their work with cement and plaster had started six weeks ago, just when my reactions started coming back. In the last couple of weeks the head fog and feelings of unease and dread come and go, along with stomach symptoms. My skin problems are fairly mild at the moment which is a shame because they would be a good, visible way to get verification.

I feel very alone with the symptoms. Whenever the dread and head fog came on in the past, I would enquire about whatever food I had eaten 2 hours and 45 minutes previously and someone would confirm they made a mistake and included gluten, so I learned what my symptoms are - but telling that to my doctor? I think he'll think I'm a nut, and what about disclosing that I think my reactions at work are gluten related? Talking about airborne gluten? I can't work in that environment - it knocks me out for 3 - 4 days at a time and I don't really feel right now, a week after my last exposure but I'm not sure whether to keep quiet about the reactions to the building site being really similar to my gluten reactions. 

I was doing so well :( I have agreed with work that I will go back and test my reaction on Thursday - dreading it! And to top it off, I am starting in a new job next week. I will turn up stuck in a total head fog, unable to function! Based on previous experience, it will take one to two months to get back to normality.

Any sympathy or related experiences welcome.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am glared the Fasano diet worked for you!  I have read that building materials can make you sick (those containing gluten, like plaster).   Is your new job at the same place?  If not, why go back to your old job?  Ask to do your exit interview from home.  

 

NightSky Explorer

Thank you. I'm at work now so should know in the next few hours whether or not I will get a reaction. I have been doing this job for several years and I am very fond of it but do need to think about my health too. Fingers crossed it will be ok. Also I have a doctors appointment so will see what they say.

Ennis-TX Grand Master

Never really thought about plaster too much, but I can see it happening. I have issues when I walk through the bakery section of a grocery store sometimes. Bit of the fogginess hits later and fatigue. Sorta always walk around them if I can and avoid the bread isle. Also has a issue at one grocery store, where I can not get the fresh veggies on one side. They have one refrigerated section of the fresh vegetables right next to the dough prep area for the bakery -_- I think they got me at least twice before I caught on to the CC issues with airborne flour.

  • 2 weeks later...
NightSky Explorer
On Thursday, March 16, 2017 at 0:29 PM, Ennis_TX said:

Never really thought about plaster too much, but I can see it happening. I have issues when I walk through the bakery section of a grocery store sometimes. Bit of the fogginess hits later and fatigue. Sorta always walk around them if I can and avoid the bread isle. Also has a issue at one grocery store, where I can not get the fresh veggies on one side. They have one refrigerated section of the fresh vegetables right next to the dough prep area for the bakery -_- I think they got me at least twice before I caught on to the CC issues with airborne flour.

It's good to be aware isn't it. Medical research has verified airborne particles can be problematic and hopefully there will be greater refinement in the research to establish greater understanding over time. 

The site manager at the construction site informed me that my symptoms starting coincided with when the work with cement started. As I got sick from plaster in my house I am thinking this could be related.

I was honest with my doctor about my symptoms and said I thought it had something to do with working next to a construction site. He said it sounds like an allergice response and said that it could be related to gluten symptoms but that these things are poorly understood. 

The cement work nearest my window is finishing this week and I'm due to return to my job. Relief! X 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.